- This school year is finally in the books!! I think my daughter passed all of her classes. For the first time, I wasn’t sure it was going to happen…so that is tons of stress off of me!
- Summer!! Mother Nature has been moody this year. It’s either been hot, humid, and rainy or cool, dry, and windy. I almost froze this weekend sleeping in my winter pajamas. Some days we need the heat and others the A/C, but we are saving money by keeping both off.
- For the first time in my lifetime a tropical storm passed through the state of Wisconsin setting records. I almost felt like I did get that trip to Florida. Just another thing to add to the list this year of weird historical events I’ve lived through. Our foreign exchange student had her 16th birthday and party the day the storm hit. Talk about memorable.
- I finished a self(?)-help marriage book this past week. I realized I am an avoidant marriage partner. I like to take care of myself and not ask for help. I tend to hide out in my shell and have to be drawn out. As an introvert avoider raised by two introvert avoiders, I don’t tend to reach out to others as a source of comfort. I sometimes wonder if blogging is another way of avoiding relationships with other people. I am grateful for books that bring about more self-awareness.
- I also finished the colitis for dummies book. I learned a lot of helpful information. I also met with my wellness nurse this past week. I expressed frustration over not feeling good after going for almost a year. She still thinks she can help me but said that I have a lot of things going on in my body that have been that way for decades and are resistant to change. She gave me her personal contact info which she doesn’t give out to any of her other clients so I can update her on my progress. I feel like I can trust her. I am working hard with the nurse, counselor, and craniosacral therapist to heal my body. It seems almost voodoo like to have to purge all the junk I’ve stored in my body for so long to deal with the trauma in my life.
- I bought some flowers this week to decorate the outside of my house.
- I have been working with a mentor the last couple months on a Bible study on anxiety. When talking about what to do next, I suggested a couples study on marriage. I’ve been dealing with anxiety and depression my whole life but I haven’t been married that long. It’s something we want to work on with someone who has been married longer than us.
- I’m grateful my husband spent the weekend away working. His new business is taking off and I am happy about that since it was something we worried about.
- Flavored sparkling water.
- I’m grateful my daughter will be coming home for a visit this week.
- I am finally feeling like I am making progress on my self-improvement project.
- Summer weather!!
- I was able to get out on the sailboat for the first time this season.
- Things went better than I expected taking care of my autistic brother Matt. He adapted to our family well. More on this later.
- Taking care of my brother allowed my mom to get away with her sisters for a few days. It felt good to be able to give her a break. She decided she didn’t want to let fear control her life.
- I’m grateful our best friends had a really good experience with the foreign exchange student our daughter talked them into hosting. It was sad to say farewell to him over the weekend, but I’m grateful for the experience they had and we have had with our foreign exchange students. They are all awesome which says a lot since I’ve heard quite a few horror stories.
- I’m grateful that Paul’s new business is doing better than he thought it would.
- I’m grateful that for the first time I had a good experience singing in church. It has been difficult at times singing about the love I feel or the trust I have in God when I am struggling with that. Not only that, but I was able to sing relatively anxiety free. There were times that family issues made me feel panic or the thought of having to run to the bathroom in the middle of the service was terrifying.
- I’m grateful to have a clean house today.
- I’m grateful for the times I feel like everything is normal. That’s saying a lot because the last few months have been far from normal in so many ways.
- It felt good to go in for a haircut this past week. Funny story, when I got to my appointment I had a fever from sitting outside in my hot car. I was a little afraid she would turn me away. By the end of the appointment, I looked great and my temp was below normal.
- We finished painting the shed. I wasn’t sure it was going to happen at first because it seemed like a wild animal was living inside. Every time I got close it started clawing at the walls. But a few days later it was gone. Estelle, Arabella, and I started painting together. Then Estelle and Arabella started fighting. Estelle will be leaving soon. I will miss her a lot because she became like a daughter to me, but I will not miss the fighting. The shed will be a visual reminder that everything happens in its season.
- The month of May is over. I’m saddened by the state of this country and have to hope things will get better. Maybe this month…
- We were able to go back to church for the first time since the pandemic this past Sunday.
- The books I ordered came in the mail. I paged through Colitis for Dummies and learned more than what my doctor told me already. Apparently I am the 10-15% of the colitis population that has an undetermined cause. It could be ulcerative colitis or Crohn’s, but they really don’t know. I wish my doctor would’ve explained that to me.
- This past week I celebrated my 5th blogging anniversary. I’m still here!
- Today is the 2nd anniversary of moving into our house. I am thankful to be living in a house that I don’t mind being quarantined in.
- I am grateful to have a husband that loves to cook and is good at it.
- I’m grateful that my mouse issue was solved with replacing the batteries.
- I am grateful to be able to do a little planning and finally put some new things on my calendar after everything else has been crossed out. The funny thing as I was looking ahead at my wall calendar I put the wording on December’s photo as best year ever. Note to self: never put the words best year ever on a wall calendar in December…maybe in January.
- Just like that it went from winter to summer in Wisconsin. My favorite season is finally here!! This week we finally got green leaves on our trees. We took the cover off our pool.
- I trimmed down the list of people I’m following. I no longer follow people simply because they follow me like I used to. I’m following blogs I am interested in. The whole process was very glitchy so it is possible I may have accidentally unfollowed someone. I also axed some people that I genuinely liked because they haven’t blogged in several months or years. It felt good like I was cleaning. A big shout out to long time bloggers. I am grateful that you stuck it out.
- Coronavirus be damned, I hugged and cried with a complete stranger. As I mentioned yesterday, over the weekend a historical building once owned by my family burned down. I cried with the new owner who felt horrible because their intent was to restore the building and preserve its history. Also, because of it, I was able to see and hug my mom which with her terror over the virus I questioned if it would happen again anytime soon. I am grateful that we don’t have to deal with the devastation of a fire. The destruction and loss was overwhelming. I can’t imagine what they will have to go through. I am also grateful that no one was injured or died as a result of the fire.
- Paul got his first customer in his new business venture.
- I am slowly starting to feel a little better. By no means close to 100%, but if I had to live this way the rest of my life I could.
- On this Memorial Day, I am thankful for our wonderful veterans who sacrificed all.
- I am grateful for the ability to survive traumatic experiences.
- I am thankful for Paul. Even though things have been difficult lately, I know he has my back and I his.
- Taking the winter quilt off the bed, turning off the heat, and opening the windows.
- Estelle and I bought some orangish brown paint for the shed in the backyard. It is nice to have a project we can do together and something to remember her by once she goes home when I look at it.
By the end of last year, my life started to crumble apart. I was dealing with some serious issues with my dad. I reached out to God. Please God, if you are there, show me that you love me. Trust hasn’t always been my strong suit. But what I was asking for didn’t seem like much.
In February, someone I am very close to attempted suicide. Do you know the pain of feeling that one morning you might wake up and your loved one is no longer there? It’s pure hell. I stopped sleeping and battled insomnia for over a month with nightmares. Maybe if I was always vigilant, maybe if I didn’t sleep, than nothing bad would happen come morning.
In March, someone I knew decided to quit battling kidney disease. He died and we weren’t allowed to go to his funeral because this new virus was sweeping the nation. Later that month, we were planning on driving down to Florida to show our 2 foreign exchange students our country. The week we were leaving Disney World closed and we had to cancel our trip.
It was not the only trip that was cancelled. My mom, daughter Arabella, and I were planning on going on a school related music trip to Europe this summer. The company cancelled the trip and kept $1900 per person to line their pockets. The money they kept for all three of us was like one person went on the trip that didn’t.
We decided that our daughter Arabella could no longer be a foreign exchange student next year not only from coronavirus. When we sold our company, we took some of the profit as private equity stock in their business. We were supposed to get enough money to live on for the next couple of years the first quarter of 2020. We were going to use this to jump start a new business. It never happened and now we don’t know if and when it will happen.
Our financial security is gone. With the virus and the economy, it is a struggle to start a new business.
The schools shut down. Prom was cancelled. The track season that just started was cancelled. The musical postponed. My college daughter’s recital and later graduation was cancelled. The gym closed. I struggled to get a good workout because winter held on to the middle of May.
In April, one of our foreign exchange students decided to go home. It was during that time that I started taking an antibiotic prescribed by the wellness clinic which says a lot since they mainly treat with herbs and supplements. Ten days after the last dose, my body crashed. I was sick running to the bathroom 20 to 30 times a day, day and night for 10 days. I thought I was going to die. I pleaded with God to let me die. After being poked and prodded by several doctors and a colonoscopy later, I was diagnosed with colitis and sent on my way.
After the flare up, I was left with a hollow shell of a body. I am weak. I had to give up running. I am still sick. I can’t eat. I watch as my family members eat my favorite foods. In the last week alone I lost almost 10 pounds.
Meanwhile my daughter Arabella is packing back on all of the weight she worked so hard to lose. She went from an honor student pre-coronavirus to barely passing. I’m not sure she is going to pass all of her classes. I can’t blame her for feeling depressed since everything she was looking forward to is now gone.
Then I heard the news that the family business my great-grandparents built over 100 years ago burned to the ground. Although no longer owned by my family, a lot of my good childhood memories are tied to the building and my family that worked in it who are also gone. It was painful to see something they lovingly built destroyed.
There are things that happened this past year that I can’t even talk about yet. Somethings I will probably never share. It’s not even June yet. I’m not even sure if there is a God anymore. But if there is, right now I feel pretty certain that he doesn’t give two hoots about me. Or is God just taking the things I have away to show me what I already have been given?
What is love? Is it giving or taking away? Or is a mixture of both necessary for growth like sunshine and rain?
Okay, okay enough complaining for today. Tomorrow gratitude…
I wonder if wedding vows still espouse the traditional in sickness and in health. It’s been awhile since I went to a wedding, my own being almost 23 years ago. When I think of someone getting married, I think about young and healthy couples who probably don’t think that their love could battle health issues that might mess up their future dreams.
And the two shall become one. But what happens if one is sick? I’ve been thinking about that a lot lately since I haven’t been well.
Currently I am drinking 15 liquid elixir shots and popping 21 pills a day of supplements. I’m getting sick of it. I still don’t feel well. I am now trying to eat two small meals a day. My stomach hurts if I get too hungry and it pretty much always hurts after I eat. It’s a delicate dance.
Over the weekend I ate only bone broth. It is disgusting. I watched as my family ate pizza, hamburgers, birthday cake, chips with nacho cheese, and ice cream. It was hard to watch especially since my bone broth didn’t make me feel much better. I got very weak. The last thing I wanted to do was clean the kitchen up after they feasted which is a chore that mainly I do. Thankfully I didn’t have to.
Sometimes they feel bad for me. I get barraged everyday by well meaning loved ones with an are you feeling better yet. Sometimes they feel guilty for eating my favorite foods which I cannot have in front of me. Sometimes they care more about themselves.
Yesterday my husband went for a run and was apologetic to me. I didn’t enjoy running, I’m only doing it for my health. I feel horrible they are apologizing to me for doing the things they normally do. It makes me feel bad. But their normal behaviors are tormenting me because I can’t do it anymore. I think it is wrong for me to be upset about that. But it does upset me.
Oh, and another thing since I’m being totally honest here. It is hard to live with three teenagers in the house. The other day my daughter Arabella was eating cookie dough for breakfast at noon. My husband confronted her telling her she needed to eat something healthy. It was the right thing for him to do. Since then she has been angry at us and is once again slipping behind on her homework. I can foresee a lot of problems and confrontation with her in the near future.
Stress tends to make me feel worse. I have zero tolerance for stress right now which sucks because I see no end to that in sight.
Other than not feeling healthy, my mental health has been a struggle too. I used to cope with anxiety by running and keeping busy. Now I sit around and worry. I’m depressed because I don’t feel like I am accomplishing much. My husband gets irritated sometimes that he has to pull more of the weight since I’ve been sick. I don’t like it anymore than he does. It’s not like I’m trying to deliberately get out of doing my fair share. I’ve never been much of a slacker. No one in this house understands what it feels like.
I’ve been depressed because I don’t want to spend the rest of my life feeling this way. Now I think I understand why in sickness and in health are a part of the wedding vows. Will I still be loved if I am no longer the person I used to be?
For better or for worse, for richer and poorer, in sickness and in health…If you stay with someone long enough, you pretty much see it all.
I’ve been struggling a lot lately, so at this point having a weekly gratitude list is probably more important. I have to remind myself of the good things that are happening in my life.
The wellness nurse put me on a liquid diet over the weekend to try to calm my gut. I lost 7 lbs over the weekend. I haven’t been feeling well and I’ve been weak and tired to boot. It takes the energy of a 5k just for me to put the clothes from the washer into the dryer. Sometimes I have to take a rest after doing nothing.
This past weekend I packed up all of my running gear and put it in another room. It’s a painful reminder of what I cannot do. I haven’t cancelled the 50k I was planning on doing with my cousin late summer. Maybe, a miracle…
It’s been hard because I’ve always been a go go go person, type A all the way. I’ve really been trying to hide from the world how sick I am. It’s been pretty easy to do with this virus. I want people to remember me as strong and healthy. I feel so discouraged because what I once was no longer is.
To make matters worse, the weather hasn’t been cooperating here in Wisconsin. We had snow flurries on Mother’s Day and record low temps this past week. Since yesterday it has been very cold with temps struggling to reach 50 degrees. It’s also been very windy and by the end of the day we are supposed to have a total of 3 inches of rainfall from the last couple days of rain. Everything is flooded. The weather guy keeps saying every week since the beginning of April that the following week will be nice but it never is. I really hope that the weather makes my gratitude list next week.
Here is my list for this week:
- My daughter Angel made a surprise visit home this past weekend. She hasn’t been home in over two months. It was very comforting to have her around when I wasn’t feeling well.
- My baby Arabella turned 17 this past weekend. She ended up having a nicer day than she thought she would.
- Since Angel got a nice job, she decided to lease a vehicle and gave us back our old car for Arabella. Although the car is older than she is, Arabella now has a car. It was nice to see her all excited about it and take the time to vacuum and care for it. Now Arabella doesn’t have to borrow my car for school or work. I will not have to drop her off or pick her up anymore which will be less stress on me.
- Today I can eat something besides bone broth. Yeah!
- I talked to Paul’s friend who has colitis and got a lot of advice from him. It does feel good to know I am not alone in this despite the fact I wouldn’t wish this on anyone.
- I had good appointments with the wellness nurse, counselor, and mentor this past week. I am making progress on my healing although at times it doesn’t feel like it.
- Estelle found her lost Nintendo Switch. I was very worried once it went missing that it was stolen.
- I got my new t-shirt in the mail.
- Paul put our sailboat in the water last week. With all of the wind and rain it hasn’t been sunk, damaged, destroyed, or cast away yet.
- My aunt tested negative for Covid. Yeah, it’s only pneumonia! Seriously though, my uncle has lung issues and they were around other older family members with health issues. So it is a good thing. I was worried that the coronavirus might wipe out several of my family members.
It’s funny but one of the things I miss most is not wearing lip gloss. Shiny sparkly lips covered by a mask is not possible anymore. It’s messy and it smears.
Life is like that sometimes, messy.
I don’t even want to leave the house anymore. The last time you saw me I was beautiful and strong. Since then I’ve let my hair go gray. My strength left behind me with my last run at the gym before its doors closed along with my youthful blonde locks.
I’m ashamed of myself. I’ve tried to put myself back out there but I’ve been much too weak to run. Perhaps it’s over. I’ve had to let myself go. Instead of outrunning I’ve been overrun.
Do you know how much work it takes to run a 50k? Or maybe a marathon? I used to be a great runner. But now I can barely walk a couple miles without feeling winded. How will I get it back? Everything I built gone in one swift blow to my health. I just can’t seem to do it anymore. Maybe my toned athletic body will turn into a blob of sludge.
I will never be what I was.
I’m mourning the loss of me. Aren’t I too old to have to find myself again?
Or is that just a part of life? Do we ever realize ahead of time when things are ending or even beginning?
Is this the end? I don’t know anymore.
If I had known it was going to be over, I would’ve enjoyed it more. I would’ve held on longer before it slipped through my hands.
But isn’t that what we always tell ourselves when we realize we just said our last good-bye? The guilt of not making the most out of our last time never seems to leave. I would’ve tried harder.
I have to let it go if it is truly over…but right now it hurts to even think it might be.
If we traveled back in time to January 1st of this year, I would imagine quite a few of you had inspiring goals and new years resolutions for the new decade. It’s 2020, finally we would have a clear vision of the future we wanted for ourselves like never before. This year was going to be the best.
I don’t know about you, but I don’t really like change. Maybe it’s not even change that I don’t like. I mean, I’m always striving to be a better person and that involves change. What bothers me more than anything is uncertainty and not knowing what is happening.
If you asked me in January what I would be doing this weekend, I would have told you that I would be attending my daughter’s college graduation. At the time, nothing except death or being deathly ill would have kept me away from her special day. I found the perfect dress to wear. Maybe it was a little too dressy, but it was on sale. I should’ve been going in to have my nails done to match the dress and getting my hair done.
But that brings me here to today. I won’t be going anywhere anytime soon. Me, the person who has to have a plan. The person who schedules spontaneity 6 months in advance.
As most of you know, I just went through a 10 day bout of colitis. I went through expensive and uncomfortable tests to get some answers, some certainty, about my health. The morning of the procedure I brought along all of my paperwork from the wellness clinic. The doctor brushed me off with the comment that he does not approve of me seeking help at a wellness clinic and refused to look at the tests that were done.
I thought that the doctor’s bedside manner was horrible, but if he had the answers and could help me I didn’t care. When I called the doctor’s office on Monday expecting answers the nurse said that I had colitis but they have no idea why.
The doctor’s office told me something was wrong with me but they have no idea what. Is this going to happen again? What can I do to prevent this if I don’t even know what caused it? What the hell is going on? I was sick and all you can tell me is that I was sick?? Yesterday I fell into a deep despair. What is wrong with me? I wanted an expert to give me answers so I would know what is happening in my life. I want a plan that I can follow. I want to have a map to see where my life is going.
If I learned anything in 2020, it’s that everything is uncertain. It’s been a big lesson for me to learn. Everything I took for granted as certain has changed. It’s okay to grieve what has been lost. Then it’s time to continue on down the dimly lit path.
It’s time to throw away my security blankets of structure and routine. The only thing I can cling onto is that uncertainty is certain. That is now a big part of my life. I can’t be afraid. I have to think of this as an opportunity for growth. It’s time to strengthen the non-dominant hand I’ve been dealt. Maybe going with the flow won’t be all that bad. I DID say I wanted to be more easy going and laid back. Of course I wasn’t expecting to achieve that goal by having everything literally wiped off my calendar.
I’m being forced to change but maybe I will be a better person because of it. At least that is what I’ve been telling myself.
Once again, this past week has been really rough. I felt very sick for 10 days. I was even up 3 to 4 times a night to run to the bathroom. I got very little rest and my body feels weak. The preliminary test results are showing that I have some form of colitis.
Sadly, the doctor’s office called me on Friday a few minutes before closing. When I called back I got the answering service. I didn’t even receive a call back until 10 on Saturday morning from the nurse. She said the doctor wanted to treat me with a steroid but he wasn’t going to be able to talk to me until Monday morning.
The sun was shining and I felt pretty good yesterday. I probably overdid it with the yard work. I wanted to go for a run today but was so weak and tired I could barely walk. I started to feel pretty down. My body is not doing what I want it to do. How long will it be before my muscles start to atrophy? I take pride in long distance running. I spent the last 10 to 15 years toning my body. My arms have great definition for a woman in her mid-40’s. It makes me sick to think I might have to throw away all the work I put into being athletic.
I started to worry that I was going to become a burden to my family. I like taking care of things, not having others take care of me. I have plans to travel and more races to do.
Then I started to panic today because I realized the doctor intends to treat me with immunosuppressant drugs. I would do ANYTHING to not have to suffer through another episode of the kind of pain I just experienced. However, now is probably not the best time to be on immunosuppressant drugs.
This past week someone from our church died from the coronavirus. He was my husband’s age. I would be willing to go on medication to suppress my immune system to never go through what I went through again. But I am afraid.
Also, what about working?
So, I am going to try to be grateful for 10 things this past week….here goes..
- I should have my health questions answered this week.
- My aunt Jan sent me a get well card in the mail. It feels good to have people thinking and praying for me.
- My husband helped take care of a lot of things while I was sick.
- My daughter was very behind on school work and my husband helped design a schedule to help her get caught up. Plus he helped her with Algebra 2. He is a great teacher and great at math which I appreciate since I am not.
- The year of April finally ended.
- The weather was perfect this weekend which always makes life better. Winter will be back tomorrow and for the extended forecast. Yuck!!
- I felt pretty good yesterday.
- I bought a funny shirt. It says Pink Freud, The Dark Side of Your Mom. Consider it a Mother’s Day gift for myself. I love Pink Floyd and went to college for psychology, so Freud..
- I broke down and ate some macaroni and cheese. It was the first time I ate dairy in 9 months. I figured I couldn’t feel much worse than I was already feeling and I was right.
- With technology, I am still able to do a lot of the same things everyone else is doing. I am not at home by myself missing out. I can check out new shows and movies. I can still see my mom and daughter although I cannot visit them.