Gratitude week 28

  1. Summer! The weather has been perfect.
  2. For my days in the sun spending time on the sailboat.
  3. For a sense of humor. Our family went sailing on the 4th and I brought a whole stack of beach towels. One of the towels was of the British flag. So yes, I had a British flag towel flying off the back of our boat on Independence Day. Whoops!
  4. For the first pedicure of the year.
  5. For the baptism of my brother and niece today.
  6. For the start of my birthday week.
  7. I received my allergy testing results back. I can have eggs, blackberries, kiwi, rice, crab, and perch again! Yeah!! And my dairy allergy dropped from very high to low. There were a few things that didn’t change and a few new things were added like cranberries, but overall I am very happy with the results.
  8. For working hard and keeping busy yet still taking time to relax and read.
  9. Healing and growth.
  10. For having the strength to withstand difficult times.

inflamed

I’m sick again. This time it is worse and it hasn’t gone away.

It started Wednesday morning. I woke up having to run to the bathroom. I felt nauseous too but didn’t throw up. I was tired and had to lie down to rest in the morning. By the afternoon, I had a horrible stomachache and muscle cramps. Sorry Jillian Michaels but I was cursing your name. The day before I did a new workout video, or should I say tried to. It was so difficult I could barely do it. My whole body ached. I would’ve run outside but we are back to winter in Wisconsin, so yeah.

I also blamed it on the night before. I ate chili and a fake grilled cheese sandwich for supper. I tried to keep my portions small because I am allergic to tomatoes, eggs, and baker’s yeast (bread). Plus a lot of chili beans are a no-no for my SIBO diet. My diet is so limited it is hard to eat with my family. Or maybe it was food poisoning or stomach flu, although I was the only one sick.

By the afternoon, I rated my stomach and body ache pain at a 7. I decided to take my temperature and discovered I had a fever. Everyone was freaking out because of the coronavirus and told me I needed to call the doctor. I decided to wait until the next morning because it was after office hours and maybe I would feel better the next day. Even during the night I was up every hour or two to run to the bathroom. I’m not going to lie, this has been miserable.

I called the doctor’s office and after being screened by the nurse scheduled an appointment with another doctor for later that morning. I struggled to take a shower and get dressed. I wanted to let you know how I felt at my worst but I couldn’t even sit up to do my puzzle because I was in so much pain. I couldn’t think either.

Paul has been wonderful and took me to my appointment but I would not allow him to go in with me. He is over 50 with high blood pressure and I did not want him to risk his health for mine. Outside of the clinic there was a tent set up for COVID testing. There was someone standing outside the door to the clinic in full protective gear with a clipboard who allowed me in when I told her my name. It was like I was famous getting VIP access to a club.

I entered an empty clinic, checked in, and was called back right away. Everyone at the clinic wore scrubs and a mask with a full face visor over it. It was hard at times to understand what they were saying. There were signs on the door that said dirty room or clean room. The room I went in had nothing on the door. I heard people coughing. On the way out I saw several sick and scared looking people.

I had a whole array of tests done. I was even tested for COVID although the doctor did not think I had it. They took a large cotton swab which they swirled back inside of each nostril. It wasn’t as bad as I thought it would be, but I just got my blood drawn and was more anxious about that.

It’s day three now and I’m still sick. I do feel better than I did on day 1 or day 2. Thankfully my COVID test came back negative. But several tests came back showing inflammation. The doctor now thinks I might have colitis or Crohn’s. I have all of the symptoms. So Tuesday I go in for my first colonoscopy.

I know it sounds crazy, but I probably wouldn’t have called the doctor if it wasn’t for the coronavirus. I was worried about getting other people sick. I probably would have dismissed it as the stomach flu or food poisoning like I’ve done before although no one else in my house ever gets sick. I struggled with lifelong stomach/GI issues that I brushed off as normal for me.

It seems worse this time. Maybe the SIBO and parasitic inflammation that the antibiotics killed was masking other problems. I don’t know. But hopefully next week I will get some answers. It’s hard not feeling well and not knowing what is wrong.

 

 

Last summer, this summer

Maybe I was naïve to think after my son graduated from high school last year that it would be smooth sailing. Sometimes I can be like that, overly optimistic. And things were good for about a month. Then my life fell apart again in a different way.

It was last summer that my health went to crap. I found a new doctor and she was appalled that my last provider had me on 2 pills a day for a duration of 5 years for acid reflux. These were pills that should be taken once a day for a course of 10 days. She took me off my medication and had me scoped. She told me to take a few Tums for my gushing gut wound and sent me on my way. Besides being anemic nothing else was wrong with me.

But something was wrong with me. I’ve even had a doctor once say it was all in my head. She only said that once because I never went back to her again. Please if it is all in my head, fix it.

After being very strongly encouraged by my mother, I decided to go to a wellness clinic for allergy testing. I was found to be allergic to 22 foods. The biggest culprit was dairy. I said good-bye to my favorite comfort foods. But I still wasn’t feeling better.

I scheduled an appointment with the wellness nurse. She said I had a level of inflammation in my gut that she has rarely seen before. I had more tests done and started a treatment plan.

In the meantime, I discovered that I have Complex PTSD from childhood trauma. I have been seeing a great therapist. I have been working through my lifelong struggle with depression, anxiety, and insomnia. Meanwhile my life fell apart in other ways with family problems that really had nothing to do with me.

Over a month went by where every single night I did not sleep the full night. Some nights I would just get up and sit looking into the darkness. Nightmares were common. If only I could sleep then my problems would be solved. With help from both my therapist and wellness nurse, I am now able to sleep a couple of full nights a week. With sleep, my mood improved greatly. I was feeling a little less like a zombie.

Once again I become overly optimistic. I had more tests done. I’m getting better. I was going to finally be able to do the 30 day detox diet and get my allergies retested. I imagined myself this summer eating my favorite foods again. This summer it was going to be cheeseburgers, mac and cheese, pizza, cheese, cheese, cottage cheese, yogurt, cheese curds, lasagna, and cheese. It was so close I could almost smell it.

I went into my follow up appointment last week with great expectations only to have them dashed. My results showed that only 5% of the healthy population got test scores like mine. I have several parasites. I also have Small Intestine Bacterial Overgrowth (SIBO). This means that I have good bacteria in the wrong place which interferes with food absorption. This could explain the anemia.

So now I am on an even more restricted diet. Limited sugars, starches, carbs, processed food, and fiber. Too much of these foods can make the bacteria grow and make me feel sick. Pretty much the only thing I can eat now is meat. If it weren’t for living with a meat and potatoes man and ham I would probably be a vegetarian. This has really taken the joy out of eating.

The nurse also gave me a prescription for an antibiotic to kill off the parasites. It will help a little with the SIBO too. She said she only prescribed it to two other people but thought it was necessary in my case with my chronic gut issues. I was a little terrified to take the first pill. I read about parasite die off and it sounded miserable. So far I don’t feel great, but I don’t feel awful either.

It was hard going in with the expectation of good news. But I am on the road to recovery however long that might be. I know what I’m up against. It’s good to know it all isn’t in my head.

Trust in healing

Last week I had a follow up appointment with my wellness nurse. Since my last appointment, my acid re-flux went away. I’m attributing it to avoiding the foods I am allergic to. However, other symptoms did not go away which the nurse thinks are stress related.

I went into the wellness appointment thinking I was going to start a 30 day detox diet. Incidentally, our church is starting the new year off with a short period of prayer and fasting. I decided not to participate because with the detox diet I was already going to have to give up a lot more foods in addition to coffee and alcohol. I already gave up my favorite foods last year. What more was there to give up? It would be like giving up meat for Lent if I was a vegetarian. What’s the point?

At my appointment, the nurse decided I was not ready for the detox diet. I decided not to participate in fasting anyway, which is unlike me. You see, I am really good at denying myself things. In fact, I excel at it. I could probably go a week without eating, whip myself, and finish the week off with a marathon.

Self-discipline and pain come easy for me. What is really hard for me is trusting, allowing myself joy, and accepting love. For most people it is the other way around. But I did what I had to do to survive and I got used to living there.

I’ve never really felt God’s love. I don’t feel his joy and peace in my life. Everyone says that I need to pray more, read my Bible more, and forgive. I do all of those things and feel nothing. I have to believe more and have more faith. Guess what? Still nothing. So I am asking God for a specific sign to see if he really loves me.

If God loves me why didn’t he protect me from the things that happened to me? It’s hard to trust God. It’s easier to trust me. I was the only one I could rely on.

In the meantime, the wellness nurse put me on St. John’s Wort and CBD oil among other things. If my body can be calmed in the next couple of months, I can start the detox diet. Then after that, I can have my allergies retested after I wipe the slate clean.

I can’t stress enough the importance of seeking therapy and a wellness program especially if you experienced childhood trauma. Myself, I fought this for a long time. I figured if I survived without anyone’s help, then certainly I don’t need help now when my life is going good. I justified having insomnia more than restful nights and nightmares more than dreams was normal for me. None of my symptoms were normal, yet nothing was ever wrong with me.

If you have lived through childhood trauma, it can be very frustrating if you are trying to heal. There are not going to be a lot of people who can relate. Well meaning people may at times make you feel worse. Perhaps you have trust issues that people say you should somehow just get over. That happened years ago, let go of it and get on with your life. I wish I could. Every time I try to outrun it, it haunts me more.

Some people have told me I should be happy for all the blessings in my life. This only makes me feel worse. I see my blessings but something prevents me from feeling the joy. Then I feel guilty because the outer things don’t make the inner me happy.

Is this all there is for me? Am I only going to be able to see my blessings by pressing my face against the smeared glass window of this zoo I am caged in? Or will I be able to somehow some day touch it? Feel it?

Sometimes I feel blamed for not being able to get over the things that happened to me. It’s incredibly hard to ask for help or trust others (even God) to guide me in this healing process. It’s hard not to feel frustration that the progress is very slow. I wish I didn’t have to fight so hard to be healthy.

I feel like an 80 year old wise woman and 5 year old little girl are living in my body simultaneously. Thankfully, the wise old woman is able to filter out comments that are hurtful and realize that people are only trying to help. But the 5 year old is scared and I can’t get her to stop crying.

Update

It seems like I am blogging less and less. This is not what I want, but there are a lot of things that I don’t want happening right now.

Last week went by in a blur. It’s been a whole week since the salvage yard came by and picked up not one but two of my son’s cars. One has been dead for a long time, the other was at the mechanics half the summer and was deemed unfixable. The little bit of money we got for them was gone the same day because the dryer broke later that afternoon. Tuesday the dryer was repaired. Wednesday I dropped a weight on my foot at strength training class. Thursday I woke up to a flat tire on my car. The mechanic was throwing a customer appreciation party when I got there. I am suspicious that they were throwing it because my son’s car was towed out of there never to be seen again.

It’s a sad time here. The boats are coming out of the water this week for the winter. Last week was brutal. We got tons of rain and broke the record for the wettest year ever recorded in history. We still have 3 months of rainfall left on the year. It was a rough summer. A lot of people had to change plans because of all the flooding and rain. We only had around 6 weeks of warm weather. So we have to go into the dark days feeling like we didn’t have much of a summer this year.

I haven’t been feeling well. I think I am still anemic. I don’t have much endurance at all anymore. I’m still having insomnia and nightmares. Pretty much everything I eat goes right through me. I feel nausea and acid re-flux every day. I’ve been sticking to my diet too. I haven’t had dairy for 6 weeks and avoided all of foods I am sensitive to for 2 weeks.

It’s been killing me to watch my friends drink beer and eat pizza while I can only have the salad bar. A salad without cheese, eggs, tomatoes, and dressing. Plus I still feel sick. Some days I can barely eat I am so miserable. There is nothing I can eat that I want to eat anyway.

It’s been emotionally challenging being on a special diet too. I feel like an outsider looking in. I feel lonely and left out. I don’t want to go out to eat. I don’t know what to make for supper anymore. It kills me to make and serve dishes I can’t eat. Maybe it wouldn’t be so bad if I actually felt better. It’s been dragging me down. I’ve been having a hard time with this. I feel so angry and impatient with myself for feeling sick. But it is important to keep to my regular routine whether I feel up to it or not. I haven’t cancelled any plans, although some days I don’t feel like getting out of bed. Friends and strangers alike have been coming up to me and ask me if I am alright. I hate feeling weak.

The good news is that tomorrow I have an appointment set up with a health and wellness doctor. Maybe I can get my body back on track again.

Other than that, I have been doing a lot of running around now that my son doesn’t have a car. I have 4 teenagers in the house. In the morning I drop the girls off at school then come back to take my son and his friend to work. He practically lives here too. Then this afternoon I dropped my daughter off at work, picked my son and his friend up from work, and picked our foreign exchange student up from after school sports. Plus I went grocery shopping, have to make supper, clean up afterwards, and then go pick my daughter up from work.

Every day is a variation of picking and dropping off kids. I feel very busy but like I don’t get anything important done. It’s been frustrating and I feel like blogging has been the last thing on the long list lately. I am going to try to blog more and be more positive. We’ll see what happens.

My intolerance

You may have remembered that I said I was going in for allergy testing a couple weeks back. Let’s just say that now I know why my mom wanted me to go in for testing. Something about misery loving company.

Although I don’t have any allergies that could send me to the ER, I was found to be intolerant of several of my favorite things. I guess the whole general premise is that if I am able to give up the things I am sensitive to, then after a year I may be able to reintroduce them into my diet.

The top foods that I am sensitive to are dairy, chick peas, and brewer’s yeast. I wasn’t expecting it at all. So no more cheese or beer for me for awhile. I might as well just exile myself from Wisconsin. Gotta love the dairy state. Not to mention that beer is pretty much a staple here as well.

I decided that after the Oktoberfest party this past weekend, I was going to give up the things I am most intolerant to. Then I will work on things that I have a minor intolerance to such as black pepper, rice, eggs, tomatoes, peanuts, almonds, crab, turkey, and baker’s yeast (breads, pizza crust, etc..). Seriously, what can I eat??

Friday night Paul made his famous homemade pizza. Then I sampled almost all of our friend’s homemade craft beers at the party on Saturday.

The party went by way too fast and soon Sunday morning came. I drank my coffee with my new hemp dairy free creamer. Yeah, my coffee tasted like rope.

I am a total cheese addict. I honestly don’t think I’ve gone a day without dairy in the last 20 years. It has been really hard. Although I do feel a lot less bloated.

Yesterday I went to a health conscious food store with my mom. She is dairy free too. I felt better after that. I was able to find some goat’s and vegan cheese. I was even able to find mac and cheese. Now if the stuff tastes good, that will be a bonus.

I am hoping to feel better and have less stomach issues. Maybe after I get this whole food thing figured out, I’ll go in for hormone testing. Two weeks of the month are total heaven and the other two weeks are complete hell. Thankfully the 50k will be in the good 2 week span. But I am back to having insomnia again. I haven’t slept for more than a few hours at a time over the last several days. I’ve been trying hard not to bite anyone’s head off, especially when I see them eating cheese.

A cold craft beer with a side order of cheese curds sounds so nice right now. I’m sure it will get easier and I will feel better. But right now giving up my favorite things has not been a lot of fun.

Allergy sufferers

This morning my blog friend LA wrote a post that really hit the nail on the head for me about allergies. LA was on a train and sat next to a woman who said she was allergic to LA’s perfume. LA got up and moved seats. But should LA have catered to the allergic woman or should the allergic woman offered to move? Whose shoulders does that responsibility fall on?

All my life I had to cater to my autistic brother’s allergies. He would become violent if he was exposed to allergens. That is what I was always told and that is what I always thought. But as I have been writing my book, in retrospect I have been able to see the situation with my blinders off.

It’s not that I don’t believe that Matt has allergies. I find it hard to believe that allergies could cause someone to act violently towards another person. He doesn’t sneeze, cough, or break out in a rash. It is possible that an allergen could cause a physical symptom that causes him to be irritable and lash out. But I no longer believe that smelling someone’s perfume could cause him to be violent.

Matt acted violently because he was severely mentally ill. He needed to be told that his actions were wrong whether he was capable of controlling them or not.

Meanwhile, we did crazy things to cater to Matt’s allergies. I wasn’t allowed to wear perfume. My parents got rid of their wood stove. Newspapers weren’t allowed in the house. No one was allowed to park in the garage for awhile because of auto exhaust fumes. My parents replaced their new curtains (new smells) with old blankets. We had to evacuate if the neighbors were spraying their fields. There were many other things as well that were very inconvenient and extreme.

But, guess what? With all of our catering, Matt was still violent.

I don’t cater to everyone anymore. It was hard at first since it was so ingrained in me to do so. Now if I host a party or holiday and I am expected to do all of the preparation, I make what I want and tell people if that doesn’t work for them to bring what they can eat for themselves. Believe me I’ve tried and I just about went crazy. This person is gluten free, the other is dairy free, another black pepper free, pork free, organic only. I wish I was kidding.

I’ve learned that the best way around it is to tell everyone what I am making and if that doesn’t work for them they can bring their own food (or host the party themselves!). I’ve made peace with the fact that I can’t please or accommodate everyone.

I do feel bad for people who are miserable from allergies. But it is also inconsiderate to  expect others to cater to you if your allergy is not life threatening.