psychosis

Residential care

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The first couple of weeks at residential were really rough. I was afraid that Arabella was going to get kicked out of the program. They told us while she was on the waiting list if she did any self-harm, such as banging her head against the wall like she did at her second inpatient stay, they would release her. She knew that because she was part of that conversation. She hated it there at first. She didn’t have any friends. They purposefully kept her alone to increase her tolerance in a safe environment.

We received nightly calls from her which were not always good. She begged us to send her expensive gifts overlooking the cost of treatment. She bragged about her arguments with staff and how she broke the rules. They had a hard time waking her up in the morning like we did. It wasn’t going well because she didn’t want to be there. She argued with us and hung up on us on multiple occasions. I was always waiting for a call that we should come pick her up and there was nothing they could do for her.

The first call from the therapist was rough because she said that Arabella made allegations of abuse against us which they had to report to social services. Nice! What were they going to do anyway? Take her away? I jokingly said to my husband that maybe then the county would pay for her residential treatment. But nothing ever happened.

Arabella caught on fast, but she couldn’t focus. She was easily distracted which lead to a diagnosis of ADHD. She improved greatly in the program after she was treated for this. I felt like this was a turning point in her treatment. She wanted to be there after that and wanted to get better. She could finally focus on studying and new hobbies.

Some other strange things happened while she was there. Arabella went into a dissociative state and freaked out scaring other patients. She didn’t know who she was or where she was. In this dissociative state, Arabella ate plastic which prompted more testing for pica. Dissociation can be a symptom of borderline. After this she had every single diagnostic characteristic of borderline. I wondered if this had anything to do with her eating nonfood items before. I was completely puzzled.

Before this I did not know she experienced dissociative episodes. She admitted to dissociating in the shower. She also said that she had episodes in her room where she looked down at herself and thought that she was a very bad person that didn’t deserve to live or a very good person. I found it very hard to understand and didn’t even know it was possible or likely without experiencing major trauma.

After the treatment for ADHD and after her dissociative episode ended, there was a time of tremendous growth. She started working on learning and applying skills. I guess what I’m trying to say is that we were very fearful at first about whether or not this treatment was going to work. We had a lot invested in it and not just financially. I think our fear in early treatment was normal, we just didn’t know what to expect.

I think the residential DBT program was a lifesaver. It gave her (and us) more tools to work on some of her mental health issues she was struggling with. But we were also worried about how things were going to be when she got home. Would the skills carry over? Would she be able to live independently or would she need lifetime care? Again, we just didn’t know what to expect in recovery.

Autism heard

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Matt was a normal baby, very bright actually. He knew the alphabet and was saying simple words at age 2. But that all went away.

Even his birth was not a normal event. After crushing back labor, he entered the world with broken bones.

One day the words went away. He stopped talking. He started having nightmares. He screamed instead of sleeping. But I was too young to remember that.

How could such a brilliant mind be stunted? As an adult he can neither read nor write. He cannot solve simple math problems.

For a long time, Matt did not even talk. But the strangest thing happened. He started talking again. But not in the same way that you or I do. He got his pronouns all mixed up. Matt eat..he never referred to himself as I. He also has a speech impediment that makes him difficult to understand by those who did not know him well. This seemed to frustrate him in his younger years and he hit his head with his fist.

The things he said didn’t always make sense to us.

For awhile he repeated the same song in a monotone voice…hands on the table won’t come off, now the hands are stuck on the beard. He would scream if he saw a man with a beard.

But a man with a beard never hurt him.

He was also terrified of tires. He would kick the tires and throw stones at them if people showed up in their cars.

He also heard sticky noises. He would smack his lips to mock the sounds he was hearing. It was a disconcerting sound like chewing with your mouth open times ten.

He also heard the sound of girls laughing at him. Back in the day, he was sent out to recess with the rest of the kids. The older girls teased and mocked his bizarre behaviors. I was there and saw it but was helpless to do anything about it. I didn’t fit in with the other kids because they made fun of my brother. He was an easy target. It made me angry all of the time. But I wasn’t allowed to feel anger. Anger was wrong and it upset Matt. Angry emotions set Matt off and he would hurt himself, my mother, or me. So I withdrew to survive.

Recently Matt was taken off of his anti-psychotic medication due to liver strain. He started to hear voices again. This time the voices were telling him to hurt my niece. But not just hurt her, to kill her.

Fifteen years ago, Matt hurt my daughter. The voices told him to do it. He started to obsess about her, so we limited their contact at the time. It was on her 4th birthday. We didn’t think it would happen…

Afterwards, he muttered to the voices for hours and couldn’t be brought out of it. He didn’t respond when spoken to.

For many years after that my brother was not allowed around my children or any children. He became home bound and isolated from the general population. If it happened again, he was going to be locked up with the violently mentally ill. He started a new medication and silently gently the violent whispers faded away.

My mother asked lately if he was misdiagnosed. Is he schizophrenic too? Or is this some unusual symptom of autism? The doctor said that at this point it really doesn’t matter since it will be treated the same way.

Matt was violent before he hurt my daughter. If we were vigilant enough, we could see it coming on. His jaw would clench, his face contorted, his pupils constricted, and his ears turned bright red.

Sometimes after he hurt someone he seemed very upset about what he had done. Other times he would laugh. It was such an evil laugh that a few asked and we wondered if it was possible that he was demon possessed.

He struggled to differentiate between reality and what the voices were telling him. The voices are very frightening to him.

I think he always had auditory hallucinations, but couldn’t verbalize it to us.

It made me wonder…what if other violent autistic nonverbal people also hear the same voices but can’t tell anyone? How terrifying that would be. What if they think they are being hurt or are hearing a voice that tells them to hurt someone or themselves?

If I would go back to school to get a Master’s degree or PhD in Psychology, I think I would devote time researching this. I couldn’t find a lot of information online. But what is there to find if those who suffer cannot communicate?

This has been incredibly hard for my mom. She can’t mention my niece’s name around Matt. He obsesses about her. He is angry if he thinks that she likes the same things he does and talks about hurting her.

It is hard for us all. I love my brother and don’t want to see him suffer. I love my niece and I don’t want her to be hurt.

How long will it take for the medicine to work?

 

The same old demons, shaken and stirred

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Once again, I don’t particularly feel like writing. But here I am sucked into this strange compulsion to tell my story.

My youngest daughter, Arabella, was planning on having a friend up north with us this past weekend. We had to cancel those plans. The old Matt was back in town.

When Matt went off of his medication, the voices came back…the ones that told him to hurt little girls. He said that he wanted to kill our 10 year old niece. He said the voices scared him.

Matt was going to be up north this weekend. Arabella wanted to bring a friend that had long glossy hair down to her waist. She was the kind of girl that Matt might want to wrap his fingers around. He might want to pull her hair and make her cry. Or maybe he would sink his nails into her skin. I imagine those things because those things are possible.

Arabella didn’t understand why I changed my mind about letting her have a friend up north. She never saw the old Matt. She didn’t understand not being able to have friends over like I did. She was angry at me.

At first, I felt a great sadness over the whole situation. But it is strange how soon it became normal again. The agitated Matt…the man with fire red ears and constricted pupils muttering like a mad man. The Matt that flapped his hands together against his chest and paced the floors. The same Matt that hurt me…my family…my mother…my friends…my oldest daughter.

Isolation…but this time it won’t be me. Luke will have to spend some time away. He can’t risk his daughters being hurt.

I feel his pain.

I know what it feels like to see someone I love hurt by someone I love…the conflicting emotions of anger and compassion.

Matt’s needs were always and will always be more important than that of us, his siblings.

All of the old feelings popped up again. It probably didn’t help that I was already diving into it by reading old journals.

I was stirring up old demons while being shaken by the new ones.

I feel bad that I probably won’t be able to see Luke and his family much this summer. I hope that this passes soon now that Matt is back on his medicine again.