Gratitude week 18

Once again, this past week has been really rough. I felt very sick for 10 days. I was even up 3 to 4 times a night to run to the bathroom. I got very little rest and my body feels weak. The preliminary test results are showing that I have some form of colitis.

Sadly, the doctor’s office called me on Friday a few minutes before closing. When I called back I got the answering service. I didn’t even receive a call back until 10 on Saturday morning from the nurse. She said the doctor wanted to treat me with a steroid but he wasn’t going to be able to talk to me until Monday morning.

The sun was shining and I felt pretty good yesterday. I probably overdid it with the yard work. I wanted to go for a run today but was so weak and tired I could barely walk. I started to feel pretty down. My body is not doing what I want it to do. How long will it be before my muscles start to atrophy? I take pride in long distance running. I spent the last 10 to 15 years toning my body. My arms have great definition for a woman in her mid-40’s. It makes me sick to think I might have to throw away all the work I put into being athletic.

I started to worry that I was going to become a burden to my family. I like taking care of things, not having others take care of me. I have plans to travel and more races to do.

Then I started to panic today because I realized the doctor intends to treat me with immunosuppressant drugs. I would do ANYTHING to not have to suffer through another episode of the kind of pain I just experienced. However, now is probably not the best time to be on immunosuppressant drugs.

This past week someone from our church died from the coronavirus. He was my husband’s age. I would be willing to go on medication to suppress my immune system to never go through what I went through again. But I am afraid.

Also, what about working?

So, I am going to try to be grateful for 10 things this past week….here goes..

  1.  I should have my health questions answered this week.
  2.  My aunt Jan sent me a get well card in the mail. It feels good to have people thinking and praying for me.
  3.  My husband helped take care of a lot of things while I was sick.
  4.  My daughter was very behind on school work and my husband helped design a schedule to help her get caught up. Plus he helped her with Algebra 2. He is a great teacher and great at math which I appreciate since I am not.
  5.  The year of April finally ended.
  6.  The weather was perfect this weekend which always makes life better. Winter will be back tomorrow and for the extended forecast. Yuck!!
  7.  I felt pretty good yesterday.
  8.  I bought a funny shirt. It says Pink Freud, The Dark Side of Your Mom. Consider it a Mother’s Day gift for myself. I love Pink Floyd and went to college for psychology, so Freud..
  9.  I broke down and ate some macaroni and cheese. It was the first time I ate dairy in 9 months. I figured I couldn’t feel much worse than I was already feeling and I was right.
  10.  With technology, I am still able to do a lot of the same things everyone else is doing. I am not at home by myself missing out. I can check out new shows and movies. I can still see my mom and daughter although I cannot visit them.

Gratitude week 17

The past week has been very rough. I guess I’ve been saying that a lot lately.

I am now on day 6 of being sick. I haven’t slept much because I am up multiple times a night to use the bathroom. I am not well. I’ve had to take all my goals, dreams, and hopes for the future and put them on a shelf. Or maybe I have to give them up forever. I’m starting to grieve that my old life is probably over.

There have been times I’ve curled up in pain in a fetal position on the floor tears cascading from my eyes. I’ve had a fever off and on and I feel it starting to climb back. I don’t know how I am going to make it through the prep tonight for my procedure. I’ve been thinking about that a lot, death. Sometimes it feels so close that everything still left inside me tells me to prepare.

I don’t have much time to talk, nor much energy. So, that being said, here are my ten things I’m grateful for this week.

  1. Soon maybe I’ll finally have the answers for what is wrong with me.
  2.  I reached over 750 followers on my blog. I am thankful for you my readers and friends who are supportive of me telling my story.
  3.  I am thankful for my husband. He is the best man I could ever ask for. Please keep him in your thoughts and prayers because he is really having a hard time with this.
  4.  I am grateful especially for my children, my mom, my brothers, my aunt Jan, and my best friend Cindy. They have been checking in on me so much that I can barely get any rest.
  5.  I am thankful for my pets, especially my cat. He follows me around everywhere.
  6.  I am thankful for the deer that grace my yard. Watching nature keeps my mind off my pain.
  7.  I am thankful for finally getting some weather that makes us think of spring.
  8.  I am grateful I tested negative for COVID-19.
  9.  I’m grateful I’m not missing much because I’ve been stuck inside sick.
  10.  I’m grateful that my procedure is very early tomorrow morning. I don’t have to wait much longer to hopefully get some relief.

I need to take some more Tylenol and eat some chicken broth. Prep starts in less than 2 hours. I will try to update you in the next couple days. Thanks for your thoughts and prayers.

purpose

What is the purpose of struggling?

I’ve felt sick like this many times before. There were times in my childhood where I was in so much pain that I didn’t eat much for several days. I was deemed a picky eater. My parents yelled at me, at times forced me to eat until I threw up, and threatened to take me to the doctor. I really wish they did. Maybe I wouldn’t be in the predicament that I’m in now.

Maybe if I was an only child things would be different. My brother had special needs so mine were ignored. It was selfish of me to take care of myself. I mean, look at my brother.

I can’t blame my parents for everything. I once told a doctor about the things I was experiencing and she told me it was all in my head. Maybe it was all in my head. Maybe it still is. I have that fear. Maybe I will go in for the colonoscopy and they will find nothing wrong with me. But if it is in my head, you better lock me up because I can’t live this way much longer.

At its greatest intensity, the stomach cramps feel like I am in labor. That being said, I didn’t really get a lot of sleep last night. I was in too much pain.

What does this mean for my life going forward? I’m thinking about giving up running. I am not well. My running really took a downhill (or uphill) turn last year. But I did finish a 50k. I achieved everything I wanted to. Oh my gosh, will my life come down to walking and yoga? Shoot me now!

I have to think this physical struggle with my health has some purpose. I have to think my childhood trauma had some purpose too. Why is purpose so meaningful to me? Without it, what is the point?

My husband has been very supportive. I want to thank him for giving me the best years of my life. I know we annoy each other and fight sometimes, but I can always count on him. I guess that is as close as I can get to trusting someone in this life.

I have been struggling because I want to write about what happened last summer with my husband. But I don’t want to hurt him because he is a good person. He did give me the green light, but I would choose him over being transparent with you any day if I felt it’s what I needed to do.

The whole purpose of having a personal blog is sharing my story. The ups and downs and the bumps along the way. Maybe I can help someone else in this journey. Or maybe it just makes me feel better.

My story is the only thing that cannot be taken away from me. Unless I end up with dementia, of course, which I am convinced will be my demise. But until then I am going to keep writing.

 

 

 

inflamed

I’m sick again. This time it is worse and it hasn’t gone away.

It started Wednesday morning. I woke up having to run to the bathroom. I felt nauseous too but didn’t throw up. I was tired and had to lie down to rest in the morning. By the afternoon, I had a horrible stomachache and muscle cramps. Sorry Jillian Michaels but I was cursing your name. The day before I did a new workout video, or should I say tried to. It was so difficult I could barely do it. My whole body ached. I would’ve run outside but we are back to winter in Wisconsin, so yeah.

I also blamed it on the night before. I ate chili and a fake grilled cheese sandwich for supper. I tried to keep my portions small because I am allergic to tomatoes, eggs, and baker’s yeast (bread). Plus a lot of chili beans are a no-no for my SIBO diet. My diet is so limited it is hard to eat with my family. Or maybe it was food poisoning or stomach flu, although I was the only one sick.

By the afternoon, I rated my stomach and body ache pain at a 7. I decided to take my temperature and discovered I had a fever. Everyone was freaking out because of the coronavirus and told me I needed to call the doctor. I decided to wait until the next morning because it was after office hours and maybe I would feel better the next day. Even during the night I was up every hour or two to run to the bathroom. I’m not going to lie, this has been miserable.

I called the doctor’s office and after being screened by the nurse scheduled an appointment with another doctor for later that morning. I struggled to take a shower and get dressed. I wanted to let you know how I felt at my worst but I couldn’t even sit up to do my puzzle because I was in so much pain. I couldn’t think either.

Paul has been wonderful and took me to my appointment but I would not allow him to go in with me. He is over 50 with high blood pressure and I did not want him to risk his health for mine. Outside of the clinic there was a tent set up for COVID testing. There was someone standing outside the door to the clinic in full protective gear with a clipboard who allowed me in when I told her my name. It was like I was famous getting VIP access to a club.

I entered an empty clinic, checked in, and was called back right away. Everyone at the clinic wore scrubs and a mask with a full face visor over it. It was hard at times to understand what they were saying. There were signs on the door that said dirty room or clean room. The room I went in had nothing on the door. I heard people coughing. On the way out I saw several sick and scared looking people.

I had a whole array of tests done. I was even tested for COVID although the doctor did not think I had it. They took a large cotton swab which they swirled back inside of each nostril. It wasn’t as bad as I thought it would be, but I just got my blood drawn and was more anxious about that.

It’s day three now and I’m still sick. I do feel better than I did on day 1 or day 2. Thankfully my COVID test came back negative. But several tests came back showing inflammation. The doctor now thinks I might have colitis or Crohn’s. I have all of the symptoms. So Tuesday I go in for my first colonoscopy.

I know it sounds crazy, but I probably wouldn’t have called the doctor if it wasn’t for the coronavirus. I was worried about getting other people sick. I probably would have dismissed it as the stomach flu or food poisoning like I’ve done before although no one else in my house ever gets sick. I struggled with lifelong stomach/GI issues that I brushed off as normal for me.

It seems worse this time. Maybe the SIBO and parasitic inflammation that the antibiotics killed was masking other problems. I don’t know. But hopefully next week I will get some answers. It’s hard not feeling well and not knowing what is wrong.