Coping

Lost things/prohibited items

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It has been two days since Angel has gone away.

I no longer have anger, that has dissipated into a sadness of sorts..an emptiness..

I decided to make a list of all of the things taken away. Most were directly related to Matt, some indirectly.. I thought that maybe then you would understand why I feel this way.. No one understands.. Maybe my younger brothers.. But these things are too painful to talk about.

The items on this list are things that were taken away, some things forever and some just for a little while.

Things taken away/prohibited items:

  1. Christmas trees
  2. Candles (only allowed on birthday cakes)
  3. Perfume
  4. Hair spray
  5. Nail polish
  6. Anything scented, such as shampoo or lotion.
  7. Tooth paste, for awhile we were only allowed to brush our teeth by dipping our brush into peroxide then baking soda.
  8. House pets
  9. House plants
  10. Cleaning products
  11. Auto exhaust, the cars had to be parked at the bottom of the driveway so the fumes would not come into the house. All clothes items with exhaust fumes had to be removed before entering. All windows needed to be closed if the wind was blowing exhaust fumes towards the house from the road. Following semis was prohibited on the highway.
  12. We got rid of our wood furnace because it was too toxic
  13. Curtains; curtains contain formaldehyde. The curtains were removed and replaced by old blankets.
  14. My dolls, they were taken away for a semester in grade school because I couldn’t focus and got bad grades.
  15. Dairy products, Matt’s food was separated from ours and we were not allowed to eat his. We generally didn’t have snacks, sweets, or foods with artificial colors (anything unhealthy) in the house.
  16. Napkins, they make Matt gag.
  17. Lawn mowers, for a time we had to use a non-gas push mower because of exhaust fumes.
  18. School, we were home schooled for 3 years when Matt’s behavior was too violent to attend school. He had a teacher come to our house.
  19. All childhood friendships.
  20. The ability to relax and feel safe.
  21. Time and attention.
  22. Getting my medical needs met. Matt’s needs were more urgent and important. He required hospital stays, doctor trips to specialists across and out of our home state, which brought on a lot of medical expenses.
  23. Family vacations, technically I never lost this because we never had this.
  24. The use of pesticides of any kind. We were not allowed to wear bug spray. The use of wasp spray was strongly discouraged. The local farmers were told to call us an hour before spraying their fields. After they called, we had an hour to pack our bags and head up north or to grandmas to hide out for a couple of days. If they didn’t call before spraying, we would lock down our house for 2 days or until it rained. Rain purified the air from chemicals.
  25. Going out to eat as a family, I don’t remember this ever happening.
  26. Having both parents attend events because someone had to stay behind and care for Matt.
  27. The freedom to live like a regular teen. I spent my time as a caregiver. I even gave my brother showers.
  28. Permanent markers, glue, stains, and paint.
  29. Bleach, fabric softener, and dryer sheets. I had to scrub my brothers dirty socks in vinegar or lye.
  30. Anything new, new items had to gas out their fumes before being allowed in the house. We also had to run an air purifier and sometimes Matt needed to wear a charcoal mask if there were still toxins in the air.
  31. Newspapers, they had to gas out before coming into the house.
  32. Pipes, my dad used to smoke a pipe in the 70’s every once in awhile. That was no longer allowed.
  33. Teflon coated pots and pans.
  34. Strong emotions, that set Matt off.
  35. The ironing of clothes.
  36. Toys or plastics with toxic scents.
  37. Sometimes we would leave to go somewhere, then have to turn around and come back home because Matt would have a meltdown.
  38. I had to drop out of a play I was in because Matt was in the hospital.
  39. Having my boomboxes destroyed.

Then there were other things…things not easily categorized. Sometimes Matt would run away from home. He would run off into the woods and we couldn’t find him. He would hurt himself and hurt us. We have bled and were bruised. He turned on the water faucets and flooded the house. He kept my brothers up at night and sometimes slept all day. He would have uncontrollable fits of rage.

People called Matt demon possessed..

That is why I hated my life. I wanted to be normal, boring even..

Is there anyone out there who understands?? Anyone at all? I didn’t think so. I feel so all alone.

There are just some demons that can’t be outrun.

I can never look back and consider anything about my childhood normal. Looking back is painful. I avoid telling people about this part of my life..

Why am I telling you?

I want someone to understand my tears.

But more than anything, I would love to erase it all and pretend none of this ever happened.

And so it begins…

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It happened this past weekend. I was hoping with my last child I would have just a little more time..

Angel has been dating her boyfriend for almost 3 years.. Alex has had a girlfriend for the last 4 months…Thankfully, I approve of their choices!

I imagined Arabella staying single and living at home forever….hmmm… Maybe this type of thinking is an irrational coping mechanism?? Why can’t time just stop for a little while??

My friend Cindy was over this past weekend. One of her son’s is two days younger than Arabella. A group of neighborhood kids decided to go for a bike ride. One of the boys admitted to Cindy’s son that he has a crush on Arabella. Or maybe it was more of a ‘stay away I like her’ kind of thing.

Cindy’s son told Arabella that this boy has a crush on her. Arabella confronted this boy about his feelings towards her. The poor guy got so flustered that he steered his bike right into the ditch. He was crashed, crushed, hurt, and full of dirt calling out for his mother.

Arabella only likes him as a friend.

And so it begins…

Summer, don’t leave me too!

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The Canadian geese are flying south. Just like that a light switch was turned off. Summer is ending.

I always have a hard time this time of year. It’s not that I don’t like the changing of the seasons. It’s just that I live for summer. I love the warm weather and sunshine.

Now all of my kids are back in school. I had to say good-bye to my oldest child for the first time when I sent her off to college. It wasn’t just like saying good-bye to a child, it was saying good-bye to a friend. Over the past few years, the active parenting ended and a friendship began. I hope it will be like that with all of my children.

Out of all of the people living on this Earth, my daughter Angel is the most like me. She looks just like me. She has my mannerisms. We have very similar personalities, viewpoints, morals, and taste. We are both firstborns. We relate on all levels. Sometimes I think that she is an unjaded version of me. She is what I could’ve been. People have asked before if she is my clone. It was hard to let go.

My son Alex takes after my side of the family in everything but looks. Because of this, I understand him. Arabella is completely alien to me. We have nothing in common. To be totally honest, this has been a struggle for me. Sometimes we clash instead of click. It just doesn’t seem fair!

The morning after dropping off Angel at college, my husband went away on a week long sailing trip with friends. He will be back home tonight. This has made things more stressful for me at home and at work.

At first, I was fine. It seems like it takes me a few days to process my emotions.

Monday the anxiety and worry hit me hard. It probably didn’t help that I checked my phone before going to bed and noticed that Alex was not at his friend’s house that he was staying overnight at. Apparently they got bored and decided to aimlessly drive around much to my disappointment since I was the one filling up the tank with gas.

I couldn’t sleep at all that night. I waited until Alex got back to his friend’s house on my phone. Then I still couldn’t sleep because I stirred up the demon of my relationship with my dad. I didn’t realize that it upset me as much as it did. Of course, it is probably not wise to stir up painful moments in my life when I am feeling so emotional about my daughter leaving. My anxiety was through the roof and it kept me from sleeping most of the night.

The next morning I felt exhausted and depressed. I had to man the office by myself all day. Work was very busy and I didn’t feel like doing it. When I feel that way, I want to give up everything. I want to quit running. I want to stop blogging. I want to curl up in a ball and totally shut down. I will never do that though, somehow my mind beats out my heart every time. I don’t let myself shut down or even relax.

I will never give up this blog without telling people I am leaving. I am one of the least impulsive people I know. I am cold and calculating. I am schedule and routine. I am all or nothing. I overthink and underfeel. Like it or not, that is how I am. Yet somehow I can still manage to be fun.

Change has always been difficult for me, even if it is for the better. I have accepted that my daughter left home. It has to be a good thing for me because it is good for her.

Now I just have to accept that summer is over. This weekend we are shutting down the cabin for the season. The water will soon be too cold to swim in. By next month, we will be taking the sailboat out of water. The first few flurries will start to fall. My long outdoor runs will have to take place indoors on a treadmill.

Summer, please don’t leave me too!!

But I can’t look at it that way!

I have to be happy that my daughter is starting the future of her dreams. I still have other kids at home to bond with. I am married to a wonderful, adventurous man.

I have to look forward to crisp autumn days. Cool evenings spent in my hot tub gazing at the stars. Bonfires with friends. Photographing the beauty of the trees changing color. Reading cold psychological thrillers wrapped in a warm blanket. And having plenty of time to write…

Pushing buttons

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I have been here over a year and never deleted a post before.

Yesterday was the first time.

I wanted to delete my blog, delete my existence in this sphere with a touch of a button.

How easy would that be?

Sometimes the truth sets you free.

And sometimes it keeps you up at night, gnawing at your insides and eating away at your soul.

Again, I feel trapped. I long to go away and never come back. Leave the stress behind. Start a new chapter in the last half of my book.

Maybe it is starting to finally sink in that my daughter left home.

I just can’t help feeling terribly alone.

Maybe I need a vacation??

 

Our last supper

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Paul and I decided to take his mother Martha out to eat for one last Mother’s Day celebration where we can all be together.

A quick recap…Martha has stage 4 lung cancer that has already spread to her brain. This will most likely be her last Mother’s Day. Plus we were able to go out with all of our kids. This will also be the last time the kids are all living at home since Angel will be in college next year several hours away. So this was the big hurrah!

We took the family out to a Japanese steak house for hibachi. Martha doesn’t get to enjoy fine dining often and was very happy for the opportunity to go out. She was very sick earlier in the day from her chemo, so we weren’t even sure the evening out would happen. We thought about just cooking a nice meal at our house. But since this is the last time, we decided to go to a small quiet restaurant and make it memorable.

We had a wonderful hibachi chef. Arabella even tried some raw tuna sushi to get ready for her trip to Japan this fall. She is very brave. Martha was wearing a baseball cap to cover her bald head. Paul made sure that she received a special chef hat that they reserve for birthday parties. I took a lot of pictures.

When we received the bill, we were told that Martha’s supper was paid for. Someone at the table next to ours covered her bill.

Paul went over to the table and thanked the man. They embraced. Later the man followed Paul into the parking lot. He told Paul that his mother passed away a few months ago from cancer. He wanted Paul to pass on this generosity someday to another person going through the same thing.

Once again, the two grown men embraced. Total strangers sharing a moment of sorrow over their dead and dying mothers on Mother’s Day weekend.

Together they wept in each others arms.

I have never seen two big masculine men sobbing together in a parking lot before. Complete strangers for a brief moment sharing the same pain.

It was very moving.

 

A little down

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I think I am depressed. 

One of the signs of depression is losing interest in hobbies. What if you just can’t do the things you enjoy anymore?? 

If I spend too much time at work, type a lot (write), shuffle cards, or work jigsaw puzzles my carpal tunnel acts up. My hands ache. I need to wear a brace. If I exercise with weights, sometimes I can’t grasp them. Several times a week my hands just let go of items and I drop them. I’ve dropped my phone several times. Lately, I’ve dropped containers of foundation or eye shadow shattering them into powder so I have to throw them out. I have problems opening lids on jars. 

Sometimes my acid reflux gives me a hoarse voice and sore throat which makes it very difficult for me to sing, another hobby of mine.

I have enjoyed running and competing in races, but now my knee hurts so much that I might have to cut back or stop altogether. 

It seems like everything that I really enjoy doing to deal with my stress is being taken away from me. 

I feel depressed that my daughter will be graduating from high school in a few days. She is a lot like me. We have so much in common and have become close friends. Now she will be moving several hours away and starting a new life without me. I am happy for her, just sad for me.

My relationship with my other two kids sucks. My son is currently failing all of his core classes. He is angry at us or depressed when we give him consequences. The hard part is that he has a brilliant mind, but is too lazy and unorganized to put any effort into his studies. I have no control over this. My youngest daughter and I have nothing in common at all. She takes pride in annoying me and arguing with everything that I say.

Work is stressful. Running our own business, having employees, and demanding customers takes a lot of energy.

My mother-in-law has terminal lung cancer and at best has a few months to live. 

I am starting to see my own parents age in new ways that worry me.

Every organization that we belong to thinks that they are the only organization that we belong to. Everybody wants our time, our money, a life blood commitment. 

My husband and I have both been irritable and stressed these last couple of months. I honestly don’t know how much more of this we can take. Instead of people helping us through these difficult times, they drain us of whatever we have left.

So, yeah, I guess I am feeling a little down. 

  

Depression, my old friend

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In response to my neighbor’s suicide…

I understand your struggle…

When I grew up, my childhood was very difficult. It was so difficult that the big people in my life could barely cope with the circumstances that they had to deal with. In early childhood I developed two friendships to help me cope, depression and anxiety.

Depression was a close friend of the family. My dad made friends with depression too. Sometimes when the house was really quiet, I was afraid of what he might do. My brother Mark found friendship with depression too. When he was a teen, my mom found several nooses in the tree. I knew the temptation. I knew the struggle.

In late childhood, I tried to break my friendship with depression but she fell in love with me.

When I became an adult, I learned how to live with my friend. I kept myself very busy so I wouldn’t have time for my friend to visit. I worked harder and harder. When my friend noticed I was free, she would visit me.

Have you ever been suicidal before? Do you know what it is like to be that depressed? I do. It is very frightening. Thoughts and images popping into my head of my own demise over and over again. Me in the bathtub with slashed wrists. Driving very fast into a tree. A loaded gun. An empty bottle of pills. Horrible, intrusive thoughts that invade my mind unwanted. The more I try to push my friend away, the more she clings.

Over time I learned how to cope with having a difficult friend. I am a workaholic. Keeping busy keeps her away. I have a strong faith that exorcises my demons. I try to outrun my demons by running 100 miles a month. I take massive doses of vitamin D over the winter months. I try to have something to look forward to. I find the support of family and close friends who have survived difficult times.

What can others do to help that haven’t experienced it? Listen without condemnation. Allow venting, even if it means listening to things you don’t want to hear. Don’t tell them to get over it even if it has been several years since they experienced the initial pain. Sometimes being a good friend is encouraging others to seek professional help.

Does that mean that I no longer get depressed? No. Sometimes when I go through hard times, my friend comes back to help me. A few months ago when I was having difficulties with my son, she visited me for awhile. I spent a long time staring off into space. This is very hard to explain, but when I stared off into space I felt peaceful. When you sink down low enough, sometimes you feel so empty that even the pain is gone. It is a very alluring trap. I had to pull myself out of that dark void. I feel sorry for those that struggle to break free.

Over the years, I learned a few things about my friend. It is okay to feel sad. Sometimes the negative feelings in our life motivate change. During difficult times and emotions, I tell myself that the feelings will pass. I also tell myself over and over that I have felt this way before and survived it. I know how to cope, how to get through.

I am trying hard to face all of the feelings that were locked away for so many years. Writing has been very therapeutic. Maybe if I write honestly about my experiences and struggles, then others won’t feel so all alone. I am okay. You will be okay too. Find a way to cope. Be understanding toward others that struggle. Maybe it will prevent one more unnecessary death.

Hard to tame

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Once, a very long time ago, I lived in wild and rugged terrain. I had an important job. I kept vigilance. I watched all day and sometimes at night too. Every little sound would wake me and cause me to take guard. I noticed every little detail in my environment for any change that could signify a problem. I noticed patterns.

I was a protector. My vigilance never stopped bad things from happening, but it may have forewarned others of danger or prevented them from being hurt. I wasn’t allowed the distraction of feelings, sensitivity, caring, or warmth to distract me from my post. A lot of other people had that job, but not me.

Then for a short period of time, I was removed from my post. I found myself alone. I thought that maybe I could finally be like everyone else. I wanted to be trusting like everyone else. But I couldn’t.

Then I found myself in an entirely different terrain. I was like a wild prairie dog trapped within the safe confinement of a zoo. I resumed my old post although I was no longer needed. No hawks circled. Few dangers threatened nearby day or night. But I found myself vigilant at my post. I was told that I wasn’t needed anymore, that I should take it easy or relax.

But any attempt to relax my guard caused me more anxiety. So I ran marathons around the inside edges of the wall. I paced back and forth so often that my path was beaten down. Even though I was no longer standing guard, I still felt like I was watching.

Then something else happened. I no longer wanted to be like everyone else. I found that being vigilant had purpose and meaning. My distrust protected me and those I care about.

Even in times of peace, a few people are needed to keep guard. Someone still needs to have a discerning eye to protect others from danger. I am that person.

Some animals are hard to tame.

Autism’s sibling, journal 2, part 4

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I was my mother’s best friend. Before I was a teenager, I knew about every problem in the house. I helped solve them. I heard about financial concerns, marital problems, parenting issues, and autism galore. My advice was sought. I fixed things. After my dad checked out emotionally, it was like I became the other parent. I was never allowed to be the child. My mom had a hard time making and keeping friends because Matt’s violent behavior scared them away. He scared away many of my friends too, so I really couldn’t blame her.

So I deliberately planned that when I became a parent, I would allow my children to be children. They were never going to hear about my adult problems or issues. In fact, I haven’t told my children much about my childhood at all. I only told my oldest daughter about this blog since she is almost an adult and is old enough to know. Maybe someday when I am ready and they are old enough, my other children will be told.

My mom had a really hard time without the support of my dad and a few close friends. She often times would cry while listening to Christian music as she was driving. Sometimes she would do this while I had friends in the car. It embarrassed me to the point that I really disliked Christian music or relaxing piano music that would cause an eruption of tears from my mother.

Once my mother took my brothers and I to a Christian concert when we were little. She cried almost the whole time. We were bored and screwed around to the point that she had to leave the concert early. She was so angry and upset with us that she cried most of the way home. I wish she had some friends that she could have enjoyed the night away with.

Now I like some music that I wouldn’t want my kids to listen too. Music that is angry, dark, or downright nasty. Music that modern day teens might like and not an old lady like me. Sometimes my kids will test me. Bet you don’t know that song. Yes, it is Eminem singing ‘Till I Collapse (good running song by the way). Wow, I am such a cool mom. With the bass cranking out of my window, you would think that my daughter would be happy with me dropping her off right outside of the middle school. But, alas, I am an embarrassment. Sometimes I even embarrass myself.

Grace uncommon, part 12

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I remember it being a very difficult weekend. It probably would have been in the top ten worst weekends of my adult life. But who wants to keep track of such things.

I don’t think that I could adequately describe how it feels to take care of a loved one that is suffering and dying from dementia. It was different from being a caregiver for my autistic brother, Matt. Sure, they both had good days and bad days. With Grace it was a gradual decline. Most days I didn’t recognize her anymore than she recognized me. I grieved for her while she will still living because she was already gone.

I was exhausted to the point of where I thought I could no longer hold on to the loose strings of my sanity. I hadn’t slept. Dealing with sleep deprivation was never a strong suit of mine. My patience was running thin. I was worn down.

It was one of those weekends that Aunt Grace was up every hour during the night. I “slept” on the couch right outside of her bedroom. Just when I was almost back to sleep, she would be up again. The kids would be up in a few hours and I hadn’t slept yet. I was having a hard time.

As I was walking with Grace to the bathroom, she looked right at me and asked me my name. I replied, “My name is Alissa.” Aunt Grace looked at me and responded, “I once knew a girl by the name of Alissa. She was a very kind and caring girl. I think that if you met her, you would really like her.” She was talking about me without knowing who I was.

I think at that very moment, God was looking down upon me with mercy. He gave me a glimmer of light to help guide me down a dark road. It was such a meaningful blessing to me that it motivated me to finish the race strong. It was exactly what I needed to get through.

I will never forget that moment.