Our last supper

Paul and I decided to take his mother Martha out to eat for one last Mother’s Day celebration where we can all be together.

A quick recap…Martha has stage 4 lung cancer that has already spread to her brain. This will most likely be her last Mother’s Day. Plus we were able to go out with all of our kids. This will also be the last time the kids are all living at home since Angel will be in college next year several hours away. So this was the big hurrah!

We took the family out to a Japanese steak house for hibachi. Martha doesn’t get to enjoy fine dining often and was very happy for the opportunity to go out. She was very sick earlier in the day from her chemo, so we weren’t even sure the evening out would happen. We thought about just cooking a nice meal at our house. But since this is the last time, we decided to go to a small quiet restaurant and make it memorable.

We had a wonderful hibachi chef. Arabella even tried some raw tuna sushi to get ready for her trip to Japan this fall. She is very brave. Martha was wearing a baseball cap to cover her bald head. Paul made sure that she received a special chef hat that they reserve for birthday parties. I took a lot of pictures.

When we received the bill, we were told that Martha’s supper was paid for. Someone at the table next to ours covered her bill.

Paul went over to the table and thanked the man. They embraced. Later the man followed Paul into the parking lot. He told Paul that his mother passed away a few months ago from cancer. He wanted Paul to pass on this generosity someday to another person going through the same thing.

Once again, the two grown men embraced. Total strangers sharing a moment of sorrow over their dead and dying mothers on Mother’s Day weekend.

Together they wept in each others arms.

I have never seen two big masculine men sobbing together in a parking lot before. Complete strangers for a brief moment sharing the same pain.

It was very moving.

 

A little down

I think I am depressed. 

One of the signs of depression is losing interest in hobbies. What if you just can’t do the things you enjoy anymore?? 

If I spend too much time at work, type a lot (write), shuffle cards, or work jigsaw puzzles my carpal tunnel acts up. My hands ache. I need to wear a brace. If I exercise with weights, sometimes I can’t grasp them. Several times a week my hands just let go of items and I drop them. I’ve dropped my phone several times. Lately, I’ve dropped containers of foundation or eye shadow shattering them into powder so I have to throw them out. I have problems opening lids on jars. 

Sometimes my acid reflux gives me a hoarse voice and sore throat which makes it very difficult for me to sing, another hobby of mine.

I have enjoyed running and competing in races, but now my knee hurts so much that I might have to cut back or stop altogether. 

It seems like everything that I really enjoy doing to deal with my stress is being taken away from me. 

I feel depressed that my daughter will be graduating from high school in a few days. She is a lot like me. We have so much in common and have become close friends. Now she will be moving several hours away and starting a new life without me. I am happy for her, just sad for me.

My relationship with my other two kids sucks. My son is currently failing all of his core classes. He is angry at us or depressed when we give him consequences. The hard part is that he has a brilliant mind, but is too lazy and unorganized to put any effort into his studies. I have no control over this. My youngest daughter and I have nothing in common at all. She takes pride in annoying me and arguing with everything that I say.

Work is stressful. Running our own business, having employees, and demanding customers takes a lot of energy.

My mother-in-law has terminal lung cancer and at best has a few months to live. 

I am starting to see my own parents age in new ways that worry me.

Every organization that we belong to thinks that they are the only organization that we belong to. Everybody wants our time, our money, a life blood commitment. 

My husband and I have both been irritable and stressed these last couple of months. I honestly don’t know how much more of this we can take. Instead of people helping us through these difficult times, they drain us of whatever we have left.

So, yeah, I guess I am feeling a little down. 

  

My friends…

Sometimes I wonder, I sit and think. 

I have 3 close friends. None of them know that I have this blog. You probably know more about me then they do. Isn’t that funny? 

I am a private person, although it probably doesn’t seem that way to you.

Sometimes I wonder if they stumbled across my blog, would they like me?

Would they like the real me? 

What I really want for Mother’s Day

You have expressed concerns that you do not have money to buy me anything for Mother’s Day, but it is not your gifts that I want. I want something much more difficult than that.

I want peace. 

I am sick of hearing your constant fighting. I don’t like how you tease each other and put each other down. I have had enough. I don’t care if you have to fake that you like each other.

I want hope.

I  want to believe you have a good future. I want you to be organized. I want you to turn in your assignments on time. I want you to enjoy life long learning. I want you to care about your grades. I don’t want you to tell me that you don’t care about school, that you will never need to use the things you are learning in real life. I don’t want you to struggle.

I want respect.

When I tell you to do something, I actually want you to do it. I don’t want you to tell me that you are going to do it later or say that you are not going to do it. I don’t want you to ask me why I am asking you to do something, I just want you to do it.

I want character.

I don’t want to hear you whine about how hard your life is because I asked you to do something that you don’t want to do. You father and I worked very hard to provide you with the ideal childhood, something neither one of us had. Your attitude towards us and our sacrifices for you is very hurtful. I don’t want to always feel angry with you.

I want responsibility. 

I don’t want to tell you repeatedly to wake up in the morning. I want you to get yourself up for school. It makes me feel stressed out when you almost miss the bus almost every morning. I don’t want to hear you complain about having a bedtime, especially since you can’t seem to get yourself out of bed.

I want faith.

I want you to grasp onto something bigger than yourself to help you through the hard times in your life. Your dad and I won’t always be here to protect you from the storms of life.

Maybe this gift will cost more than you can give me at this time. 

Some of you are further down the road than others at giving me this gift. 

Even though I really want the gift of knowing that someday you will be responsible well adjusted adults, this gift is not really for me. It’s for you.  

Knee deep

I bet you have been sitting at the edge of your seat waiting to hear how my knee is holding up. Today is the first day this week that I went out for a run. The marathon is two and a half weeks away. I braced myself for the run. Literally. I was able to run 6 miles today without stopping. However, my endurance wasn’t the greatest and it wasn’t completely pain free either. I think the tight brace changes how I run. I feel like I am running on a wooden peg. But the run did go better than the run last week. Yeah, baby steps, I know.

Friday night Paul and I spent the evening at the store getting my prescription drugs and looking at braces. Admitting this, I feel old. I am getting old. I am 41. There now you don’t have to go to previous posts to try to find my age to see if I am really old or not. Well, you could go back and read previous posts if you want to. Lol.

The reason why I was seen out drug storing Friday night was that I had some time to kill while Alex was taking his behind the wheel driver’s ed class. Why did I sign him up to drive on a Friday night?? Well, I called to make his monthly appointment at the end of the month. Why? Because I felt embarrassed to call and set up the appointment any earlier. The previous month my son was late for his driving time. They had to call me and ask me where he was. It kills me be late, although he could care less.

It has been a week and a half of doubling my acid reflux meds. The first few days were pretty bad. I think being stressed out about it made it act up more. But I am finally starting to feel a lot better. Maybe I’ll be able to run my races pain free this summer, well as far as my stomach is concerned anyway.

Today I decided to run wearing my old shoes. I was wearing in new shoes when I ran 18 miles and my knee started hurting. Just to be on the safe side, I decided that maybe my new running shoes were to blame for all the difficulties I have been running into.

I also decided to wear the new wireless ear buds that my daughter bought me for Christmas. They hook up to bluetooth on my phone so I don’t have to trip over wires. The only problem is that I have tiny years. Most babies are born with bigger ears than I have. I have met one other person that has smaller ears than me. It has been a source of vanity for me for many years, until now that is. The ear buds were too big to fit into my ears. Back to being wired I guess. 

At this point, I feel like I’m damned if I do and I’m damned if I don’t as far as the marathon goes. I don’t know if I will be able to handle it physically if I run the marathon. I don’t know if I will be able to handle it emotionally if I don’t. I don’t think I will be able to run the race without knee pain. But the knee pain isn’t bad enough for me to drop out especially after months of training. Right now I am praying that if it is not meant to be then it won’t happen.

The only things stopping me now would be the stomach flu or a high fever. A death in the family. Possible, but not wished for. Or the race could be cancelled for severe storms. One year they did cancel the race because the heat index was incredibly high and people were dropping like flies. However, we have had a really cool spring so a freak snowstorm would be more likely.

All I know for sure right now is that I am in this knee deep.

Is my run over?

I feel like I am letting go of my dreams.

For a long time I held a handful of colorful helium balloons. Today I let them fly off into the air. Maybe I still grasp a few in my hands. But they are shriveled up like oxygen got in them….breathe…I can’t let go of all of my hope.

Saturday I had a wonderful run. I ran 18 miles without stopping except for a short bathroom, gu, and water break. I was fast. I had the stamina I spent months training for. Life was good. At the end I felt a twinge of knee pain, but it went away after a day.

Yesterday was my first run of this week. I ran 12 miles. The first 6 miles went pretty good with my knee brace on. I had to walk 3 out of the last 6 miles. Afterwards, my knee felt fine.

Today, I decided to go for a 6 mile run but only made 5. The first mile or two I felt a twinge of pain in my knee with my brace on. Then it started getting worse to the point that I needed to walk. I was afraid that by pushing on I would get hurt. At this point, I was halfway home regardless of whether I decided to keep walking or turn around. I tried calling my husband to come pick me up but he didn’t answer.

I was feeling so angry that I wanted to take my arms like a baseball bat and knock over mailboxes. I also wanted to kick over the garbage containers that littered the side of the road. But I convinced myself that further injury probably wouldn’t help my cause. It probably would piss off the neighbors, provide them with entertainment, or I would end up crossing off going to jail off my bucket list.

The marathon is 3 weeks away. I am going to try to take it easy for the next week or two and see what happens when I try running again. Right now I am not even fit to run a 5k.

I am so disappointed. There is no way that I am going to be able to run a marathon if I can’t even run a few miles without pain.

The real kicker is that my knee feels fine right now.

Feeling my age

Today it started. I am starting to feel old.

I had my yearly physical today. This year I didn’t even need blood work, pap, or mammogram. Easy breezy, right??  I have always had low blood pressure and cholesterol. I have the cholesterol levels of a runner. So does my dad, but he never ran. So I don’t think my heart will be failing me anytime soon. My blood work was so good last year that they didn’t even bother checking it this year. 

The doctor asked if my parents were still living. That was one of the scariest questions she asked.

One little thing that I didn’t tell you about my 18 mile run on Saturday was that my knee started hurting again. My endurance was great. I didn’t have to stop and walk. But with endurance and speed comes knee pain for me. It was the same pain that I felt during my first marathon, just not as bad. Besides wearing my knee brace, there is not a lot that I can do. I am worried about the marathon next month. I can clearly see the writing on the wall. The doctor asked me how badly I wanted knee replacement surgery. I told myself and her that if I have knee pain with this marathon, this will be my last. 

I feel like my body is failing me. 

Then I was hoping to decrease my acid reflux meds and instead my dose was doubled. Apparently after treatment I was not supposed to have any acid reflux break through at all. Supposedly, I should not have to take massive doses of Tums and liquid antacid on top of Prilosec. So she doubled my dose and said that if I am still having symptoms in 6 weeks that I will have to be scoped. 

I don’t want to take medicine. I don’t want to get old. I want to have some control over my body. I don’t want my body to control me.

This roller coaster ride

Sometimes raising teenagers is like riding a roller coaster. There are a lot of low points followed by high points. Sometimes you are excited to be on the ride and at other times you feel like you are going to throw up. Just when you have had enough, the ride is over.

That is what life is like here every day. The last 24 hours has been one hell of a roller coaster ride. It started yesterday when Angel received a text from her ex. Or at least someone that she thought was her ex. Her ex saw her perform in the musical she was in over the weekend. He complimented her on her part, made small talk, and left. Then the next day she started getting texts. They were innocent at first with questions like where she was going to college. Then things got strange. He told her that he wanted her back. He wanted to meet for coffee. He still had feelings for her, etc… She didn’t recognize the phone number and his sister said it wasn’t his. She didn’t hear back after she told him to call her to make sure it was really him.

We started to worry that she was getting messages again from Jeremy, the guy that was previously stalking her. He would sometimes pose as a friend through text. He even hacked into her boyfriend’s Facebook account and broke up with her while pretending to be her bf. He is going to the same college as her bf which resulted in a fist fight. He threatened to rape her. At that point, Paul called him and told him never to contact Angel again. And Angel told this person where she was going to college. Uugghh!@$#

Yesterday evening she called her ex and he said that he hasn’t been texting her. He thought it may be a girl that liked him. Angel did ask in the text about the conversation that she had with her ex at the show. The person knew  about it, but it was a very general conversation. The girl went with her ex to the show. When her ex confronted this girl, she got really upset. Everyone is denying sending the texts. At this time we think it may have been someone else and not the guy we threatened to get a restraining order against. But we really don’t know. It could be anyone. 

I thought that would be it for the day until we got a knock on the door last night at 10:15 PM. Apparently, Alex’s ex-friend went for a walk last night and didn’t come home. This isn’t the same friend that ran away at the beginning of the school year. This is the long time friend that he is no longer allowed to see because his friend got expelled from school for drugs.

This morning my son got a text from the mother of his ex-friend saying that her son was still missing. She asked Alex if he knew where her son was. Alex replied that he didn’t have any contact with him for the last month since they were not allowed to talk anymore. At this point, she called my son a selfish piece of shit, etc…for no apparent reason.. She was angry and worried. Then Jake’s mom got involved. So this started a round of texting for hours while I was at work trying to actually work. Work was crazy busy. I was dealing with phone calls at work, on my cell, and texts at the same time. Eventually the boy returned home. I hope this is the last we hear from them, but I don’t think so. 

Then my son called me from school saying that he didn’t turn In an assignment. We have been monitoring his grades and missing assignments online. That is a real mess since he missed 3 days from being sick. We don’t know what has been turned in because they are still showing up as missing even if they were turned in. My son said that some were turned in but not graded yet. I love having the ability to see grades online, but it is enough to drive a parent crazy. Unupdated notifications about missing assignments and poor grades blow up our emails. Then the status is not updated for weeks sometimes. 

Then I received another call from the school today. Damn, I cringe when I see that number. Angel was calling for me to pick her up from school. She donated blood for the first time today. Afterwards she felt nauseous and dizzy. She almost passed out in class. This may have been caused by being at the bottom of the weight requirement. She didn’t feel well and couldn’t drive home. I had to pick her up from school. 

Then I heard from the school one more time. This time it was good news. Arabella was chosen to be a foreign exchange student for one week in Japan. It has been a dream of hers since I don’t know when. Last year we hosted a foreign exchange student from Japan for a week and loved it. 

That has been my 24 hour teenage roller coaster ride. I don’t particularly like roller coasters. I like to watch other people ride. 

Remembering to forget

I love writing a series about the past, but I don’t like that it prevents me from talking about the present. But then I figured it is my blog, I can write about whatever I want to.

I remembered so much over the past couple of days just by thinking and writing about things that I haven’t thought or wrote about in awhile. Things that are very elementary, like grade school. I remembered that Matt used to stand by the school and flap his hands. I remembered how he used to laugh after attacking someone. I even remembered the signals of his agitation before he attacked someone. His pupils would constrict. His eyes were wild. His teeth and fists would clench. His face and ears turned red. 

Sometimes I think that we have to remember things in order to be able to forget. It’s a strange concept and I can barely grasp it.

A couple of days ago, my mother-in-law Martha turned 67. It was a warm day that promised evening storms. Arabella and I went to see Cindy’s son perform in a middle school play. While I was at the show, I felt a strange mixture of emotions. I suddenly felt like time was going by very quickly, quicker than it should. While I was at the show, I found out that Martha’s brother died (on her birthday) from lung cancer, the very disease that will eventually claim her. Rain came down and thunder cracked like the striking of a big clock. It was pouring after the show ended and lightning zigzagged across the sky. I ran across the parking lot in the pouring rain in search of my car laughing as I was getting drenched by the cold rain. 

I drove 20 miles home in a steady downpour. It wasn’t raining cats and dogs, but it was sure raining worms and frogs! Arabella was angry with me for not stopping for ice cream. It was late and I wanted to get home. I wanted to make sure that Paul was okay after hearing the news of his uncle, although they weren’t very close. Arabella argued with me. She told me that I was old and I couldn’t relate. She said that my life was boring like an old black and white photograph. I have done my job right, she knows nothing about my life. Someday she will read this and understand.

Last night we took Martha out for her birthday to see Paul and Angel perform in the musical. Yesterday was the first time I saw Martha without hair. She looked very gaunt, frail, weak, and tired. But she was not coughing, gasping for breath, or wheezing at all. Next week we will find out if the combination of chemo and radiation did anything to shrink the cancer in her lungs that spread to her brain. Martha kept saying that she was going to fight it, but said good bye like it was the last time she was going to see us. 

The show itself was great. Angel was able to do her high soprano singing this weekend since she was feeling better. Paul danced around on stage like he was a young man in his 20’s. Everyone found it hard to believe that he is pushing 50. I married a man that is 6 years older than me. He always tells me what I have to look forward to.  Isn’t that wonderful? Lol. Soon I will need to wear glasses to read things and I will probably lose my hair. Geez, I hope that I don’t experience age exactly the way he does.

I am getting excited that the marathon I am running in is a month away. I ran 18 miles today and feel great. I put on a total of 30 miles this week. I feel strong. I feel ready. I feel sore.

That is about it here. Tomorrow I am going to get back to the series.

Monday’s dirty laundry

I started the week off by having to buy a new washing machine. The last couple of weeks it sounded like a gun range in my house every time I threw in a load of laundry. Bang, bang, pop, pop, pop. Then this morning it almost started on fire. Good thing I didn’t throw in a load and leave for work. Stinky smoke billowed out of our utility room. I sure hope this is not an indicator of how the rest of the week will go. Lol. 

Yesterday my mom came over for supper. We spoke about my mother’s childhood years. She said that as the second oldest girl, without older brothers, it was her job to assist her dad in his work. His job was very labor intensive. She spent the summers picking cucumbers to sell to help support her family. She had to help her mother wash clothes, including cloth diapers every day, in a basin with bleach. They did not have a washer or dryer. It sure makes me appreciate my broken washer, or should I say being able to afford to buy a nice new front loader. 

I wish that my mom would write down her stories so I could understand her life more. Just like I hope someday my kids will read my writing and understand me more.
Then we talked about Matt and parenting an autistic child in the late 70’s. She said that she was thinking about writing down everything that happened to help herself heal. At times like this, I am so tempted to tell her about my blog but didn’t. She said that she is helping herself heal by helping others that are struggling. She has more compassion than anyone. She said that she wouldn’t have been able to make it through without her faith in God.

We spoke about the abuse that Matt suffered at the hands of the school. She said that she only saw Matt cry twice in his life. He cried when he spoke of what happened at school. It was absolutely barbaric. The teacher had him sit underneath her desk while she sat at her desk. If Matt touched her, she would kick him. One teacher held him face down on the floor while the other sat on his back. He couldn’t breathe. That is the story he cried about. There was a disabled child that died that year from a teacher that used the same discipline method.

We spoke about my mom’s church friends. I was not aware of this, she said one time when Matt swore in church her friend hit him. Another friend told my mom that they needed to beat it out of him. Oh, my dad did try to beat it out of him. It didn’t work. My mom spoke of when my dad kept hitting Matt over and over trying to beat it out of him. I told her that I remember that day clearly because it was my first childhood memory. I remember the screaming of my dad and Matt. I remember the plunking noise of Matt being knocked back and forth against the cupboards in the kitchen.

My mom said that Matt crawled around on the floor like an animal. He spent a lot of time screaming after he quit talking. 

Later on he became fixated on hurting little girls and I just happened to be the only little girl around. My mom said that she felt terrible that I had to suffer. She spoke of the birth of her first grandchild, my daughter Angel. She said that she was excited and filled with joy the day Angel was born. But her second feeling was horror because she knew what that might mean.

Matt did hurt Angel. What I didn’t tell you was that the two years leading up to the attack, Matt became obsessed with the thought of hurting Angel. He ruminated about it. He asked questions about what it would be like if he pulled her hair, twisted her arm, hit her, or held her head underwater when we were together. My mom and I were worried. I had to take a step back from Matt.

When Matt hurt Angel on her 4th birthday, my mom went in the other room and cried. She was so upset that she didn’t talk and was inconsolable. Luke took Matt home and the whole time it was like he was possessed. He laughed. The voices in his head were whispering over and over out loud. I almost forgot about his maniacal laughter after hurting someone. I could only describe it as evil or demonic.

My mom was at her breaking point. We had to part ways. She quit going to church for the next 3 years. She was angry at God for allowing this to happen. 

We have forgiven Matt for all of the things that happened. But it has been a long road and painful process.

Tomorrow I am going to start another autism series. I have a copy of Matt’s clinical diagnosis report from the early 80’s. I have been holding on to it for the last 20 years. I am going to share it with you along with my feelings about what was written.