16. Five great accomplishments

Day 16: What are your 5 greatest accomplishments?

  1. Running not only one, but two, marathons.
  2. Earning my Bachelor’s degree.
  3. Staying happily married for over 19 years.
  4. Working hard with my husband over the last 9 years building a start up company and growing it into a successful business.
  5. Doing the absolute best job that I can to raise 3 children to become healthy and productive members of society.

12. A typical day

Day 12: Describe a typical day in your current life.

ATTENTION ALL INSOMNIACS!! This one is for you!

Today is a typical Monday.

I awoke a few minutes before the alarm went off after getting exactly 8 hours of sleep. I need no more or no less..

The first thing I do after visiting the bathroom is check my phone. I may have missed something important that happened in the world in the exactly 8 hours I was sleeping.

I take my Prilosec and start a load of laundry. I do exactly 2 loads of laundry every day unless I am gone or I am doing a load of towels. Towels can be a one load day.

Then I try to coax my kids out of bed for school. My alarms get louder if I think they will be late or will miss the bus.

Then I sit on the couch and drink exactly one and a half cups of coffee while trying to  have a conversation with my husband who is playing chess online. I scrounge up something to eat, then take my daily vitamins. On Monday, I floss my teeth.

I chase the kids off to school and start another load of laundry.

Then I go for a 6 mile run on the exact same route I always take. I listen to music and sometimes sing along loudly. I get mad at the idiots who almost hit me. I wave at my fans or people that follow my road rules exactly (the ones that slow down and move over). Afterwards, I take a shower. If it is nice out, I will hang my 2 loads of laundry on the line. Then I go to work.

Around lunchtime, I put the Monday chemicals in my hot tub then write a rough draft for my blog.

Then I go back to work until the work is done or I need to take my kids to after school activities. Somewhere in there, I edit my blog post and publish it.

Then I take another Prilosec exactly one half hour before eating supper. Sometimes I make supper. We always eat supper together as a family and talk about each others day. I always clean the kitchen afterwards. Then I fold my 2 loads of laundry and put them into piles for each family member. If I have some free time in the evening, I will sit in the hot tub. If my kids aren’t home, I stalk them on my phone to find out when they will be home. If they are home, I try to talk to them. Or maybe I’ll watch some favorite shows on Netflix with Paul.

Then I say my prayers and go to bed…and start things all over again the next day..

I am all for structure, schedules, and routine…but this will be the last time I bore you with all the details of a typical day…

Are you sleeping yet??

10. My most embarrassing moment

Day 10: Describe your most embarrassing moment

Back when I was in college, I took a class called Deviant Behavior. One of our assignments was to do something embarrassing, or simply not socially acceptable, in public to see how other people would respond.

While some students did embarrassing things like farting in public or picking their noses, I kind of cheated on this one… I went back to my repertoire of embarrassing moments in my life.

Maybe it was the time that my 350 lb dad decided to mow the lawn up north in nothing but a Speedo. His stomach hung over his underwear so that from the front it looked like he was mowing in the nude. What can I say? It was hot out that day. We gasped in disbelief as the neighbors tried not to stare.

Having my dad walk around in his underwear was nothing new. He used to do that when I had friends over and sometimes he does that when we visit today. He has no problem walking to the end of the driveway to get the mail in his underwear. Let me correct that statement…He does have problems walking to the end of the driveway, so he starts up his lawnmower and rides it to his mailbox in his underwear. He answers the door in his underwear if someone comes a knocking. He pees with the bathroom door open. He will dress up in pajama bottoms to go out to eat, but he only showers once a month. He wipes his teeth on the bathroom hand towel, but doesn’t brush them…There are some things that I am too embarrassed to even tell you about..

Or maybe it was all of the times that Aunt Grace, who had enough money to treat everyone to the meal, would shove everything from the table into her big purse or leftovers container. She would take the little butter dishes, silverware, cloth napkins, centerpieces, creamers, or practically anything they didn’t clear off of the table. She used to grab matches back in the day, but didn’t smoke or a handful of mints on her way out the door. She always insisted these items were hers since she paid for the meal. Or maybe it was her fondness of slapping the butts of my friends that she liked.

Or maybe it was all of the times that I saw my autistic brother expose himself to friends and neighbors. He used to stand at the end of the driveway at my grandma’s house and pull down his pants every time a car drove by. He walked around the house in stained underwear whether people were over or not. Sometimes he wore my mother’s dresses. He would stand out at the end of the dock up north with his pants dropped and pee into the water. Then he would stand there shaking it for awhile as the boaters going by would stare or laugh. Or maybe it was when he would fart, attack people, or swear in public. Hard to say..

Or maybe it was just simply bringing a friend or potential boyfriend back home to a house where there was always dirty dishes with rotten food on the counter and pee on the bathroom floor. I brought them home to a hoarder’s paradise where things don’t get thrown away. Funny thing is…I always preferred the clean freaks…Ha ha ha ha…Sometimes unwanted items would be given away to my brothers or I, but usually it just meant that it was time to build another shed.

Let’s just say that I don’t get embarrassed much by anything anymore…

But as for the most embarrassing thing that I ever did…Back when I was in 2nd grade, I peed my pants in front of the whole class. I couldn’t get the teacher’s attention and couldn’t hold it anymore. Urine leaked down my green tights and puddled into my shoes. I had to walk around all day in a short little dress with nothing underneath..

Now you can probably understand why I skipped the assignment of doing something embarrassing in public…been there, done that, and don’t want to do it anymore..The hardest part was narrowing down my topic of embarrassment.

9.Ten people that influenced me

Day 9: List 10 people who have influenced you and describe how.

1. My grandma (my dad’s mother)

My grandma was the biggest source of comfort in my life growing up. She took time to patiently listen to me and always made my favorite meals when I came over. She is the number one person that helped me through childhood without totally cracking. Although our personalities were nothing alike, we did share some hobbies such as singing, working puzzles, and reading thrillers.

2. My grandpa (my dad’s father)

My grandpa was stubborn and tough. The last 13 years of his life, his health drastically declined and he was wheelchair bound. Being sick changed him, but through it my grandparents showed me real commitment through sickness and health. My grandma was selfless in her devotion to his care.

3. My mom

My mom was very influential. She taught me to have faith in God even when He seems far away. She showed me commitment by staying in an unhappy marriage. She gave me my strong work ethic. She taught me to find fault in others, but not in myself. I learned to worry and be indecisive from her. But I also learned patience, devotion, peace keeping, generosity, and selflessness from her. Those rare qualities more than make up for any areas that need improvement. She was the best mom anyone could ask for and my biggest parenting role model.

4. My dad

I learned from my dad not to care what others think of me through his eccentricity. He also gave me a propensity towards depression and irritation. I get my lovely eye rolls and sighs from him. He also showed me the importance of caring for my elders.

5. My brother, Matt

My autistic brother Matt has been one of the most influential people in my life. He has given me the most stories to write about. Without Matt, I would not be the person that I am today. He has changed my life so much, I couldn’t even imagine a life without him.

6. My great-aunt Grace (my dad’s aunt)

Aunt Grace was like a grandma to me. She was structured, a domineering firstborn, intelligent, perfectionistic, eccentric, and always right. She told me that I could do anything a man could do. She was the one who pushed (forced) me to go to college. We were so much alike that sometimes we clashed.

7. My husband, Paul

Paul is one of the most intelligent people that I know. He is constantly pushing me to try new things. He encourages me to be anything that I could possibly want to be. Our skill set and personalities compliment each other which allows us to be stronger unified than alone. He is my biggest supporter. I couldn’t have run a marathon without him cheering me on. He encourages me to keep on writing…

8. My daughter, Angelique Hope

Angel has restored my faith that there is goodness and light left in this dark world. She has influenced me to learn how to be a better singer.

9. My son, Alex

Alex has provided me with countless hours of entertainment. He keeps me on my feet and tests my sanity. But underneath it all, he is caring and we understand each other.

10. My daughter, Arabella Joy

Arabella has stretched me by being totally different from me in almost every way. She is very intelligent, eccentric, and a strategic/abstract thinker. She thinks outside the box and pulls me out of my black and white detailed thinking to see things from a different angle.

For good or for bad, my family has been the most influential in my life. Although it seems kind of tacky, my children have been very influential in my life as well.

7. What is your dream job?

7. What is your dream job, and why?

When I was younger, quite a bit younger, I wanted to be a counselor. I earned a Bachelor’s degree with a counseling emphasis. I had every expectation to get my Master’s degree and become a licensed counselor, but didn’t.

To tell you the truth, I wanted to fix broken people. I wanted to change them. I wanted to take their weaknesses and make them strengths. I wanted to make flowers grow in a patch of weeds.

I never told you this before, when I was younger my mom would pair me up with younger girls that also had difficult sibling situations. Sometimes I would visit for a few hours or a weekend. I think that the purpose was to counsel and console them like I did with my mom. There was no doubt I would be a counselor.

Then my last year of college happened. We had a professor that was a counselor. She made me doubt my career ambitions. She took away my unrealistic expectations and told us what it really was like being a counselor.  She told us how her holidays were interrupted because she had a take calls from suicidal clients. She told us of the times she lost clients to suicide and spoke of how difficult it was to handle. I questioned my ability to change people. I mean, I couldn’t even change myself or my loved ones who were struggling.

Really, who did I think I was? God?? To think that I could save people?

I thought about going back to school to be a counselor off and on over the last couple of decades, but no longer have the interest to do so. I don’t think I could listen to people talk about their problems and not do anything to fix them. I really lack compassion for those who are unwilling to change and just want someone to complain to. I think it would be incredibly hard to watch someone spiral down into mental illness and not be able to pull them back out. I would take every suicide personally as a failure on my part.

I also dreamed of being a librarian..surrounded by books in quiet serenity…organizing books..

I dreamed of being a lead singer in a band…exciting weekends being a star.

I even dreamed of working alone in a lab analyzing samples…checking for little details that might be off…water samples…pap smears…biopsies…DNA testing…being away from people using my analytical skills.

But right now, more than anything, my dream job is to be a writer.. I have been considering leaving my job of nine years and going back to get my Master’s degree in writing…The first thing that I would do is write my story…growing up with an autistic sibling… I would make it my life work… I would tell my mom…receive her blessing…get all of her journals that she used to write in to compile with mine… then write…offer hope to (without trying to fix)  people who are struggling…it has been something I have always felt compelled to do… then I would be free from it and spend the rest of my life being a freelance travel writer…travel the world off the beaten path…take many pictures and write…

That would be my dream job..

 

6. The hardest thing I ever experienced

6. What is the hardest thing you have ever experienced?

My childhood was the hardest thing I ever experienced..

Outwardly, people thought that I had it all. I was voted most likely to be a supermodel by my senior class. We lived in one of the biggest houses in town. People expected me to be happy and perfect all of the time.

But inside our house there was always a fresh stream of piss on the bathroom floor. Dirty dishes covered the kitchen counter. Rotten food festered in the fridge. There were many rooms dedicated to the clutter shrine. Stack after stack of newspapers, magazines, and papers adorned the floor. Broken items and unworn clothing littered the forever unfinished bathroom upstairs. Every surface area was cluttered. But it didn’t matter because no one bothered to visit anyway.

Maybe it would’ve been different if I didn’t have an autistic brother or if my parents didn’t have 4 children within 5 years.

Several friends of my parents told them to beat the autism out of him. Believe me, my dad tried. Not surprisingly, it didn’t work.

Maybe things wouldn’t have been as chaotic if Matt wasn’t autistic. Matt sometimes was violent. Pulled hair..bloody lips..black eyes..bruised arms and legs..a head bashed into a nose..poked eyes…Violence often infiltrated our house. I was told not to retaliate or feel anger because Matt didn’t mean it. Didn’t I know that I was the lucky one?

Sometimes we would get excited about going somewhere, just to get there, and have to turn back home again. Matt wasn’t welcome there anymore..

Then there were all of the rules that didn’t make any sense. For example, I wasn’t allowed to wear hair spray, nail polish, or perfume. I had to sneak a bottle of hair spray into my backpack and get ready at school. That was when we were still able to go to school. Matt’s behavior was so intolerable that he was no longer allowed in school so I didn’t go to school either for 3 years.

I lost a lot of friends after Matt hurt them…

My parents argued constantly. My dad lashed out verbally and sometimes physically as well. Half of the household at one time or another was severely depressed. Nooses hung from empty trees. I was fearful of what I might find when I entered a quiet house.

My mom cried out to God at night asking Him why He was punishing her…

My childhood was a time of chaos, disorder, dysfunction, and despair…

5. Five things that make me happy

Day 5: What are the 5 things that make you most happy right now?

  1. This weekend Paul and I will be visiting Angel at college for the first time since we dropped her off in August. I am happy about that. I am also happy that all of my children are doing really well right now. They are all getting great grades, hanging out with good kids, and dating people that I approve of.
  2. I am happy that all of our hard work is finally starting to pay off. We could finally afford to trade in our rust bucket of a truck for a newer vehicle, get new windows for the house, and pay for things that we have been neglecting to take care of for a long time. Even the new shoes and winter coat I ordered online fit and are exactly what I wanted. That’s a happiness plus..
  3. I am happy to cross a lot of items off of my to-do list. It is fall cleaning time. Although I don’t love cleaning, I love a clean and clutter free house just in time for winter. Cleanliness makes me happy..
  4. This is the time of year that I start planning and thinking about next summer. Planning summer races and weekend getaways are almost as much fun as summer itself. Also, Paul and I are going to be celebrating our 20th anniversary next summer. I am going to start planning a trip to the most beautiful place in the world to celebrate, Bora Bora. I am possibly planning a vow renewal and getting Paul a new ring for this ceremony (since he lost his). Planning and thinking about exciting new adventures makes me happy. Plus, after being together over 20 years, I am happy to be married to a wonderful man.
  5. Lately I have been able to run without having knee pain. I feel healthy and strong. This makes me feel hopeful and happy that I can advance my fitness goals for the next season.

4. Ten things to tell your 16 year old self

Day 4: List 10 things you would tell your 16 year old self, if you could

  1. Spend as much time as you can with your grandparents. I hate to tell you this, but friends come and go. Your best friends now won’t even be at your wedding. Soon something is going to happen that will push the friends you have now away. Enjoy the times with friends in the moment. Remember that your grandparents won’t be around forever. They are the greatest source of stability in your life, not your friends.You will never regret spending a lot of time with them.
  2. Your strong work ethic will get you very far in life. However, don’t put work or your long to-do list above your relationships. Take the night off of work to go to your brother’s high school graduation. The $30 you earned that night will never make up for the regret you will feel for the rest of your life for not being at your brother’s only graduation.
  3. I know that you are dealing with some pretty hard things to handle and you feel like you are all alone. These are the hardest years that you will ever face in your life. Hang in there, soon it will be smooth sailing.
  4. Don’t think that you have to be perfect, or even good, at something before you are willing to try it. You don’t have to be good at something to like it either. You don’t have to be perfect. Quit being so hard on yourself. It was a big lie when you were told you had to be perfect. Put yourself out on a limb. Try something new even if you are not good at it.Who cares if you fail?
  5. Leave home when you turn 18 and do WHATEVER it takes to not go back. In fact, move far away. Do not take responsibility for your parents problems. Do NOT agree to be your brother’s caregiver. You should not be giving your brother a shower on a Saturday night. You should be out living your life doing the things that young people do. For once in your life, be carefree. You will already regret not having a childhood, don’t regret not living while you’re young too. Soon enough you will be tied down by your own responsibilities.
  6. Don’t be a caregiver for your brother or anyone else for that matter. Be a little more selfish. Do the things you want to do. Allow yourself to be stupid and make mistakes that you can learn from. Hold out for the library job you will be offered instead of turning it down to be a caregiver. You did enough care giving as a child. This will not be good for you.
  7. Buy an expensive pair of running shoes and start running. Trust me. You need a healthy way to relieve your stress. It is a lot cheaper than therapy and all those bottles of pills that never helped you anyway. Soon you will enter adulthood with enough baggage to travel the whole world. Once you realize their weight, you will have a lifelong struggle with depression, anxiety, worry, and anger. Running will help you get through all the years of repressing your feelings that you couldn’t handle.
  8. Keep writing down everything you experience and don’t stop. It is worth making time for. Some day it will make for a helluva story.
  9. You have to forgive the people that have hurt you for your sake. Pity their weakness. Eventually you will no longer be able to outrun all of the things that you are hiding from. It is going to take a long time to face your demons. You will spend a lot of time reflecting. But eventually you will have to let go..forgive..and trust that God has a bigger plan or purpose for your life. Be a beacon of hope for those that struggle around you.
  10. Try not to worry so much. It annoys me and the others around me. I don’t like it. I want you to relax. Please start working on that now so we can get over this someday.

3.Describe your relationship with your parents

Day 3: Describe your relationship with your parents.

My parents then…

When I was a child, my mom and I were always close. She considered me to be her best friend. As a parent, she did the best that she could and had the perfect amount of strictness. In that area, she has been my role model for parenting. I identified with my mother. She always worked hard. She rarely sat down and relaxed. She was not one to sit and chat. She was always buying gifts for me. When times were hard, she would bring home a bouquet of flowers for me. She confided in me because she didn’t have anyone else that understood.

When I was a child, I hated my father. He never hugged me or told me that he loved me. Instead of teaching me everything that he knew, he told me I was stupid for not knowing what he knew. He never set aside time to spend alone with me. He ridiculed my thoughts, feelings, ideas, and dreams. He was very lenient. He didn’t care when I came home, who I went out with, or what I did. He never sympathized with me. He never comforted me and told me things would be alright. He was never on my team. He never took an interest in my life. He never had patience for me. When the going got tough, he checked out emotionally. If he was forced to deal with me it was usually with irritation, anger, or harsh words. He never said that he was sorry. Our relationship was generally negative.

My parents now…

Fast forward the clock 30 years..

My mom and I are still close. Sometimes I resent her for not giving me a childhood. Sometimes she resents me for having healthy children and a loving spouse, things she always wanted. There was a rough patch in there after my autistic brother Matt attacked my daughter. I felt that she sided with Matt over me. But that was many years ago now. Over time, the rough seas smoothed out into reflective glass. We lived through some very difficult times together. Despite everything that happened, we are still very close. My mother has my utmost respect and admiration for her perseverance through hard times.

My dad and I still aren’t very close, although we probably get along better now than we ever have before. All in all, I don’t believe that my dad is a bad person. But when he had to step up to the parenting plate, he failed miserably. For this reason, we will never be close. I no longer hate him. I pity him for his weakness. I feel sorrow for the relationship we never had and never will have.

California wine country

california-2016-100

It was finally time for Paul’s birthday surprise…

We had a total of 5 hours from our conference hotel check out until our check in at the South Coast Winery Resort and Spa. It took an hour and a half to drive through the desert, back through the mountains to get there. We were looking to kill some time, which doesn’t happen often.

It was rainy when we left the desert. We made a couple of stops through the mountains to take pictures of the contrast between the sunshine when we arrived to the clouds and mist on our way out. We stopped for lunch at an authentic Mexican restaurant which was more like a fast food joint, nothing to really write about. We were hoping to check out some unique shops, but there was nothing to see. There were a few ranches with blocked off driveways and even more run down trailer homes. We ran into some rain and patches of fog, but ended up getting to the resort early. Very early..

As we got closer to our destination, the rolling mountains turned into sunny vineyards. There were billboards announcing that we were entering wine country. Then we started passing wineries. It was hard to keep our destination a surprise much longer.

Paul’s drink of choice is wine, the drier the better. My drink of choice is craft beer. I’ve heard that we have things switched around a bit…the guy is supposed to drink beer and the girl is supposed to drink wine in the relationship. We never have been much for social norms… So a birthday surprise had to include a trip to wine country.

As I mentioned, we arrived early. Quite a few hours early to be exact. We went to check in expecting to be turned away. Instead, we were very warmly welcomed. Paul was given a bottle of wine for his birthday and a free room upgrade. We were moved from the main hotel to a villa that had a fireplace and Jacuzzi. The customer service there was top notch. I kind of wanted to sneak the lady home in my suitcase and have her work for us.

After checking in, we headed down to the winery for tasting. It cost $18 for 5 tastes. We went twice over our time there and were waited on by Danny. Again, excellent customer service. He was wonderful. Some of my favorite wines were California Girl and the 2014 Riesling. Typically, at home, we do not have to pay to taste wine. In between samplings we are given crackers to cleanse our palette. It wasn’t that way here at all. We were given generous portions though and I felt a little tipsy afterwards.

The following two evenings, we ate supper in the winery’s restaurant. It was rather pricey, however comparable to a fine dining establishment at home. They had specialty foods such as lamb and calamari with unique sauces. The first night I ordered a pasta dish. Even though the portions weren’t huge, I couldn’t eat it all. My acid reflux went wild while on vacation, probably due to stress of traveling and eating different foods. Immediately the head chef came over and asked me if I was satisfied with my food. It was the second day that they used their new menu and they were very concerned that I was not happy since I did not eat all of it. I might’ve been the first person that they tested it out on, but I did like it and couldn’t offer any negative feedback.

The next day, Paul and I tried to get into a tour of the winery but they didn’t have any opening that didn’t conflict with our plans to go to the spa. Paul and I both got massages. It was rather pricey compared to at home. The massage was good, except that my stomach was still upset and I had to pee half way through which was bothersome.

Afterwards, Paul and I hung out at the pool. We sat down between a couple with two adults daughters, one being in a wheelchair. On the other side of us was a large group of young, rather intoxicated, women celebrating an upcoming wedding.

It was at this time that I became aware that Arabella and my mom were arguing. Seeing a woman with her disabled sister brought back memories for me. I think that since I had to give up a great big chunk of my childhood to take care of my disabled brother that my mother owes me a few days to get away stress free. Maybe I shouldn’t feel that way, but that is how I honestly feel. I want my mom to lie to me and tell me that everything is great even if it is not. I had to get involved and try to fix things which made things worse. Then the worry set in. Why is it so hard to relax?

I overheard the young women next to me complain about their grandmas. I felt some irritation at their drunk banter. Oh, how I longed for my grandma to be alive again. Then Paul and I went to the hot tub full of the wedding party girls. They actually thanked us for putting up with them. Apparently some of the other pool patrons weren’t quite as tolerant. We told them we were from Wisconsin. We didn’t know better.

Once the girls found out that we were married for 19 years, they started asking for advice. There were a couple newlyweds, the rest were single and looking for the secrets of marriage longevity. Paul said that he really had no idea at all what he was doing, we just adjust and make things work. Neither of us grew up seeing what a healthy marriage was like. Then I left Paul in the hot tub with a dozen bikini clad women that were half my age. I wanted to shower and get my items out of the spa before it closed. Someone asked why I would leave my husband alone in the hot tub with all of those young women. I replied, “Why stop trusting him now after being together over 20 years?”

I headed back to the spa to shower. I heard the mother of the woman in the wheelchair struggle to shower her daughter in the small stall next to me. It seemed like an overwhelming ordeal and I felt compassion for them. But they did not let her disability get in the way of her swimming and having fun with family even though it was difficult. I zipped in and out of there before they even finished showering.

We had a great time at the winery. We found the room to be very affordable. However, we ended up spending more money on other amenities such as the spa, eating there, and then of course there was the wine…