Gratitude week 31

  1. I’m back after a short break! I’m grateful I didn’t fall off the side of the planet too. But isn’t the Earth round? Who knows anymore…
  2. Summer! I can’t get enough of it. Seriously, why do I still live in the frozen tundra??!?
  3. I’m grateful to have a wonderful spouse to enjoy 23 years of marriage with.
  4. I just started the census job yesterday. It feels good to be out working again. I’m trying to put in 40 hours a week. I’m hoping I can still find some extra time in the day to blog.
  5. I am grateful most of the people I’ve talked to have been nice for the census job. I have a new appreciation of people who go door to door unannounced, even more so now during the pandemic.
  6. I’m grateful that my husband and I were able to get away for a couple days of sailing for our anniversary.
  7. I’m grateful that my loved one ended up being released from the psych ward the end of last week. This person has some previously undiagnosed medical issues that may have been contributing to the depression they were experiencing. Not to mention this whole time period in general has been stressful. I am hopeful they are starting on their healing journey.
  8. It’s my moms birthday this week. I’m hoping I can talk her into a visit and maybe sailing.
  9. My daughter is visiting this weekend so I am looking forward to seeing her and can’t wait until she moves back home.
  10. It’s been over a year and a half since I worked so I am grateful to be contributing to the family income. Plus I have been feeling nervous/anxious/excited about working again even temporarily. A little excitement at my age never hurt anyone.

Gratitude week 26

  1. After doing an iPhone update my phone started glitching out. I thought I was going to have to break the bank and buy a new phone. My daughter suggested turning the phone off and on again. I’m grateful it worked and I don’t have to get a new phone for awhile.
  2. Summer!!
  3. My mom ended up in the hospital this past week. I’m grateful that routine bloodwork for her physical caught a problem before it became a bigger problem. Because of her health concerns, I took my brother back to his group home for the first time since the pandemic. I’m grateful because that means a little less stress for her.
  4. My daughter didn’t come home for Father’s Day weekend because she was concerned she may have been exposed to coronavirus. Thankfully the COVID test came back negative and she was able to come home this past weekend.
  5. We took a ride around town in my daughter’s new Jeep with the top and doors off. It was a lot of fun. I’m grateful that I can still have fun even during hard times.
  6. We had a bon voyage party for our foreign exchange student Estelle who will be going back home the end of this week. All she wanted to do was light off fireworks for her birthday but we couldn’t because of the weird tropical storm that hit Wisconsin. We were supposed to get severe weather on the night of her going away party but just got a few sprinkles so we were able to light off fireworks.
  7. I’m grateful that I was able to spend time with all my kids this weekend laughing and talking.
  8. I’m grateful we were able to take a young lady with cancer sailing. She had two wishes, one was to go horseback riding and the other was to sail. It was a perfect night to make her wish come true. She was so happy that it felt nice to do something to make someone else happy.
  9. I’m grateful for a long conversation with my brother Luke. It really is nice to have someone to relate to.
  10. I’m grateful that our new business is doing well.

Caring for Matt

It’s been at least a decade since I took care of my autistic brother Matt in my house. A few things precipitated this change. Initially I stopped providing weekend respite care for my parents after Matt was violent towards my daughter.

There may have been a few times I took care of Matt and my mom took my kids although it wasn’t much of a break. It was difficult raising 3 little kids without having much for family support. My mom had to take care of Matt. My brothers didn’t live close. My mother-in-law could barely handle raising the one child she did have, my husband. I found myself bitter towards parents that could dump their kids off and get away every now and then.

But the biggest change for me as a care provider for Matt was when my parents placed him in a group home. I was no longer needed to help out, until now that is. Matt’s group home was closed since the virus started. It is now open but if he goes back this month, he is not allowed to leave.

Originally my mom wanted me to stop by the house every night to make sure Matt was okay under my dad’s care. I told her it would be easier for me to have him stay with us for almost a week which is longer than he has ever stayed with me before.

I told my kids that Matt was coming to stay here for awhile but they wouldn’t have to adjust their lives around him. If it didn’t work out, Matt could always go home and I could check in on him everyday. One of my kids called me selfish for saying that our world didn’t revolve around Matt.

As a child my whole life revolved around Matt and if I had to tiptoe around him in my own house it wasn’t going to work. No other family member is willing to step up and offer to take him in for almost a week. That should count for something.

The whole experience went better than I expected. Although Matt is no longer violent, caring for him is not easy. He is on a special diet. I needed to make separate meals for him. At certain times of the day his medicine needs to be ground up and put into applesauce. He doesn’t have table manners. He farts and belches at the table. Sometimes he gags on his food especially if you bring a napkin near him.

He has poor hygiene. He is a messy eater and soils his clothes. He often wears his clothes inside out and/or backwards. He doesn’t change his clothes often. He refused to shower which he would need assistance doing. He wouldn’t ask for help after using the bathroom and made a mess on the floor. I had to floss his teeth and big clumps of food came out of his mouth which made me feel nauseous. He made a total mess out of the bathroom he used. In all honesty, it did trigger feelings of hopelessness in me.

Not only are my parents hoarders, but they rarely cleaned the house. Cleaning up after Matt would be like fixing up a house before you knew a tornado was going to hit. I didn’t even feel completely relieved that everything was clean after I cleaned once he left. I can’t always clean up messy feelings inside by cleaning the filth in my house.

I felt guilty when I wasn’t spending every minute taking care of him. Most of the time he would sit on the couch and stare off into space when I wasn’t interacting with him. I felt the ingrained need to please him because his life is so sad.

I found his favorite movies and put them on for him to watch. We went on walks together. I talked to him about the shared good memories from childhood. I talked about places and loved ones that long since passed. I talked to him about the things only a sibling would know. All these things helped ease his separation anxiety from my mom. I think things went really well, as good as I could have hoped for.

As a sibling, I worry a lot about what life will be like for Matt when my mom is no longer here. My parents are getting old. It is comforting to know that maybe he will adjust with my help. Matt will probably never be easy to care for but I think he would do well with me. I was impressed with how well he adapted to his new environment. It felt good to be able to help my mom out. In some ways it was nostalgic and strangely comforting for me as well.

 

Gratitude week 23

  1. I am finally feeling like I am making progress on my self-improvement project.
  2. Summer weather!!
  3. I was able to get out on the sailboat for the first time this season.
  4. Things went better than I expected taking care of my autistic brother Matt. He adapted to our family well. More on this later.
  5. Taking care of my brother allowed my mom to get away with her sisters for a few days. It felt good to be able to give her a break. She decided she didn’t want to let fear control her life.
  6. I’m grateful our best friends had a really good experience with the foreign exchange student our daughter talked them into hosting. It was sad to say farewell to him over the weekend, but I’m grateful for the experience they had and we have had with our foreign exchange students. They are all awesome which says a lot since I’ve heard quite a few horror stories.
  7. I’m grateful that Paul’s new business is doing better than he thought it would.
  8. I’m grateful that for the first time I had a good experience singing in church. It has been difficult at times singing about the love I feel or the trust I have in God when I am struggling with that. Not only that, but I was able to sing relatively anxiety free. There were times that family issues made me feel panic or the thought of having to run to the bathroom in the middle of the service was terrifying.
  9. I’m grateful to have a clean house today.
  10. I’m grateful for the times I feel like everything is normal. That’s saying a lot because the last few months have been far from normal in so many ways.

Gratitude week 22

  1. It felt good to go in for a haircut this past week. Funny story, when I got to my appointment I had a fever from sitting outside in my hot car. I was a little afraid she would turn me away. By the end of the appointment, I looked great and my temp was below normal.
  2. We finished painting the shed. I wasn’t sure it was going to happen at first because it seemed like a wild animal was living inside. Every time I got close it started clawing at the walls. But a few days later it was gone. Estelle, Arabella, and I started painting together. Then Estelle and Arabella started fighting. Estelle will be leaving soon. I will miss her a lot because she became like a daughter to me, but I will not miss the fighting. The shed will be a visual reminder that everything happens in its season.
  3. The month of May is over. I’m saddened by the state of this country and have to hope things will get better. Maybe this month…
  4. We were able to go back to church for the first time since the pandemic this past Sunday.
  5. The books I ordered came in the mail. I paged through Colitis for Dummies and learned more than what my doctor told me already. Apparently I am the 10-15% of the colitis population that has an undetermined cause. It could be ulcerative colitis or Crohn’s, but they really don’t know. I wish my doctor would’ve explained that to me.
  6. This past week I celebrated my 5th blogging anniversary. I’m still here!
  7. Today is the 2nd anniversary of moving into our house. I am thankful to be living in a house that I don’t mind being quarantined in.
  8. I am grateful to have a husband that loves to cook and is good at it.
  9. I’m grateful that my mouse issue was solved with replacing the batteries.
  10. I am grateful to be able to do a little planning and finally put some new things on my calendar after everything else has been crossed out. The funny thing as I was looking ahead at my wall calendar I put the wording on December’s photo as best year ever. Note to self: never put the words best year ever on a wall calendar in December…maybe in January.

Gratitude week 21

  1.  Just like that it went from winter to summer in Wisconsin. My favorite season is finally here!! This week we finally got green leaves on our trees. We took the cover off our pool.
  2.  I trimmed down the list of people I’m following. I no longer follow people simply because they follow me like I used to. I’m following blogs I am interested in. The whole process was very glitchy so it is possible I may have accidentally unfollowed someone. I also axed some people that I genuinely liked because they haven’t blogged in several months or years. It felt good like I was cleaning. A big shout out to long time bloggers. I am grateful that you stuck it out.
  3.  Coronavirus be damned, I hugged and cried with a complete stranger. As I mentioned yesterday, over the weekend a historical building once owned by my family burned down. I cried with the new owner who felt horrible because their intent was to restore the building and preserve its history. Also, because of it, I was able to see and hug my mom which with her terror over the virus I questioned if it would happen again anytime soon. I am grateful that we don’t have to deal with the devastation of a fire. The destruction and loss was overwhelming. I can’t imagine what they will have to go through. I am also grateful that no one was injured or died as a result of the fire.
  4.  Paul got his first customer in his new business venture.
  5.  I am slowly starting to feel a little better. By no means close to 100%, but if I had to live this way the rest of my life I could.
  6.  On this Memorial Day, I am thankful for our wonderful veterans who sacrificed all.
  7.  I am grateful for the ability to survive traumatic experiences.
  8.  I am thankful for Paul. Even though things have been difficult lately, I know he has my back and I his.
  9.  Taking the winter quilt off the bed, turning off the heat, and opening the windows.
  10.  Estelle and I bought some orangish brown paint for the shed in the backyard. It is nice to have a project we can do together and something to remember her by once she goes home when I look at it.

What is love?

By the end of last year, my life started to crumble apart. I was dealing with some serious issues with my dad. I reached out to God. Please God, if you are there, show me that you love me. Trust hasn’t always been my strong suit. But what I was asking for didn’t seem like much.

In February, someone I am very close to attempted suicide. Do you know the pain of feeling that one morning you might wake up and your loved one is no longer there? It’s pure hell. I stopped sleeping and battled insomnia for over a month with nightmares. Maybe if I was always vigilant, maybe if I didn’t sleep, than nothing bad would happen come morning.

In March, someone I knew decided to quit battling kidney disease. He died and we weren’t allowed to go to his funeral because this new virus was sweeping the nation. Later that month, we were planning on driving down to Florida to show our 2 foreign exchange students our country. The week we were leaving Disney World closed and we had to cancel our trip.

It was not the only trip that was cancelled. My mom, daughter Arabella, and I were planning on going on a school related music trip to Europe this summer. The company cancelled the trip and kept $1900 per person to line their pockets. The money they kept for all three of us was like one person went on the trip that didn’t.

We decided that our daughter Arabella could no longer be a foreign exchange student next year not only from coronavirus. When we sold our company, we took some of the profit as private equity stock in their business. We were supposed to get enough money to live on for the next couple of years the first quarter of 2020. We were going to use this to jump start a new business. It never happened and now we don’t know if and when it will happen.

Our financial security is gone. With the virus and the economy, it is a struggle to start a new business.

The schools shut down. Prom was cancelled. The track season that just started was cancelled. The musical postponed. My college daughter’s recital and later graduation was cancelled. The gym closed. I struggled to get a good workout because winter held on to the middle of May.

In April, one of our foreign exchange students decided to go home. It was during that time that I started taking an antibiotic prescribed by the wellness clinic which says a lot since they mainly treat with herbs and supplements. Ten days after the last dose, my body crashed. I was sick running to the bathroom 20 to 30 times a day, day and night for 10 days. I thought I was going to die. I pleaded with God to let me die. After being poked and prodded by several doctors and a colonoscopy later, I was diagnosed with colitis and sent on my way.

After the flare up, I was left with a hollow shell of a body. I am weak. I had to give up running. I am still sick. I can’t eat. I watch as my family members eat my favorite foods. In the last week alone I lost almost 10 pounds.

Meanwhile my daughter Arabella is packing back on all of the weight she worked so hard to lose. She went from an honor student pre-coronavirus to barely passing. I’m not sure she is going to pass all of her classes. I can’t blame her for feeling depressed since everything she was looking forward to is now gone.

Then I heard the news that the family business my great-grandparents built over 100 years ago burned to the ground. Although no longer owned by my family, a lot of my good childhood memories are tied to the building and my family that worked in it who are also gone. It was painful to see something they lovingly built destroyed.

There are things that happened this past year that I can’t even talk about yet. Somethings I will probably never share. It’s not even June yet. I’m not even sure if there is a God anymore. But if there is, right now I feel pretty certain that he doesn’t give two hoots about me. Or is God just taking the things I have away to show me what I already have been given?

What is love? Is it giving or taking away? Or is a mixture of both necessary for growth like sunshine and rain?

Okay, okay enough complaining for today. Tomorrow gratitude…

Gratitude week 20

I’ve been struggling a lot lately, so at this point having a weekly gratitude list is probably more important. I have to remind myself of the good things that are happening in my life.

The wellness nurse put me on a liquid diet over the weekend to try to calm my gut. I lost 7 lbs over the weekend. I haven’t been feeling well and I’ve been weak and tired to boot. It takes the energy of a 5k just for me to put the clothes from the washer into the dryer. Sometimes I have to take a rest after doing nothing.

This past weekend I packed up all of my running gear and put it in another room. It’s a painful reminder of what I cannot do. I haven’t cancelled the 50k I was planning on doing with my cousin late summer. Maybe, a miracle…

It’s been hard because I’ve always been a go go go person, type A all the way. I’ve really been trying to hide from the world how sick I am. It’s been pretty easy to do with this virus. I want people to remember me as strong and healthy.  I feel so discouraged because what I once was no longer is.

To make matters worse, the weather hasn’t been cooperating here in Wisconsin. We had snow flurries on Mother’s Day and record low temps this past week. Since yesterday it has been very cold with temps struggling to reach 50 degrees. It’s also been very windy and by the end of the day we are supposed to have a total of 3 inches of rainfall from the last couple days of rain. Everything is flooded. The weather guy keeps saying every week since the beginning of April that the following week will be nice but it never is. I really hope that the weather makes my gratitude list next week.

Here is my list for this week:

  1.  My daughter Angel made a surprise visit home this past weekend. She hasn’t been home in over two months. It was very comforting to have her around when I wasn’t feeling well.
  2.  My baby Arabella turned 17 this past weekend. She ended up having a nicer day than she thought she would.
  3.  Since Angel got a nice job, she decided to lease a vehicle and gave us back our old car for Arabella. Although the car is older than she is, Arabella now has a car. It was nice to see her all excited about it and take the time to vacuum and care for it. Now Arabella doesn’t have to borrow my car for school or work. I will not have to drop her off or pick her up anymore which will be less stress on me.
  4.  Today I can eat something besides bone broth. Yeah!
  5.  I talked to Paul’s friend who has colitis and got a lot of advice from him. It does feel good to know I am not alone in this despite the fact I wouldn’t wish this on anyone.
  6.  I had good appointments with the wellness nurse, counselor, and mentor this past week. I am making progress on my healing although at times it doesn’t feel like it.
  7.  Estelle found her lost Nintendo Switch. I was very worried once it went missing that it was stolen.
  8.  I got my new t-shirt in the mail.
  9.  Paul put our sailboat in the water last week. With all of the wind and rain it hasn’t been sunk, damaged, destroyed, or cast away yet.
  10.  My aunt tested negative for Covid. Yeah, it’s only pneumonia! Seriously though, my uncle has lung issues and they were around other older family members with health issues. So it is a good thing. I was worried that the coronavirus might wipe out several of my family members.

Losing myself

It’s funny but one of the things I miss most is not wearing lip gloss. Shiny sparkly lips covered by a mask is not possible anymore. It’s messy and it smears.

Life is like that sometimes, messy.

I don’t even want to leave the house anymore. The last time you saw me I was beautiful and strong. Since then I’ve let my hair go gray. My strength left behind me with my last run at the gym before its doors closed along with my youthful blonde locks.

I’m ashamed of myself. I’ve tried to put myself back out there but I’ve been much too weak to run. Perhaps it’s over. I’ve had to let myself go. Instead of outrunning I’ve been overrun.

Do you know how much work it takes to run a 50k? Or maybe a marathon? I used to be a great runner. But now I can barely walk a couple miles without feeling winded. How will I get it back? Everything I built gone in one swift blow to my health. I just can’t seem to do it anymore. Maybe my toned athletic body will turn into a blob of sludge.

I will never be what I was.

I’m mourning the loss of me. Aren’t I too old to have to find myself again?

Or is that just a part of life? Do we ever realize ahead of time when things are ending or even beginning?

Is this the end? I don’t know anymore.

If I had known it was going to be over, I would’ve enjoyed it more. I would’ve held on longer before it slipped through my hands.

But isn’t that what we always tell ourselves when we realize we just said our last good-bye? The guilt of not making the most out of our last time never seems to leave. I would’ve tried harder.

I have to let it go if it is truly over…but right now it hurts to even think it might be.

 

Gratitude week 19

  1.  It’s hard to believe that our foreign exchange student Clara has been gone over a month already. This past week we were able to have a conversation over Instagram. It was so nice to see her again.
  2.  My daughter graduated from college with a Bachelor’s degree over the weekend. I am grateful she was able to get a job in her degree field. I am happy she is doing great on her own.
  3.  I’m thankful for technology to be able to watch our daughter’s graduation. The graduation was held on zoom. Apparently family members were supposed to be watching it on live stream. We weren’t. When all of the graduates were on the screen in cap and gown moving their tassels, Paul and I appeared on the screen taking pictures of our daughter with our cell phones. Angel was smiling so widely, I thought she was so happy and proud. But she was really laughing at us for bombing her graduation. I was mortified about it when I found out, but she said it made her day since we couldn’t be together for it. Thankfully I wasn’t watching in my pajamas.
  4.  I was feeling bummed out on Mother’s Day. Not only was it cold and snowing (yes snowing!!!!) but I wasn’t able to have my mom over to celebrate this year. My daughter Angel was also not home. My husband Paul went out of his way to make it a really nice day for me.
  5.  Angel had flowers delivered to me for Mother’s Day. Plus the church dropped off a flower for me too. It was cool to go outside and see flowers delivered to me unexpectedly.
  6.  My kids remembered Mother’s Day and I was able to spend several hours talking to each of my kids over the last couple days. I feel like we are getting along really well at this time. I am grateful for peace within my family. That is very important to me.
  7.  Since I was not able to see my mom for Mother’s Day, I bought her flowers, a card, and a big bag of popcorn. Early that morning, I snuck over to her house and left her gifts outside her front door to surprise her. It was an adventure to try to get everything to her without being caught. It made her very happy. She wasn’t expecting anything and said she was going to decorate her house with all of her previous Mother’s Day cards. She wasn’t forgotten.
  8.  I have a great counselor. She wants to follow my blog. I think I will let her. I hesitate telling people about my blog. I’ve had friends want to follow me before but never told them how to. It is very difficult to put myself out there and be personal especially with people I know. I think she truly cares and wants to help me. I’m grateful to be able to trust a few good people in my life. I am grateful for healing however long it might take. I’m thankful to have a place to share my story.
  9.  I am meeting with my wellness nurse tomorrow and hopefully she will have some answers for me about my health. I’m still not feeling the greatest and hopefully she will be able to give me some insight on what to do next.
  10.  We had more deer in our yard this past week really close to our house. I found out that deer eat weeds. They ate some of the dandelions in our yard and started munching on my weed pile. Yeah! I have some help weeding this year.