Caregivers

ghosted

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I think my mom is mad at me. I haven’t heard from her in days. She is like that sometimes. There have been periods in my life where she has given me the silent treatment for days and then later acts like nothing is wrong. Or sometimes she smothers me.

I think I know why she is angry. Last week my mom was on vacation with her sister visiting their other sister at her condo in Florida. She called me almost every day she was gone. The first time she called on speaker phone wanting an update about Arabella. I was really annoyed by that because, although I don’t mind my aunts and uncles know my daughter is in jail, I didn’t want to talk to them about it. It was during that conversation my mom told me something was wrong with my dad but she didn’t know what because he didn’t tell her while she was on speaker phone.

One day she called wanting me to go check on my dad because he didn’t pick up his phone when she called him. My dad doesn’t live next to his phone. I told her he probably forgot to charge it. It turned out not to be a big deal. My mom calls wolf a lot so it’s hard to believe anything she says. A couple months back my brother Luke wasn’t feeling well. My mom thought his kidneys were failing because he has kidney disease and practically asked me if I thought my husband would be willing to give my brother a kidney. It turned out being a virus or something and he wasn’t dying. I take everything my mom says with a grain of salt.

The next evening my mom called while I was driving for a night out to go to the film festival with Paul, Alex, and Lexi. I didn’t want to deal with it so I didn’t answer my phone. My mom is known for catching me when I’m off to do something fun and guilting me about it bringing me down. When I didn’t answer, she called Alex. She never calls my son so I knew she was tracking our location and knew he was with me. Alex called her back and she dumped all her problems on him.

The next day she called me again wanting me to go check on my dad. I asked her what was wrong and she said my dad didn’t get off the couch for a couple of days. I’m not sure why that was a problem because my dad hasn’t gotten off the couch for about 20 years. I asked her if he called stating he needed help and she said she didn’t talk to him for a couple of days. I told her to verify if he needed help before I drove out there. She never called me back.

I don’t talk to my dad, but I don’t not talk to him either. If we actually had a relationship and my mom wasn’t calling wolf all the time, I would’ve dropped everything to check up on him. I decided I don’t want to be a caregiver for my dad if he is in poor health. I don’t have that kind of relationship with him where I would be willing to do that. I have my hands full just dealing with my own problems right now. Besides my dad is a very tall and obese man and I don’t think I could lift him if I wanted to.

The next day my mom was back home. Later in the day she called 911 and she called late Monday night to say my dad was in kidney failure. It turns out he probably ended up getting a kidney infection while she was gone. She said he was probably going to die that evening then called Tuesday to say he was going to be okay. Wednesday Arabella was in court. I texted her with an update and she never responded. Then I gave her a call Thursday and she hasn’t called back yet. Today is Sunday and I haven’t talked to her since Tuesday. Maybe she is angry because I didn’t go into an anxiety frenzy or drop everything to check on my dad for her. I’m sick of guessing and stressing about it. I have no idea where my dad is right now.

I recently read a book about stopping being a caregiver for the borderline or narcissist. It really opened my eyes to a lot of things. I always thought as a child I was my brother Matt’s caregiver. But through reading the book, I realized I was my mother’s caregiver. I was the second mom. I was being the parent when I was a kid. It’s a little late, but I decided it’s finally time to take care of me. My parents are capable of taking care of themselves. Sometimes I have to set boundaries to protect myself. That’s not to say I won’t help if it’s truly needed.

I’m sure my mom will call in a couple days like nothing ever happened. Then she will be upset I am going on a road trip with my friends. I hope I’m wrong.

Gratitude week 97

/ Outrunning my demons / 2 Comments
  1. Woohoo! It’s no shave November. LOL
  2. My husband is on week 2 of the detox diet and doing good.
  3. I’m grateful that Angel and Alex got gym memberships and work out several times a week. I’m happy that two of our kids have picked up on some of the healthy habits my husband and I have.
  4. The last couple of days the weather has been seasonally warm and sunny.
  5. I have appointments tomorrow with both the dentist and the doctor for a physical. YUCK! So the following day I made an appointment to get a massage. Yippee! It’s been ages.
  6. I started rereading the first edition of my book. It’s been almost two years since I wrote it and this will be my first read through since then. I’m grateful to have started the process again.
  7. I got a major project crossed off the list in the garage apartment. We finally got an oven hooked up after 6 months. My mom donated her oven which was great except that it was hooked up specially for propane and not natural gas. We needed someone to hook up the oven to the gas line. But the hard part was finding someone that could convert the oven back from propane to natural gas. I had 3 service guys out that couldn’t do it. We had to wait for parts. Some of the parts were incorrect. The guy from the appliance store that finally was able to fix it was out for the summer due to open heart surgery. He even had to come out a couple of times but he was finally able to get the oven converted this week.
  8. Angel and I met with the florist this past week for wedding planning. He was an old friend of ours from the community theater and gave us a discount. It was great to visit again. Crossed that off the list.
  9. I was able to cross off DJ from the list as well. Believe it or not but back in the day I used to drive my minivan out to the school once a month for the PTO meetings. I helped plan the school family dance and went through this DJ. We also used him when we planned my husband’s and friend Jen’s 40th birthday party. He said he would give us the same rate that he gave us over 10 years ago which is way under market price. Win, win, win.
  10. We have all the major stuff planned now for the wedding. They have the wedding chapel, the reception hall, cake, DJ, flowers, my daughter’s wedding dress, and photographer. My daughter asked me to be their wedding planner because I am a super anal organized detailed person. Since Angel lives at home we are able to talk about it and bounce ideas off of each other. Unfortunately this may have caused her future MIL to feel left out who is more of a fly by the seat of her pants kind of person. Thankfully we are all aware of the situation and maybe it can be fixed now before it is a problem.
  11. Yesterday Angel and Dan had their engagement pictures done. It was a horrible day for Angel however. Once in a while she provides care for an elderly lady with dementia. Angel was out walking with this woman yesterday when the woman fell and broke her leg. It was a very traumatic experience for them both. Thankfully since it was a beautiful day outside, there were several people nearby who offered help instead of walking away or recording the event. The whole experience was very upsetting for my daughter who was crying the morning of the day she had her engagement pictures done. The family of the elderly lady was very kind as well. I can’t imagine how horrible she must feel. I felt a little of that guilt when I tripped over my dog and thought we might have to put him down. It’s an awful feeling. Thankfully everyone was supportive.
  12. While I have enjoyed the time this week by doing some creative writing, I haven’t been really talking much about what is going on. This week was a lot more chill than the last couple of weeks. However I did find out that Arabella did not get the job she interviewed for earlier in the week. She also reached out to me today for the first time since I last did the gratitude list. Unfortunately it did not go well and I got another fuck you from her. Her insurance is not going to cover the cost of psychological testing and she blames me for it. She said she took me off of her HIPA form so I can’t talk to her doctors anymore. A couple of days ago I called the county to ask what kind of mental health programs they offer, but since I am not her guardian and she is over 18 there is nothing I can do. At this point I feel like I’ve done everything I could possibly think of doing for her. I do feel a sense of peace and gratitude that I’ve done everything I could humanly do for her. She may need a guardian some day but I don’t think she will ever let that person be me. I feel very conflicted with the holidays approaching. I’m not sure what is going to happen, but I feel like I am able to handle things better.
  13. I’m grateful my mom is going to spend a couple of days with her sisters next week. My mom hasn’t been doing too well lately. She has been having insomnia again and is very anxious she is going to have a nervous breakdown. I just can’t handle this right now.
  14. I’m grateful for everyone who has been supportive during this difficult time. Thank you to my followers for the prayers, well wishes, kind comments, and offers of support and hugs. I really wish I could thank you in person but that would blow the whole anonymous thing. I want to especially thank my husband who has been a rock for me even though he is going through his own hell with this. I know he reads my posts and is even okay when I vent about him. Thanks! Thanks to my daughter Angel who has been more like a best friend since we are so much alike. Thanks to my best friend Cindy who is always texting and calling to make sure I’m okay. She won’t let me slip away. Thanks to my son Alex who doesn’t fully know everything I’m going through but cares anyway. Thanks to my dog and my cat who still cuddle up to me when I manage to push everyone else away. Thanks for the good people out there who don’t get recognized but step up to help someone in need. You are the people that keep this world going and make it beautiful place to live in.
  15. I finished the What’s Normal book. Yeah, I’m pretty much screwed.
  16. Angel and I have been reading books together. We just finished One Flew Over the Cuckoo’s Nest and watched the movie. Seems like I could relate to that book better than the what’s normal book. LOL.
  17. Although I didn’t look at the stats, this must be my longest gratitude list yet. Wow, I must be a super positive person after all. I am making good on yesterday’s fortune of pushing away the negative today.

The squeaky wheel

/ Outrunning my demons / 5 Comments

Last Wednesday my mom came over. She walked in saying she told my dad she was going to move back into my house if he didn’t take a shower. In an instant I felt more stressed. She lived with us I would guess somewhere around 4 months. My dad showering was always a fight. If it was up to my dad he would never shower again. One time he didn’t shower for a whole year. It is a topic of marital conflict that I would bet most of your parents never have had.

It wasn’t long after my mom showed up that the police called her. She found out not only one, but two of my brother Matt’s caregivers in his group home stole money from him and his roommates. It broke my mom’s heart because she really liked one of the caregivers because she was good to Matt. Not only that, but my mom found out that someone most likely a caregiver stole my brother’s cell phone. My mom got a cell phone bill for hundreds of dollars on Matt’s phone for texting and data. My brother doesn’t read nor write. He said he couldn’t find his phone for the last couple of weeks. No wonder why, it was stolen.

This was very upsetting for my mom. She is going through so much. Sadly, it’s nothing new. From what I heard the police were going to arrest one of the women as they have a low tolerance for people that steal from the disabled. My mom needed to go to the police department the following morning to sign a subpoena to get the cell phone records. It never ends for my mom. The week before Matt was exposed to COVID and his roommate had pneumonia.

As my mom was dealing with some major problems with her special needs child, I was dealing with some major issues with mine. I knew that my mom was not as concerned about me in that moment as she was with everything going on with my brother. I spent my whole childhood pretty much used to that. My mom always said the squeaky wheel gets the oil. Some way or another, Matt was always that squeaky wheel. The other three tires never made much noise in comparison.

The last year and a half Arabella has been that squeaky wheel. Lately, she is all we ever talk about. She was sending me upsetting texts while my mom was busy with everything going on with Matt. Lately Angel picked her maid of honor for her wedding. She was excited because she was also picked as the maid of honor for that friend’s wedding. We were happy for her, but then the conversation quickly switched back to the problems we are currently having with Arabella. Angel said it wasn’t fair. She was doing great but no one ever focuses on her.

I understand totally as a special needs sibling. Tonight Paul and I are taking Angel and her fiancé out to eat to thank her for keeping a good eye on the house and pets while we were on vacation. We try to celebrate the good, but in all honesty everything going on with Arabella is bringing us down. There isn’t a lot of joy in my life right now. On a scale of one to ten I would list my joy rating at a zero. One of the only things that is keeping me from jumping off a cliff (or should I say the Kennebunk bridge) is looking forward to my daughter’s wedding.

Arabella’s time at the hotel was running out. She wanted somewhere to stay and didn’t want to stay with us or with my parents because the environment was way too unhealthy. She wanted to stay with my best friend’s family. Cindy has an 18 year old son living at home. I told my best friend not to let her stay there. If my daughter makes false allegations against her son, or husband for that matter, it could ruin their lives and I couldn’t live with that. Would she end up living in a car? Winter is coming. Then she ‘accidently’ sent me a text conversation she had with someone which detailed her overdosing. Maybe I’ll share that tomorrow. It’s hard to read though as a parent. Every day I expect a phone call telling us she is dead. That’s my life right now.

She doesn’t want anything to do with us, she said. But then she asked me if I would take care of her frogs. I have been but I don’t want to. I feel sad because every time I look at them I think of how they were a gift to her to show her how much we care. I don’t want her to take them because I am afraid they will die because she can’t even take care of herself. As I went to the pet store last week for more crickets, the guy who worked there forever commented to me how happy he was to see pets in good homes like mine. I almost started crying. I have a good home?? It’s so easy to doubt that anymore. I’ve been told how awful I am that I am almost starting to believe it or think that others see me that way.

How do people view me? Am I still the kind calm person with a sad smile? Or do people just see me with the weight on my shoulders that brings me down? Do they see the angry lady who beats her fists against the walls? The sad lady that almost cries in pet stores? Or do they see the real me in there somewhere? The me I can’t even see anymore. I’m so beyond broken at this point. Dealing with this stress day in and day out is killing me. But I’ve been through hell before and kept on going.

Caring for Matt

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It’s been at least a decade since I took care of my autistic brother Matt in my house. A few things precipitated this change. Initially I stopped providing weekend respite care for my parents after Matt was violent towards my daughter.

There may have been a few times I took care of Matt and my mom took my kids although it wasn’t much of a break. It was difficult raising 3 little kids without having much for family support. My mom had to take care of Matt. My brothers didn’t live close. My mother-in-law could barely handle raising the one child she did have, my husband. I found myself bitter towards parents that could dump their kids off and get away every now and then.

But the biggest change for me as a care provider for Matt was when my parents placed him in a group home. I was no longer needed to help out, until now that is. Matt’s group home was closed since the virus started. It is now open but if he goes back this month, he is not allowed to leave.

Originally my mom wanted me to stop by the house every night to make sure Matt was okay under my dad’s care. I told her it would be easier for me to have him stay with us for almost a week which is longer than he has ever stayed with me before.

I told my kids that Matt was coming to stay here for awhile but they wouldn’t have to adjust their lives around him. If it didn’t work out, Matt could always go home and I could check in on him everyday. One of my kids called me selfish for saying that our world didn’t revolve around Matt.

As a child my whole life revolved around Matt and if I had to tiptoe around him in my own house it wasn’t going to work. No other family member is willing to step up and offer to take him in for almost a week. That should count for something.

The whole experience went better than I expected. Although Matt is no longer violent, caring for him is not easy. He is on a special diet. I needed to make separate meals for him. At certain times of the day his medicine needs to be ground up and put into applesauce. He doesn’t have table manners. He farts and belches at the table. Sometimes he gags on his food especially if you bring a napkin near him.

He has poor hygiene. He is a messy eater and soils his clothes. He often wears his clothes inside out and/or backwards. He doesn’t change his clothes often. He refused to shower which he would need assistance doing. He wouldn’t ask for help after using the bathroom and made a mess on the floor. I had to floss his teeth and big clumps of food came out of his mouth which made me feel nauseous. He made a total mess out of the bathroom he used. In all honesty, it did trigger feelings of hopelessness in me.

Not only are my parents hoarders, but they rarely cleaned the house. Cleaning up after Matt would be like fixing up a house before you knew a tornado was going to hit. I didn’t even feel completely relieved that everything was clean after I cleaned once he left. I can’t always clean up messy feelings inside by cleaning the filth in my house.

I felt guilty when I wasn’t spending every minute taking care of him. Most of the time he would sit on the couch and stare off into space when I wasn’t interacting with him. I felt the ingrained need to please him because his life is so sad.

I found his favorite movies and put them on for him to watch. We went on walks together. I talked to him about the shared good memories from childhood. I talked about places and loved ones that long since passed. I talked to him about the things only a sibling would know. All these things helped ease his separation anxiety from my mom. I think things went really well, as good as I could have hoped for.

As a sibling, I worry a lot about what life will be like for Matt when my mom is no longer here. My parents are getting old. It is comforting to know that maybe he will adjust with my help. Matt will probably never be easy to care for but I think he would do well with me. I was impressed with how well he adapted to his new environment. It felt good to be able to help my mom out. In some ways it was nostalgic and strangely comforting for me as well.

 

Gratitude week 23

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  1. I am finally feeling like I am making progress on my self-improvement project.
  2. Summer weather!!
  3. I was able to get out on the sailboat for the first time this season.
  4. Things went better than I expected taking care of my autistic brother Matt. He adapted to our family well. More on this later.
  5. Taking care of my brother allowed my mom to get away with her sisters for a few days. It felt good to be able to give her a break. She decided she didn’t want to let fear control her life.
  6. I’m grateful our best friends had a really good experience with the foreign exchange student our daughter talked them into hosting. It was sad to say farewell to him over the weekend, but I’m grateful for the experience they had and we have had with our foreign exchange students. They are all awesome which says a lot since I’ve heard quite a few horror stories.
  7. I’m grateful that Paul’s new business is doing better than he thought it would.
  8. I’m grateful that for the first time I had a good experience singing in church. It has been difficult at times singing about the love I feel or the trust I have in God when I am struggling with that. Not only that, but I was able to sing relatively anxiety free. There were times that family issues made me feel panic or the thought of having to run to the bathroom in the middle of the service was terrifying.
  9. I’m grateful to have a clean house today.
  10. I’m grateful for the times I feel like everything is normal. That’s saying a lot because the last few months have been far from normal in so many ways.

Trips to the dump

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I thought of my grandpa the other day as a baby bee brushed against my fingers.

Things fell apart the summer I turned 13. My grandpa fell trying to get out of bed in the morning and spent the summer in the hospital trying to walk again. It was the year after my brother Matt spent the summer in the hospital. My grandpa wasn’t the same after that. He was diagnosed with a rare autoimmune disease. Before he came home a wheelchair ramp was added and the bathroom was remodeled to accommodate a wheelchair. He never walked again.

Maybe that was the year things got harder for me. My grandma was one of Matt’s biggest caregivers and now she needed to take care of my grandpa. That put a lot of pressure on me and I stopped my social life before it really even started to help take care of my brother.

But before grandpa got sick, we had some good times together. He used to take me fishing. I must have talked his ear off because he told me I was scaring the fish away with my incessant chatter. Many years later I found out this wasn’t true.

We also had our occasional Saturday morning trips to the dump. Grandpa would back his truck into our driveway to pick up our garbage which wasn’t a lot since we had a burning barrel and a compost pile. My parents are hoarders, so only true garbage was thrown away like used cat litter. Although sometimes that was used in the winter on the ice. Everything had a use or purpose even when it didn’t. Some rooms of the house and even the garage were dedicated junk piles. It was one of the zillion reasons I didn’t have friends over often. Apparently most people seem to find hoarding off-putting.

But anyway, the trips to the dump with my grandpa were wonderful. He was friends with the dump man who was also a hoarder. I swear the guy would go through everyone’s garbage to find treasures to take home. There were bags of garbage everywhere, some were burning in a big pit.

The dump was sandy and smoky. It wasn’t a good place to be on a windy day. But when there wasn’t wind, there were bees. The dump man said I didn’t need to be afraid of the bees. He told me to put out my finger and the little bees would land on it. I did and they tickled my finger. Since then I’ve never been afraid of bees or wasps and they have never hurt me. Of all the things I am afraid of, I’m not generally afraid of animals. My dad was afraid of spiders so he never used them to terrify me. Win, win I guess.

My grandpa and I made several trips to the dump because we were looking for the perfect bike. The dump man started setting aside the bikes for us that others threw away. Then one day we found the perfect piece of junk. Grandpa lovingly painted it purple, my favorite color. He put on a new chain, new tires, and a new sparkly purple banana seat.

One day I outgrew the little one speed bike. My last birthday before grandpa got sick, he took me to the store to buy a bike kit so he could put a ten speed together for me. It meant a lot because he bought it new and also because he took me to the store to buy it. That was the first and last time I remember my grandpa going inside a public place. He refused to leave the house after he was wheelchair bound. We had to fight with him to go to the doctor when he needed to go. He didn’t even go to my wedding. He would even panic if grandma was gone for more than an hour or two.

So when I saw the little bee buzz by the other day, I put out my finger to say hello. It instantly took me back to the trips to the dump. How crazy to have the trips to the dump be one of my fondest childhood memories. I am thankful for that though. My younger brothers barely remember the good times with grandpa before he was in a wheelchair.

 

 

In health

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Yesterday I had my first Craniosacral therapy appointment after the start of the pandemic followed by an appointment with my therapist. Afterwards, I felt great. I finally feel like I am making some headway with my healing process.

Fixing myself has been hard because I’ve been broken so long I got used to the cracks. It’s been an adjustment. It’s created some problems I’ve never guessed it would. Now that I am healing I’m starting to notice the brokenness around me more. For example, I find myself more critical of my husband because I feel like I am in a healthier place than he is. Before he was always the healthier one.

Since I started seeing the therapist a year and a half ago, I’ve gone through several crises. My therapist wants me to focus on letting go of the original trauma that I hold locked inside my body and mind. She thinks that once I do this all of the other stressors will flow through. I liken it to Tetris. If you clear out the bottom rows before everything starts piling up, it will be easier for everything else to flow through.

My therapist told me that with three teenagers in my house life realistically won’t be stress free anytime soon. What she says is true. Teenagers are stressful even when they aren’t trying to be. For example, our foreign exchange student Estelle wants to join in the protesting. I told her that she couldn’t because I couldn’t guarantee that it would be peaceful. I am in charge of someone else’s child and I want to feel reasonably sure that the activities she is involved in are safe.

Then Estelle said she wanted to run a mile every hour for 24 hours to raise money instead of protesting. Her idea was that she was going to run alone on country roads by herself day and night. She was rather upset when I said no to that idea too. Then she asked if she could run laps around the house at night and I told her it would be perfectly fine.

I think Estelle will be frightened running around the house at night. I took my brother Matt for a walk today and we saw 4 deer. We saw the cutest baby fawn. My autistic brother Matt is staying with us for a couple days. My mom is going up north to visit with her sisters for a couple days. I’m proud of her for not living her life in fear.

This means that I will be helping Matt with daily living. I will be fixing his meals separate from ours since he is on a special diet. I will have to help him shower, clean up himself after going to the bathroom, floss his teeth, and give him his medication. He is quite used to getting his way so I want to see how he will handle being with my family for several days. Someday when my parents are gone I will probably take him in once a month to stay with me if this works out.

If it doesn’t work out, I will take him back home to stay with my dad. I will just run over every day to check on him. My husband thinks it’s funny that my mom trusts me more than my dad to take care of my brother. But he doesn’t understand that is always the way it was even when I was a child myself. I hope this experience is not triggering. But I am mother henning right now which isn’t entirely unsatisfying since it is the last thing my teenagers want.

I am in a good place right now and hopefully I can remain here for awhile.

Extreme empty nest solutions

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On Sunday I received a phone call from the foreign exchange student coordinator a couple hours after my daughter moved out.

Sunday was a bittersweet day.

On Sunday, my best friend became a grandma for the first time.

On Sunday, it’s been a year and a day since my close friend lost her daughter in a fiery car crash.

On Sunday, my daughter moved 4 hours away and is not planning on living at home again.

I was feeling down as you can probably imagine.

My oldest daughter moved out, my son is off pet sitting this week, and my youngest daughter is volunteering this week as a camp cook. I’m feeling the empty nest kick in. I realized that I may have a harder time with this whole empty nest thing than I thought.

I’ve been a caregiver since I can remember. I was my autistic brother’s “second mom”. I also helped with my other two younger brothers.

In college, I was a caregiver for an elderly woman with Alzheimer’s and a middle aged man with Paranoid Schizophrenia. I took care of my brother Matt up until after I had several kids of my own. I also took care of my Aunt Grace when she had dementia. I provided day care for several children when my kids were little.

I don’t know what it is like to not take care of someone and the thought is a little scary.

As I was crying and feeling sorry for myself, the phone rang. The foreign exchange program coordinator called and said she had an emergency situation. One of the host parents for a student from Germany ended up getting into a serious motorcycle accident and broke her back. This student was really into music and needed a home.

I was wondering what to do with my daughter’s empty room. So we filled it. Now we will be hosting two foreign exchange students starting next month, Estelle from France and Clara from Germany.

I feel like my life has meaning again. I suppose most people get another pet once they start emptying the nest. Not me, I guess you could say I am rather extreme.

Even though it might be stressful having 3 teenagers in the house again, I am going to enjoy this last year of chaos before I have an empty nest.

By the time next year rolls around, I might actually be okay with only taking care of me.

 

Luke’s visit, part 8

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Over the past year, both Mark and Luke quit drinking. I was a little worried about Mark a couple summers back. One morning he started drinking at the cabin before most of the family woke up. Luke was always a drinker. He knew everything there was to know about beer. Luke was also the comedian. He’s not funny anymore. It’s strange that I felt some sadness at the loss of his role. He always made us laugh which made going through hard times easier.

Luke was upset that our parents did not seem to want to hear what he had to say to them. He told them that he needed to talk to them for him. It wasn’t about him being emotionally supportive for them anymore. He needed this for him to heal. He quit being the comedian not all that long ago. But making us laugh made us feel better, not him.

Luke stripped himself of all coping mechanisms and dove right into the truth. He is relying on God to get him through this. Me, I like to dip my feet in the water and keep my coping mechanisms nearby. Maybe I’m okay with the lies I tell myself until I am ready to face the truth. What is wrong with that?

Mark played the part of the invisible middle child. He had an important role too. He was the one who advocated for my dad when my mom packed up the car with her stuff and was ready to leave. He kept the family together.

I played the part of the caregiver/counselor. I was always the ultra responsible first born. This has been my role since I can remember. I think it is going to be hard for me once my kids all leave home. I cared for my autistic brother Matt since I was a little kid. I still was his caregiver after my children were born up until he started acting violent towards them. Then I had my own family to care for.

Luke asked my husband how I cope. Paul told him that running helps me cope and it does. I don’t drink to cope. I could never let anything control me. But is that really true? I like to work and keep busy at all times. Perhaps that controls me since I can’t ever seem to relax. But how can working be a bad thing? What if my coping mechanisms aren’t unhealthy? Who can I hurt by having a clean house, etc?

I like to write about my experiences. But on the days when I write about the most difficult times, I feel very depressed. Paul said that although writing seems good for me, maybe I need a counselor. But I stubbornly resist the notion of anyone helping me with anything. I don’t want help. I don’t think I need it right now. I want to work through this on my own.

I will be okay. I am healing. But it is not always a beautiful process.

On ffffffeeling angry

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My mom called me first thing Monday morning. She told me that she wanted to work on her feelings of anger. She thought it would be a good idea if I did too. Maybe, she said, I should think about seeing a therapist.

She point blank asked me if I was angry with her. No, mom. She asked me if I would tell her if I was angry with her. Sure, mom.

My mom asked if I was angry that my autistic brother Matt hurt my daughter Angel. Mom, that happened over 15 years ago.

My mom asked if I was angry that she spent/spends more time with Matt than she did with me. Mom, Matt needs you more than I do.

Right now I spend my time angry about other things. Arabella is starting to get late assignments. Her straight A’s are starting to slip…Not to mention that she rolls out of bed 10 minutes before the bus comes and expects to have enough time to take a shower and get ready. And somehow that ends up being my fault.

I am angry that I got a letter from the police department regarding a fine my son received over break for doing donuts in a parking lot…a minor incident nonetheless, but we didn’t find out until we got a letter in the mail. We told him that he had to pay his own fine to find out later in the week that he pissed away most of his hard earned money from his summer job on fast food.

This is what boils my blood now.

But I don’t tell my mother that. I barely talk to her at all about anything personal anymore. I don’t tell her about the things that make me angry. I want to protect her from that. She has had a hard life. She shouldn’t have to deal with any more problems during her last years.

To tell you the truth, sometimes I am angry with my mom. I am angry that I gave up my childhood to take care of my brother. Then when I needed her the most, I felt like she wasn’t there.

My mom did the best that she could. So why should I feel angry?

So what if she babies and spends more time with my disabled brother?? He needs her more.

Why do I feel anger towards my mother sometimes for something she had little control over??

The more important question is why don’t I feel anger towards my dad?? He had an ideal childhood, but wasn’t a good parent. He was lazy. My mom worked long hours to be the main breadwinner. She supported the family. My dad worked part-time jobs here and there.

My dad stuck around but wasn’t there. He was more interested in TV than being an active father or supportive husband. When he was involved, he was reactive and abusive.

My mom did everything and needed help. So I stepped up to the plate to help my mom raise my 3 younger brothers.

That being said, why should I feel angry towards my mom?? Why not my dad? She did the best she could. He could’ve done so much better.

How come feelings don’t make any sense?? There really is no logic behind them. They are so complex that I barely understand my own feelings much less the feelings of others.

No, mother, I am not angry…says my mind…but on some days my heart tells me differently. Why??