Gratitude week 21

  1.  Just like that it went from winter to summer in Wisconsin. My favorite season is finally here!! This week we finally got green leaves on our trees. We took the cover off our pool.
  2.  I trimmed down the list of people I’m following. I no longer follow people simply because they follow me like I used to. I’m following blogs I am interested in. The whole process was very glitchy so it is possible I may have accidentally unfollowed someone. I also axed some people that I genuinely liked because they haven’t blogged in several months or years. It felt good like I was cleaning. A big shout out to long time bloggers. I am grateful that you stuck it out.
  3.  Coronavirus be damned, I hugged and cried with a complete stranger. As I mentioned yesterday, over the weekend a historical building once owned by my family burned down. I cried with the new owner who felt horrible because their intent was to restore the building and preserve its history. Also, because of it, I was able to see and hug my mom which with her terror over the virus I questioned if it would happen again anytime soon. I am grateful that we don’t have to deal with the devastation of a fire. The destruction and loss was overwhelming. I can’t imagine what they will have to go through. I am also grateful that no one was injured or died as a result of the fire.
  4.  Paul got his first customer in his new business venture.
  5.  I am slowly starting to feel a little better. By no means close to 100%, but if I had to live this way the rest of my life I could.
  6.  On this Memorial Day, I am thankful for our wonderful veterans who sacrificed all.
  7.  I am grateful for the ability to survive traumatic experiences.
  8.  I am thankful for Paul. Even though things have been difficult lately, I know he has my back and I his.
  9.  Taking the winter quilt off the bed, turning off the heat, and opening the windows.
  10.  Estelle and I bought some orangish brown paint for the shed in the backyard. It is nice to have a project we can do together and something to remember her by once she goes home when I look at it.

What is love?

By the end of last year, my life started to crumble apart. I was dealing with some serious issues with my dad. I reached out to God. Please God, if you are there, show me that you love me. Trust hasn’t always been my strong suit. But what I was asking for didn’t seem like much.

In February, someone I am very close to attempted suicide. Do you know the pain of feeling that one morning you might wake up and your loved one is no longer there? It’s pure hell. I stopped sleeping and battled insomnia for over a month with nightmares. Maybe if I was always vigilant, maybe if I didn’t sleep, than nothing bad would happen come morning.

In March, someone I knew decided to quit battling kidney disease. He died and we weren’t allowed to go to his funeral because this new virus was sweeping the nation. Later that month, we were planning on driving down to Florida to show our 2 foreign exchange students our country. The week we were leaving Disney World closed and we had to cancel our trip.

It was not the only trip that was cancelled. My mom, daughter Arabella, and I were planning on going on a school related music trip to Europe this summer. The company cancelled the trip and kept $1900 per person to line their pockets. The money they kept for all three of us was like one person went on the trip that didn’t.

We decided that our daughter Arabella could no longer be a foreign exchange student next year not only from coronavirus. When we sold our company, we took some of the profit as private equity stock in their business. We were supposed to get enough money to live on for the next couple of years the first quarter of 2020. We were going to use this to jump start a new business. It never happened and now we don’t know if and when it will happen.

Our financial security is gone. With the virus and the economy, it is a struggle to start a new business.

The schools shut down. Prom was cancelled. The track season that just started was cancelled. The musical postponed. My college daughter’s recital and later graduation was cancelled. The gym closed. I struggled to get a good workout because winter held on to the middle of May.

In April, one of our foreign exchange students decided to go home. It was during that time that I started taking an antibiotic prescribed by the wellness clinic which says a lot since they mainly treat with herbs and supplements. Ten days after the last dose, my body crashed. I was sick running to the bathroom 20 to 30 times a day, day and night for 10 days. I thought I was going to die. I pleaded with God to let me die. After being poked and prodded by several doctors and a colonoscopy later, I was diagnosed with colitis and sent on my way.

After the flare up, I was left with a hollow shell of a body. I am weak. I had to give up running. I am still sick. I can’t eat. I watch as my family members eat my favorite foods. In the last week alone I lost almost 10 pounds.

Meanwhile my daughter Arabella is packing back on all of the weight she worked so hard to lose. She went from an honor student pre-coronavirus to barely passing. I’m not sure she is going to pass all of her classes. I can’t blame her for feeling depressed since everything she was looking forward to is now gone.

Then I heard the news that the family business my great-grandparents built over 100 years ago burned to the ground. Although no longer owned by my family, a lot of my good childhood memories are tied to the building and my family that worked in it who are also gone. It was painful to see something they lovingly built destroyed.

There are things that happened this past year that I can’t even talk about yet. Somethings I will probably never share. It’s not even June yet. I’m not even sure if there is a God anymore. But if there is, right now I feel pretty certain that he doesn’t give two hoots about me. Or is God just taking the things I have away to show me what I already have been given?

What is love? Is it giving or taking away? Or is a mixture of both necessary for growth like sunshine and rain?

Okay, okay enough complaining for today. Tomorrow gratitude…

In sickness and in health

I wonder if wedding vows still espouse the traditional in sickness and in health. It’s been awhile since I went to a wedding, my own being almost 23 years ago. When I think of someone getting married, I think about young and healthy couples who probably don’t think that their love could battle health issues that might mess up their future dreams.

And the two shall become one. But what happens if one is sick? I’ve been thinking about that a lot lately since I haven’t been well.

Currently I am drinking 15 liquid elixir shots and popping 21 pills a day of supplements. I’m getting sick of it. I still don’t feel well. I am now trying to eat two small meals a day. My stomach hurts if I get too hungry and it pretty much always hurts after I eat. It’s a delicate dance.

Over the weekend I ate only bone broth. It is disgusting. I watched as my family ate pizza, hamburgers, birthday cake, chips with nacho cheese, and ice cream. It was hard to watch especially since my bone broth didn’t make me feel much better. I got very weak. The last thing I wanted to do was clean the kitchen up after they feasted which is a chore that mainly I do. Thankfully I didn’t have to.

Sometimes they feel bad for me. I get barraged everyday by well meaning loved ones with an are you feeling better yet. Sometimes they feel guilty for eating my favorite foods which I cannot have in front of me. Sometimes they care more about themselves.

Yesterday my husband went for a run and was apologetic to me. I didn’t enjoy running, I’m only doing it for my health. I feel horrible they are apologizing to me for doing the things they normally do. It makes me feel bad. But their normal behaviors are tormenting me because I can’t do it anymore. I think it is wrong for me to be upset about that. But it does upset me.

Oh, and another thing since I’m being totally honest here. It is hard to live with three teenagers in the house. The other day my daughter Arabella was eating cookie dough for breakfast at noon. My husband confronted her telling her she needed to eat something healthy. It was the right thing for him to do. Since then she has been angry at us and is once again slipping behind on her homework. I can foresee a lot of problems and confrontation with her in the near future.

Stress tends to make me feel worse. I have zero tolerance for stress right now which sucks because I see no end to that in sight.

Other than not feeling healthy, my mental health has been a struggle too. I used to cope with anxiety by running and keeping busy. Now I sit around and worry. I’m depressed because I don’t feel like I am accomplishing much. My husband gets irritated sometimes that he has to pull more of the weight since I’ve been sick. I don’t like it anymore than he does. It’s not like I’m trying to deliberately get out of doing my fair share. I’ve never been much of a slacker. No one in this house understands what it feels like.

I’ve been depressed because I don’t want to spend the rest of my life feeling this way. Now I think I understand why in sickness and in health are a part of the wedding vows. Will I still be loved if I am no longer the person I used to be?

For better or for worse, for richer and poorer, in sickness and in health…If you stay with someone long enough, you pretty much see it all.

Gratitude week 20

I’ve been struggling a lot lately, so at this point having a weekly gratitude list is probably more important. I have to remind myself of the good things that are happening in my life.

The wellness nurse put me on a liquid diet over the weekend to try to calm my gut. I lost 7 lbs over the weekend. I haven’t been feeling well and I’ve been weak and tired to boot. It takes the energy of a 5k just for me to put the clothes from the washer into the dryer. Sometimes I have to take a rest after doing nothing.

This past weekend I packed up all of my running gear and put it in another room. It’s a painful reminder of what I cannot do. I haven’t cancelled the 50k I was planning on doing with my cousin late summer. Maybe, a miracle…

It’s been hard because I’ve always been a go go go person, type A all the way. I’ve really been trying to hide from the world how sick I am. It’s been pretty easy to do with this virus. I want people to remember me as strong and healthy.  I feel so discouraged because what I once was no longer is.

To make matters worse, the weather hasn’t been cooperating here in Wisconsin. We had snow flurries on Mother’s Day and record low temps this past week. Since yesterday it has been very cold with temps struggling to reach 50 degrees. It’s also been very windy and by the end of the day we are supposed to have a total of 3 inches of rainfall from the last couple days of rain. Everything is flooded. The weather guy keeps saying every week since the beginning of April that the following week will be nice but it never is. I really hope that the weather makes my gratitude list next week.

Here is my list for this week:

  1.  My daughter Angel made a surprise visit home this past weekend. She hasn’t been home in over two months. It was very comforting to have her around when I wasn’t feeling well.
  2.  My baby Arabella turned 17 this past weekend. She ended up having a nicer day than she thought she would.
  3.  Since Angel got a nice job, she decided to lease a vehicle and gave us back our old car for Arabella. Although the car is older than she is, Arabella now has a car. It was nice to see her all excited about it and take the time to vacuum and care for it. Now Arabella doesn’t have to borrow my car for school or work. I will not have to drop her off or pick her up anymore which will be less stress on me.
  4.  Today I can eat something besides bone broth. Yeah!
  5.  I talked to Paul’s friend who has colitis and got a lot of advice from him. It does feel good to know I am not alone in this despite the fact I wouldn’t wish this on anyone.
  6.  I had good appointments with the wellness nurse, counselor, and mentor this past week. I am making progress on my healing although at times it doesn’t feel like it.
  7.  Estelle found her lost Nintendo Switch. I was very worried once it went missing that it was stolen.
  8.  I got my new t-shirt in the mail.
  9.  Paul put our sailboat in the water last week. With all of the wind and rain it hasn’t been sunk, damaged, destroyed, or cast away yet.
  10.  My aunt tested negative for Covid. Yeah, it’s only pneumonia! Seriously though, my uncle has lung issues and they were around other older family members with health issues. So it is a good thing. I was worried that the coronavirus might wipe out several of my family members.

Losing myself

It’s funny but one of the things I miss most is not wearing lip gloss. Shiny sparkly lips covered by a mask is not possible anymore. It’s messy and it smears.

Life is like that sometimes, messy.

I don’t even want to leave the house anymore. The last time you saw me I was beautiful and strong. Since then I’ve let my hair go gray. My strength left behind me with my last run at the gym before its doors closed along with my youthful blonde locks.

I’m ashamed of myself. I’ve tried to put myself back out there but I’ve been much too weak to run. Perhaps it’s over. I’ve had to let myself go. Instead of outrunning I’ve been overrun.

Do you know how much work it takes to run a 50k? Or maybe a marathon? I used to be a great runner. But now I can barely walk a couple miles without feeling winded. How will I get it back? Everything I built gone in one swift blow to my health. I just can’t seem to do it anymore. Maybe my toned athletic body will turn into a blob of sludge.

I will never be what I was.

I’m mourning the loss of me. Aren’t I too old to have to find myself again?

Or is that just a part of life? Do we ever realize ahead of time when things are ending or even beginning?

Is this the end? I don’t know anymore.

If I had known it was going to be over, I would’ve enjoyed it more. I would’ve held on longer before it slipped through my hands.

But isn’t that what we always tell ourselves when we realize we just said our last good-bye? The guilt of not making the most out of our last time never seems to leave. I would’ve tried harder.

I have to let it go if it is truly over…but right now it hurts to even think it might be.

 

Certain uncertainty

If we traveled back in time to January 1st of this year, I would imagine quite a few of you had inspiring goals and new years resolutions for the new decade. It’s 2020, finally we would have a clear vision of the future we wanted for ourselves like never before. This year was going to be the best.

I don’t know about you, but I don’t really like change. Maybe it’s not even change that I don’t like. I mean, I’m always striving to be a better person and that involves change. What bothers me more than anything is uncertainty and not knowing what is happening.

If you asked me in January what I would be doing this weekend, I would have told you that I would be attending my daughter’s college graduation. At the time, nothing except death or being deathly ill would have kept me away from her special day. I found the perfect dress to wear. Maybe it was a little too dressy, but it was on sale. I should’ve been going in to have my nails done to match the dress and getting my hair done.

But that brings me here to today. I won’t be going anywhere anytime soon. Me, the person who has to have a plan. The person who schedules spontaneity 6 months in advance.

As most of you know, I just went through a 10 day bout of colitis. I went through expensive and uncomfortable tests to get some answers, some certainty, about my health. The morning of the procedure I brought along all of my paperwork from the wellness clinic. The doctor brushed me off with the comment that he does not approve of me seeking help at a wellness clinic and refused to look at the tests that were done.

I thought that the doctor’s bedside manner was horrible, but if he had the answers and could help me I didn’t care. When I called the doctor’s office on Monday expecting answers the nurse said that I had colitis but they have no idea why.

The doctor’s office told me something was wrong with me but they have no idea what. Is this going to happen again? What can I do to prevent this if I don’t even know what caused it? What the hell is going on? I was sick and all you can tell me is that I was sick?? Yesterday I fell into a deep despair. What is wrong with me? I wanted an expert to give me answers so I would know what is happening in my life. I want a plan that I can follow. I want to have a map to see where my life is going.

If I learned anything in 2020, it’s that everything is uncertain. It’s been a big lesson for me to learn. Everything I took for granted as certain has changed. It’s okay to grieve what has been lost. Then it’s time to continue on down the dimly lit path.

It’s time to throw away my security blankets of structure and routine. The only thing I can cling onto is that uncertainty is certain. That is now a big part of my life. I can’t be afraid. I have to think of this as an opportunity for growth. It’s time to strengthen the non-dominant hand I’ve been dealt. Maybe going with the flow won’t be all that bad. I DID say I wanted to be more easy going and laid back. Of course I wasn’t expecting to achieve that goal by having everything literally wiped off my calendar.

I’m being forced to change but maybe I will be a better person because of it. At least that is what I’ve been telling myself.

Gratitude week 18

Once again, this past week has been really rough. I felt very sick for 10 days. I was even up 3 to 4 times a night to run to the bathroom. I got very little rest and my body feels weak. The preliminary test results are showing that I have some form of colitis.

Sadly, the doctor’s office called me on Friday a few minutes before closing. When I called back I got the answering service. I didn’t even receive a call back until 10 on Saturday morning from the nurse. She said the doctor wanted to treat me with a steroid but he wasn’t going to be able to talk to me until Monday morning.

The sun was shining and I felt pretty good yesterday. I probably overdid it with the yard work. I wanted to go for a run today but was so weak and tired I could barely walk. I started to feel pretty down. My body is not doing what I want it to do. How long will it be before my muscles start to atrophy? I take pride in long distance running. I spent the last 10 to 15 years toning my body. My arms have great definition for a woman in her mid-40’s. It makes me sick to think I might have to throw away all the work I put into being athletic.

I started to worry that I was going to become a burden to my family. I like taking care of things, not having others take care of me. I have plans to travel and more races to do.

Then I started to panic today because I realized the doctor intends to treat me with immunosuppressant drugs. I would do ANYTHING to not have to suffer through another episode of the kind of pain I just experienced. However, now is probably not the best time to be on immunosuppressant drugs.

This past week someone from our church died from the coronavirus. He was my husband’s age. I would be willing to go on medication to suppress my immune system to never go through what I went through again. But I am afraid.

Also, what about working?

So, I am going to try to be grateful for 10 things this past week….here goes..

  1.  I should have my health questions answered this week.
  2.  My aunt Jan sent me a get well card in the mail. It feels good to have people thinking and praying for me.
  3.  My husband helped take care of a lot of things while I was sick.
  4.  My daughter was very behind on school work and my husband helped design a schedule to help her get caught up. Plus he helped her with Algebra 2. He is a great teacher and great at math which I appreciate since I am not.
  5.  The year of April finally ended.
  6.  The weather was perfect this weekend which always makes life better. Winter will be back tomorrow and for the extended forecast. Yuck!!
  7.  I felt pretty good yesterday.
  8.  I bought a funny shirt. It says Pink Freud, The Dark Side of Your Mom. Consider it a Mother’s Day gift for myself. I love Pink Floyd and went to college for psychology, so Freud..
  9.  I broke down and ate some macaroni and cheese. It was the first time I ate dairy in 9 months. I figured I couldn’t feel much worse than I was already feeling and I was right.
  10.  With technology, I am still able to do a lot of the same things everyone else is doing. I am not at home by myself missing out. I can check out new shows and movies. I can still see my mom and daughter although I cannot visit them.

Gratitude week 17

The past week has been very rough. I guess I’ve been saying that a lot lately.

I am now on day 6 of being sick. I haven’t slept much because I am up multiple times a night to use the bathroom. I am not well. I’ve had to take all my goals, dreams, and hopes for the future and put them on a shelf. Or maybe I have to give them up forever. I’m starting to grieve that my old life is probably over.

There have been times I’ve curled up in pain in a fetal position on the floor tears cascading from my eyes. I’ve had a fever off and on and I feel it starting to climb back. I don’t know how I am going to make it through the prep tonight for my procedure. I’ve been thinking about that a lot, death. Sometimes it feels so close that everything still left inside me tells me to prepare.

I don’t have much time to talk, nor much energy. So, that being said, here are my ten things I’m grateful for this week.

  1. Soon maybe I’ll finally have the answers for what is wrong with me.
  2.  I reached over 750 followers on my blog. I am thankful for you my readers and friends who are supportive of me telling my story.
  3.  I am thankful for my husband. He is the best man I could ever ask for. Please keep him in your thoughts and prayers because he is really having a hard time with this.
  4.  I am grateful especially for my children, my mom, my brothers, my aunt Jan, and my best friend Cindy. They have been checking in on me so much that I can barely get any rest.
  5.  I am thankful for my pets, especially my cat. He follows me around everywhere.
  6.  I am thankful for the deer that grace my yard. Watching nature keeps my mind off my pain.
  7.  I am thankful for finally getting some weather that makes us think of spring.
  8.  I am grateful I tested negative for COVID-19.
  9.  I’m grateful I’m not missing much because I’ve been stuck inside sick.
  10.  I’m grateful that my procedure is very early tomorrow morning. I don’t have to wait much longer to hopefully get some relief.

I need to take some more Tylenol and eat some chicken broth. Prep starts in less than 2 hours. I will try to update you in the next couple days. Thanks for your thoughts and prayers.

purpose

What is the purpose of struggling?

I’ve felt sick like this many times before. There were times in my childhood where I was in so much pain that I didn’t eat much for several days. I was deemed a picky eater. My parents yelled at me, at times forced me to eat until I threw up, and threatened to take me to the doctor. I really wish they did. Maybe I wouldn’t be in the predicament that I’m in now.

Maybe if I was an only child things would be different. My brother had special needs so mine were ignored. It was selfish of me to take care of myself. I mean, look at my brother.

I can’t blame my parents for everything. I once told a doctor about the things I was experiencing and she told me it was all in my head. Maybe it was all in my head. Maybe it still is. I have that fear. Maybe I will go in for the colonoscopy and they will find nothing wrong with me. But if it is in my head, you better lock me up because I can’t live this way much longer.

At its greatest intensity, the stomach cramps feel like I am in labor. That being said, I didn’t really get a lot of sleep last night. I was in too much pain.

What does this mean for my life going forward? I’m thinking about giving up running. I am not well. My running really took a downhill (or uphill) turn last year. But I did finish a 50k. I achieved everything I wanted to. Oh my gosh, will my life come down to walking and yoga? Shoot me now!

I have to think this physical struggle with my health has some purpose. I have to think my childhood trauma had some purpose too. Why is purpose so meaningful to me? Without it, what is the point?

My husband has been very supportive. I want to thank him for giving me the best years of my life. I know we annoy each other and fight sometimes, but I can always count on him. I guess that is as close as I can get to trusting someone in this life.

I have been struggling because I want to write about what happened last summer with my husband. But I don’t want to hurt him because he is a good person. He did give me the green light, but I would choose him over being transparent with you any day if I felt it’s what I needed to do.

The whole purpose of having a personal blog is sharing my story. The ups and downs and the bumps along the way. Maybe I can help someone else in this journey. Or maybe it just makes me feel better.

My story is the only thing that cannot be taken away from me. Unless I end up with dementia, of course, which I am convinced will be my demise. But until then I am going to keep writing.

 

 

 

inflamed

I’m sick again. This time it is worse and it hasn’t gone away.

It started Wednesday morning. I woke up having to run to the bathroom. I felt nauseous too but didn’t throw up. I was tired and had to lie down to rest in the morning. By the afternoon, I had a horrible stomachache and muscle cramps. Sorry Jillian Michaels but I was cursing your name. The day before I did a new workout video, or should I say tried to. It was so difficult I could barely do it. My whole body ached. I would’ve run outside but we are back to winter in Wisconsin, so yeah.

I also blamed it on the night before. I ate chili and a fake grilled cheese sandwich for supper. I tried to keep my portions small because I am allergic to tomatoes, eggs, and baker’s yeast (bread). Plus a lot of chili beans are a no-no for my SIBO diet. My diet is so limited it is hard to eat with my family. Or maybe it was food poisoning or stomach flu, although I was the only one sick.

By the afternoon, I rated my stomach and body ache pain at a 7. I decided to take my temperature and discovered I had a fever. Everyone was freaking out because of the coronavirus and told me I needed to call the doctor. I decided to wait until the next morning because it was after office hours and maybe I would feel better the next day. Even during the night I was up every hour or two to run to the bathroom. I’m not going to lie, this has been miserable.

I called the doctor’s office and after being screened by the nurse scheduled an appointment with another doctor for later that morning. I struggled to take a shower and get dressed. I wanted to let you know how I felt at my worst but I couldn’t even sit up to do my puzzle because I was in so much pain. I couldn’t think either.

Paul has been wonderful and took me to my appointment but I would not allow him to go in with me. He is over 50 with high blood pressure and I did not want him to risk his health for mine. Outside of the clinic there was a tent set up for COVID testing. There was someone standing outside the door to the clinic in full protective gear with a clipboard who allowed me in when I told her my name. It was like I was famous getting VIP access to a club.

I entered an empty clinic, checked in, and was called back right away. Everyone at the clinic wore scrubs and a mask with a full face visor over it. It was hard at times to understand what they were saying. There were signs on the door that said dirty room or clean room. The room I went in had nothing on the door. I heard people coughing. On the way out I saw several sick and scared looking people.

I had a whole array of tests done. I was even tested for COVID although the doctor did not think I had it. They took a large cotton swab which they swirled back inside of each nostril. It wasn’t as bad as I thought it would be, but I just got my blood drawn and was more anxious about that.

It’s day three now and I’m still sick. I do feel better than I did on day 1 or day 2. Thankfully my COVID test came back negative. But several tests came back showing inflammation. The doctor now thinks I might have colitis or Crohn’s. I have all of the symptoms. So Tuesday I go in for my first colonoscopy.

I know it sounds crazy, but I probably wouldn’t have called the doctor if it wasn’t for the coronavirus. I was worried about getting other people sick. I probably would have dismissed it as the stomach flu or food poisoning like I’ve done before although no one else in my house ever gets sick. I struggled with lifelong stomach/GI issues that I brushed off as normal for me.

It seems worse this time. Maybe the SIBO and parasitic inflammation that the antibiotics killed was masking other problems. I don’t know. But hopefully next week I will get some answers. It’s hard not feeling well and not knowing what is wrong.