Done, done, and almost done

I am so relived that all of the difficult things over my head this month are now done.

I finished my first 50k. I wasn’t sure I could do it. Being anemic and having a rough summer health wise made me really question my ability to get it done.

Today I sent in my video to the local autism chapter about what my childhood was like being a sibling of someone who was violently autistic. I also gave tips to parents on how to support their non-autistic children. I created a new Facebook account and a support page for siblings.

Making the video was very difficult, not just emotionally either. Somewhere in my mind I expected that I would look like someone on the news. I would be smooth, polished, and look like I was 25. The joys of being a perfectionist!

I found that I couldn’t make the video when other people were home. My husband walked in the room while I was recording and I had to start over. So I decided to tell everyone when I was recording to not walk into the room. But I could still hear the bass from my son’s music. The beat of the music banged in my head distracting me. I was paranoid that everyone could hear it.

Then I waited for the small window of time where I was completely alone in the house. I was still hoping that the dog wouldn’t bark. I created 3 fifteen to twenty minute videos on my phone. After I was finished, I watched the videos. They were okay. I was very critical of myself. Man, do I look old and tired. Look at those big black rings under my eyes. It was hard talking for that long in front of a camera without a script. Plus I was never one to like hearing recordings of myself singing or speaking.

Then I had problems sending the videos to my contact person because the videos were so large. It took me 6 days to figure that one out after a day and a half of actually making the videos. I wanted to wear the same shirt, hair style, and makeup to look like the whole thing was effortless. But trust me when I say it was not. I deleted more recordings than I kept.

Right before sending them out, I had a moment of sheer panic. It’s that awful feeling that you get before doing something risky, scary, but exhilarating. Would the videos be good enough? Would my best efforts suck? What would my family think? I feared success. I feared failure. My thoughts fluctuated between what I created sucked to everyone is going to know everything I never wanted anyone to know about me. I wanted to delete all of the hard work I put into this.

It is finished now. I sent them. Whatever happens, happens.

Next week I will go back to writing my book. I finished my research. I read about 40 journals written my myself, my mom, and the schools my brother went to. I read countless letters, notes, and articles about my brother. I even went back and reread my blog searching for clues. It’s done. I have everything I need to finish the book.

I am done, done, and almost done. If I heal and help other people in the process, it is worth it!

Being weeded

The end of the week was just as strange as the beginning of the week. I don’t think I want anymore signs.

I’ve been struggling this week searching for purpose and meaning. I’ve been depressed and clinging dearly to life by a small cobweb string. There have been fights and arguments. There was one where I pried off my wedding ring just to chuck it at my husband. Maybe we should separate. Maybe we should divorce.

Most of our friends have already been divorced. Some live with another and never remarry. Some are on their second or third marriages. They seem so happy. Sometimes it seems so much easier to throw everything you have away and start all over again.

This week we will be married 22 years and lately it has been more difficult than it has been before. We let our children become the center of our lives and have to learn to live with each other again. We don’t know what we are doing. We had a newborn on our first anniversary.

This week our baby got her driver’s license, first try. I honestly didn’t think she would pass. While she was taking the test, I was already thinking about when she could retake it.

My husband got his hours cut at the business we sold. He is only going to be paid for 12 hours a week. That has been very stressful. We should be okay with the money we saved up. Tomorrow morning, however, Paul is planning on signing papers to become a franchise owner of a new business. He wants us to work together again. Most of the arguments were about me not working. Although I am almost done with my book, I had to set it down for awhile because I promised myself if I got really depressed that I would set it aside.

We decided to keep working on our marriage and to go after our dreams. If it doesn’t work out we could always do something else. We have to trust that things will fall into place.

Paul and I had a good day together yesterday, but things gradually fell apart. Arabella had a friend over, went to drive her home, and had the windows fog up but didn’t know how to defrost the windshield. I kept my ringer on just in case she needed more help. Most nights I turn my ringer off before I go to bed. I’m a light sleeper and figure my adult children can take care of themselves.

I was tired, but left my phone on and stayed up late. I received a call from Alex saying that his car broke down and needed towing. We just had it at the garage the day before, but they said what he needed fixing is very expensive. The body of the car dropped to the ground and he can’t drive it unless it is fixed. He was distraught that he now has two cars that don’t run.

He asked what the meaning of life was if it only brought suffering and pain to himself and the people he cares about. I told him he has a purpose and his job in life is to find that purpose. Don’t listen to the thoughts in your head that tell you that you are worthless. Don’t be discouraged, yet at times I am.

Now we are waiting to see if the car is worth fixing or if it is beyond repair. We got home late last night, around 1 AM. We were ready for bed when my phone rang again. My daughter Angel was calling. Her friends took her out for her 21st birthday. She was rather intoxicated and called to tell me she loved me. I talked to her for awhile, but she wasn’t making much sense. At the end of the call, her boyfriend Dan came on the phone and assured me not to worry that he would get my daughter back home safe.

I knew she was going out. I did worry especially since I wasn’t sure if Dan was going because he had a funeral to attend on the other side of the state earlier in the day. His uncle died in a freak accident trying to clean up after the storm that hit.

As I was ready to finally go to bed around 1:30, my mom texted and said she got safely to her vacation destination out of the country. She wanted me to call my dad because he doesn’t text and it was expensive to call. I called my dad today. At the end of the conversation, he told me he loved me for the second time in my entire life.

I went in the house to eat lunch with Paul and a song was on I never heard that said you’re being weeded.

Although I’ve been having a faith crisis, I’ve been still going to church because I am able to find some serenity there. Last week there was a sermon about how the weeds are planted alongside the good seeds. But if you pluck the weeds too soon, the plant will also be uprooted and die. But at the right time, the weeds will be pulled out and the plant can flourish and grow like never before.

I think I’m being weeded.

What is happening? Part 1

So many things have happened in the last week, I don’t know where to start. It feels like a year has passed in a week. I will try to start at the beginning.

My faith feels tested. I’ve been asking God for a sign. But so many bizarre things have happened within a week that I don’t know how to interpret them.

It started last Friday as I was picking Arabella up from volunteering at Bible camp. I finally got a call from the doctor’s office. I don’t have Celiac and the polyps that were removed are benign. My stomach is starting to feel better. The doctor said if I went off Prilosec too fast, it will cause an excessive amount of acid to pour into my stomach. That is probably what happened, but I scheduled an appointment for allergy testing anyway.

Friday night a huge storm hit where our cabin is up north causing massive damage. I think that the power finally went back on yesterday. What a mess that will be to clean up. There were multiple trees down. Thankfully no one was hurt and the cabin is fine.

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Saturday morning we awoke to get ready for my Uncle Rick’s wedding. He had a whirlwind romance proposing 36 hours after meeting and moving in with her the following week. They married 7 months later, her 4th wedding and his 3rd. They seem like a good match. I really hope it works out for them.

We were going to leave early to meet up with my brother Luke and his family for lunch. It was my daughter Angel’s 21st birthday the following day and more than anything she wanted to meet up with the family for sushi. Just as we were ready to leave, another severe storm rolled in. There was a tornado warning for the path of our house, the restaurant we made reservations at, and where the wedding was going to be held.

The sky grew dark as night and sirens were going off. The wind swirled around in many different directions. Lightening bolts slashed through the sky as thunder clapped to usher in a torrential downpour. The rain came down so hard and fast that it poured into my son’s bedroom. After the storm passed, we mopped up the water as fast as we could in our dress clothes. We were running very late for lunch. Paul was an usher for the wedding and Angel was singing. They couldn’t be late. I worried that perhaps my uncle’s union wasn’t meant to be.

We made it to the restaurant an hour after our reservations. There were only a handful of customers. The place was always a classy joint, but on that day the music was the chef’s choice. They were playing rap. When a song came on with lyrics containing every profanity known to man, my brother Luke quietly left the table and complained to management that their choice of music was not appropriate for his little girls.

The wedding itself was held in a small church without A/C. I was a little worried that all of our cell phones would go off with the weather alarm during the ceremony, but the weather turned around. After the ceremony, there was a reception with an open bar. Once one of my aunt’s found out that Angel was turning 21, she started plying her with alcohol. Why wait?

It was at about this time that my son told me he no longer believes in God. I wanted to reassure him but I reminded myself that I was having my own crisis of faith. When I was having the most doubt, other people started cramming their faith down my throat which weakened my faith even more. I knew from my experience that I just had to listen. He left after the meal telling me that his rap band had their first gig that evening, but I wasn’t invited. He turned off his locator on his phone and returned home between 4 and 6 AM.

My daughter Angel caught the bouquet. Will she be the next to marry? As she danced with her boyfriend Dan, I thought perhaps she would be.

That evening Paul and I took advantage of a stunning sunset after weathering the storm.

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And the two shall become one.

To be continued…

Write, right?

It’s been a busy week and I haven’t really felt like writing.

Most of the time I have no qualms about throwing it out there. But for some reason this week I’ve felt impersonal. I want to keep my distance and my thoughts to myself. I worry that I’ve already shared too much.

I feel frustrated. My thoughts are fluctuating about my writing. One day I have great confidence. My book will be a bestseller and I can’t wait to chronicle my descent into despair. The next day I want to walk away from it all and not open myself up to be vulnerable to the world.

I don’t think I’ve ever read a book that has been as personal as mine is going to be.

Word has gotten around that I am writing a book. I got a call from a publisher this week. She wants to meet for coffee to discuss my book. She said that memoirs are flying off the shelves right now. She wants me to send her a sample of my book. I am thinking about turning her down, but I am not sure if that is a smart idea. She is a small publisher that mainly publishes works of fiction.

I am not ready to deal with this yet. I want to take my time and write a great book before I worry about finding a publisher. Then I feel bad because I have some good friends who wrote great fiction books and haven’t been able to find a publisher.

The end of the summer, I will be public speaking about being a sibling with an autistic brother. My contact said that once I have my book written, she had someone interested in publishing. I would prefer to publish my book in the mental health memoir genre. Now I will need to reach out and contact them to see what my options are. It is all very confusing as a first time author.

All I want to do is write my book and not worry about anything else right now. The publisher said that if I finish writing a book, I will find myself in the 1% of the population who has. That is rather exciting, but I have no interest in being an author.

I just want to write my book. I’m not sure what I’m going to do after that. I can see myself doing public speaking and being an advocate for families, especially siblings, of the disabled. But I haven’t even done my first public speaking stint yet. Maybe I won’t like it. Maybe I won’t be good at it. The thought of public speaking about something this personal is starting to fill me with anxiety.

I’m not sure where this path is going to lead me and I am filled with doubt. But I think I need to keep writing.

Write, right?

Some April Fool’s Day joke

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Yes, it’s snowing again! I told my husband this morning that it was supposed to snow today. He said nice try, I do realize it is April Fool’s Day. But I wasn’t joking.

I decided not to play any pranks this year. Maybe I am getting old. I was just not feeling it. Plus I couldn’t think of anything great that I didn’t already previously do.

Sometimes life can be a big enough joke and today was one of those days.

In February, I had a meeting scheduled with the dean of students to talk about Alex’s graduation. I was feeling very positive after the meeting although I was feeling very negative going into it. We came up with a plan that involved a lot of choices on Alex’s part. I thought it was a great plan and I was feeling more positive than I was in a very long time.

Alex applied at the local tech college for this fall. He got a job working in retail. Some days he has to be at work on the weekends at the crack of dawn or work late on a Saturday night. Things have been going great. I’ve even noticed a greater effort on his part to get up earlier and be to school on time. Until this morning, that is.

I was worried that I would be getting a call from the school and I did. But it wasn’t the type of call I was expecting. I received a call from the school saying Alex didn’t even show up today. I was really confused since things seemed to have turned around so wonderfully. I even asked the secretary if it was some kind of April Fool’s Day joke. I also received an email from the school counselor saying that my son would also be dropped from a class if his absence was unexcused.

I was stressing. Now I am not so sure my son will be graduating next month.

I tried to get a hold of my son to no avail. I was feeling very worried and upset. I told my husband what was going on and he could tell from my expression that it wasn’t a joke. We blamed each other, argued a bit, and then came up with a fairly solid game plan.

My son texted me back a while later. He was in a dead zone when I called. He said that he got an excuse from a teacher to work on a group project. He would straighten everything out with the school later. Why didn’t he just tell us that ahead of time??

The April Fool’s Day joke was on me. The strange thing is that nobody really was playing the joke.

Doubt

Would you be willing to hurt people you are closest to in order to help strangers?

Fear that is toxic. Anxiety whispers an endless echoing rhyme. Worry incessant. Doubt creeps in like a vine that entwines the wrestling demons running around in my mind.

I’m not sure I can do it. It’s too risky. Who do I think I am? Do I really think this will be a bestseller? Do I really think that my poison will be a tonic? Do I really think that my story is going to make a difference, change things?

Really, Alissa, you couldn’t even save your own family.

The thoughts painfully pierce my poorly healed wounds. The scabs tear away and bleed onto my parched paper skin. The memories scratch at the demons inside. They wreck havoc on my mind. Tears slip from my eyes.

Now I understand why there aren’t a lot of siblings telling their stories. I get it now. It is too painful. If the story is going to be effective, I have to be brutally honest. But that honesty is going to hurt, not just myself but other people.

Tomorrow I have a meeting with a lady from the local autism group. She wants me to be on a panel representing siblings of autistic children in front of a group of parents. There are not a lot of programs available for siblings because they are ‘normal’. I think that is very tragic if a child needs help and doesn’t receive it because they aren’t special enough.

My goal is to write a book about my story as a sibling. I want to advocate for siblings. My thought was to write a book and donate a certain amount of the proceeds to go towards helping siblings that are struggling through support groups and therapy, etc. Just how it is all going to come together is not totally known to me at this time. I would be willing to donate my time and money to help other’s struggling through what I’ve experienced.

Maybe tomorrow I will have some answers. But as for today, I never want to write again. I want to delete my blog. I want to throw the book that I started into the trash. I feel unsettled, almost angry and sad. Restless.

I am at a crossroad of sorts. Will it make a difference? Am I just picking at scabs and bleeding out into my words? Will it heal me? Or will it hurt me and those I love? Should I just let it go?

Will I be able to help others? Am I being delusional that I can make a difference? Would it be worth it if my story can help someone contemplating suicide if  my family turns away from me? Maybe my vision is too grandiose?

I am absolutely terrified, but I think it will be worth it.

What if I don’t help anyone and end up alienating myself from my family? Do I have the strength and courage to do what needs to be done?

I have my doubts.