Mental health

Autism heard

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Matt was a normal baby, very bright actually. He knew the alphabet and was saying simple words at age 2. But that all went away.

Even his birth was not a normal event. After crushing back labor, he entered the world with broken bones.

One day the words went away. He stopped talking. He started having nightmares. He screamed instead of sleeping. But I was too young to remember that.

How could such a brilliant mind be stunted? As an adult he can neither read nor write. He cannot solve simple math problems.

For a long time, Matt did not even talk. But the strangest thing happened. He started talking again. But not in the same way that you or I do. He got his pronouns all mixed up. Matt eat..he never referred to himself as I. He also has a speech impediment that makes him difficult to understand by those who did not know him well. This seemed to frustrate him in his younger years and he hit his head with his fist.

The things he said didn’t always make sense to us.

For awhile he repeated the same song in a monotone voice…hands on the table won’t come off, now the hands are stuck on the beard. He would scream if he saw a man with a beard.

But a man with a beard never hurt him.

He was also terrified of tires. He would kick the tires and throw stones at them if people showed up in their cars.

He also heard sticky noises. He would smack his lips to mock the sounds he was hearing. It was a disconcerting sound like chewing with your mouth open times ten.

He also heard the sound of girls laughing at him. Back in the day, he was sent out to recess with the rest of the kids. The older girls teased and mocked his bizarre behaviors. I was there and saw it but was helpless to do anything about it. I didn’t fit in with the other kids because they made fun of my brother. He was an easy target. It made me angry all of the time. But I wasn’t allowed to feel anger. Anger was wrong and it upset Matt. Angry emotions set Matt off and he would hurt himself, my mother, or me. So I withdrew to survive.

Recently Matt was taken off of his anti-psychotic medication due to liver strain. He started to hear voices again. This time the voices were telling him to hurt my niece. But not just hurt her, to kill her.

Fifteen years ago, Matt hurt my daughter. The voices told him to do it. He started to obsess about her, so we limited their contact at the time. It was on her 4th birthday. We didn’t think it would happen…

Afterwards, he muttered to the voices for hours and couldn’t be brought out of it. He didn’t respond when spoken to.

For many years after that my brother was not allowed around my children or any children. He became home bound and isolated from the general population. If it happened again, he was going to be locked up with the violently mentally ill. He started a new medication and silently gently the violent whispers faded away.

My mother asked lately if he was misdiagnosed. Is he schizophrenic too? Or is this some unusual symptom of autism? The doctor said that at this point it really doesn’t matter since it will be treated the same way.

Matt was violent before he hurt my daughter. If we were vigilant enough, we could see it coming on. His jaw would clench, his face contorted, his pupils constricted, and his ears turned bright red.

Sometimes after he hurt someone he seemed very upset about what he had done. Other times he would laugh. It was such an evil laugh that a few asked and we wondered if it was possible that he was demon possessed.

He struggled to differentiate between reality and what the voices were telling him. The voices are very frightening to him.

I think he always had auditory hallucinations, but couldn’t verbalize it to us.

It made me wonder…what if other violent autistic nonverbal people also hear the same voices but can’t tell anyone? How terrifying that would be. What if they think they are being hurt or are hearing a voice that tells them to hurt someone or themselves?

If I would go back to school to get a Master’s degree or PhD in Psychology, I think I would devote time researching this. I couldn’t find a lot of information online. But what is there to find if those who suffer cannot communicate?

This has been incredibly hard for my mom. She can’t mention my niece’s name around Matt. He obsesses about her. He is angry if he thinks that she likes the same things he does and talks about hurting her.

It is hard for us all. I love my brother and don’t want to see him suffer. I love my niece and I don’t want her to be hurt.

How long will it take for the medicine to work?

 

Fireworks..

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It was an interesting weekend on the lake. We headed up north Friday afternoon.

Saturday afternoon, my brother Mark and his wife Carla arrived. They decided to go to rummage sales. I asked to go with as it is always a fun thing to do being cheapskates and all. I was expecting being gone an hour or so. We ended up trudging back 4 hours later. Apparently Mark was kicking himself for not buying a junky accordion for $5 last 4th of July. The people did not have a rummage sale this year, but Mark was tempted to knock on their door to ask about the accordion.

I asked Mark to stop at the store on the way back. I brought everything along to make a banana daiquiri except the rum. As I was looking for the rum, there were some young folks stocking their cart full of liquor. They looked like they were 16. They happened to be right next to me in the checkout line. The cashier wanted to card the group of 5 young people until her manager told her that she only needed to card the one buying.

I pushed the door open on the way out and let it slip shut behind me as one of the young girls came out fast behind me. She muttered ‘bitch’ as she was leaving. At first I thought she was talking to me because I failed to hold the door open for her. I was about to turn around and have a conversation with her about her choice of words when I decided she was upset about the cashier and not me. I walked away not wanting to confront someone that was possibly underage. For a moment I pictured myself confronting the girl and ending the evening incarcerated. Sometimes anxiety works to my favor…just walk away.

The rest of the evening Mark and Carla fought. They didn’t seem very happy to be married.

Then my husband Paul’s stepdad Darryl showed up unexpectedly. Paul’s mother passed away in February. A couple weeks after her passing, Darryl discovered the internet. He has become obsessed with women that he could meet online. It is all he has been talking about. It really makes us uncomfortable.

Darryl was having a conversation via text with a hot younger lady the whole evening. She is younger than me. They were talking for several days and Darryl called her his new girlfriend.

The next morning she said her wallet was stolen and she was starving. She started asking Darryl for money. Darryl had to break up with his new girlfriend and seemed heartbroken. All this happened while Mark and Carla fought.

It’s sad that most people I know are just not happy…not happy being single, not happy being in a relationship. What is the purpose of that??

I told Paul that if he starts searching for my replacement a few weeks after my demise, I would come back from the dead and haunt him with a vengeance.

Every year my family goes up north together for the 4th of July weekend. It is almost like a family reunion. This year my brother Luke couldn’t come with his family. His dog was very sick and needed to spend the night at the vet. But that allowed my parents to come up with my brother Matt. Matt is still hearing voices and is obsessed with hurting Luke’s daughter.

Matt was acting strange.. He giggled like a maniac and became obsessed with the noise of the children next door. It was all very concerning and I had thoughts that I might have to protect those children if Matt freaked out. I remained vigilant, but nothing happened.

I spent three mornings swimming across the lake. It went pretty well. Paul kayaked or boated attentively by me. Every time I took a breath, I saw him there. Except for one time. I had a feeling something was off and I was right. There was a loon in the water 10 feet in front of me and I was heading straight for it. Swimming up north across the lake is terrifying because I can’t see what is in front of me, kind of like life is sometimes when things are uncertain. I probably would never swim again if I rubbed up against the loon.

Paul and I also took the 12 ft sailboat out. The wind picked up and the lake was quiet. Once we got quite a ways out, the wind died and everyone came back out on the lake. We were hit by the boaters waves and had to paddle to get anywhere. Then Paul dropped the paddle and had to jump in. Some of the boaters came by and asked if we needed help causing more waves. Time to sell that sailboat I think.

To tell you the truth, I was bummed out a bit up north this year. My oldest daughter Angel decided to go to St. Louis for the 4th to be with her new boyfriend. My son Alex didn’t want to come up either. I told him he had to come for one day. He showed up late Monday afternoon. He spent the night and left the next morning.

I expected that Alex would spend the day with us swimming and kayaking, but he wanted to go cliff diving with his friends. After he left, I cried a few tears. I felt so upset that he left. I wanted him to be there, but he didn’t want that. I felt hurt to let go of two kids at the same time.

I sat around feeling sorry for myself. We were just about ready to leave when we heard someone call our names from the lake. Our friends Cori and Randy were on a pontoon boat with friends. They kidnapped Paul, my youngest daughter, and I. It was so much fun that I forgot about my sadness for awhile.

That was my weekend.. Sorry it is so long.. I wanted to tell you this before I forgot.

We are leaving soon to go back up north to visit Lisa and Tom…another adventure awaits!

Survival stories

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Over this past week, we have been hit by several severe storms. There was one day that it didn’t storm. Tornadoes blew through the area.

My daughter, Arabella, was at camp all week. They had to take shelter several times due to the severe storms. For once, I didn’t worry too much. I grew up fairly close to the area that my daughter went to camp. I knew exactly where the storms hit. I knew the campers weren’t in the storms path. By the time I knew a storm was coming, it had already passed that area.

After I picked up my daughter from camp, I went to the cemetery to see if my grandparents ‘survived’ the storm. I checked on their parents and siblings too. It seemed like a strange thing to do, since they all have been dead for almost a decade or more. I don’t get out that way to visit too often.

I remember going as a child along with my grandma and Aunt Grace to check on our family at the cemetery after a storm. Now, regrettably, it felt like my turn.

I drove by my grandparents house. The new owners put up a decorative fence in the front yard. At Aunt Grace’s house, the new owners put in a new front door and constructed a flower bed where a tree used to be. It is still painful to drive by.

I stopped at my parents house, but they weren’t home. It was oddly silent. I feel a certain sadness when I go home. I can’t explain it. I feel nostalgia for what was. I feel grief for things that happened that shouldn’t have. I feel an emptiness, a sense of being alone. It is a painful feeling, but ever so slightly, an uneasiness that almost cannot be pinpointed.

I picked asparagus in my parents backyard as I saw lightening and heard the rumble of distant thunder. I felt empty, alone, and a little afraid. Afraid of being vulnerable out in the open. I felt the emptiness of it all. Soon my parents will be gone. I still regret not spending every moment with my loved ones that I could before they were gone. Guilt. But not even deserved. I spent a lot of time with my family. My mother didn’t want to let me go, so I stayed. I’m the dutiful firstborn that never went far from home. I was needed.

As I ventured out and about this week, I talked to others that faced the storm. People are drawn to tales of destruction, to view the carnage. People want to share their survival stories. I spoke to a stranger that said his family had several collector cars that were destroyed by the tornado after the shed they were in blew away. Cars that were loved, the original parts sought after. I saw pictures. How often does a stranger show you picture after picture on their phone??

I heard the story of a barn the was destroyed in the storm. The cows were lost and some blew away. Half of the cows were found down the road impaled into the ground. These are survival stories being told by people grasping for others who can relate.

I thought about the stories I heard, then realized that I am the same way. I want to tell my story. I want to feel united in life’s collective struggle. They may not be the same stories, but have the common key of surviving something difficult.

I told you this week about a couple of stories where we survived sailing under difficult circumstances that were unexpected. I tell you about my races, how grueling the last triathlon and marathon were. My struggles as a parent, spouse, business owner, and with my own personal issues. I speak of surviving a very difficult childhood. I often feel alone because I don’t hear a lot of people with a similar story.

Who else out there has a severely mentally ill sibling that threatened to kill the youngest most vulnerable family members? Beside my siblings, I know of no other person who has that story to tell. It is lonely struggling alone.

My favorite bloggers are those that have struggled too. I don’t read your stories because I like to see you in pain or your failure. Your stories motivate me to go the extra mile. They inspire me to keep telling my story.

I almost feel sorry for people that don’t have a story to tell.

The same old demons, shaken and stirred

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Once again, I don’t particularly feel like writing. But here I am sucked into this strange compulsion to tell my story.

My youngest daughter, Arabella, was planning on having a friend up north with us this past weekend. We had to cancel those plans. The old Matt was back in town.

When Matt went off of his medication, the voices came back…the ones that told him to hurt little girls. He said that he wanted to kill our 10 year old niece. He said the voices scared him.

Matt was going to be up north this weekend. Arabella wanted to bring a friend that had long glossy hair down to her waist. She was the kind of girl that Matt might want to wrap his fingers around. He might want to pull her hair and make her cry. Or maybe he would sink his nails into her skin. I imagine those things because those things are possible.

Arabella didn’t understand why I changed my mind about letting her have a friend up north. She never saw the old Matt. She didn’t understand not being able to have friends over like I did. She was angry at me.

At first, I felt a great sadness over the whole situation. But it is strange how soon it became normal again. The agitated Matt…the man with fire red ears and constricted pupils muttering like a mad man. The Matt that flapped his hands together against his chest and paced the floors. The same Matt that hurt me…my family…my mother…my friends…my oldest daughter.

Isolation…but this time it won’t be me. Luke will have to spend some time away. He can’t risk his daughters being hurt.

I feel his pain.

I know what it feels like to see someone I love hurt by someone I love…the conflicting emotions of anger and compassion.

Matt’s needs were always and will always be more important than that of us, his siblings.

All of the old feelings popped up again. It probably didn’t help that I was already diving into it by reading old journals.

I was stirring up old demons while being shaken by the new ones.

I feel bad that I probably won’t be able to see Luke and his family much this summer. I hope that this passes soon now that Matt is back on his medicine again.

A special (needs) Mother’s Day

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Last weekend I told you that my mom left early before she could celebrate my son’s accomplishments at state by going out to eat with us.

What I didn’t tell you was by the time she got home my brother Matt was sick. He was sick enough to lose 9 lbs in less than a week. He couldn’t keep down any food. He was also having involuntary movement of his jaw. He was anxious and restless without much sleep.

My mom scheduled a doctor appointment for Matt after he was sick for several days without improving. The doctor thought that he was going through withdrawal.

Last month Matt’s liver was showing signs of stress so it was decided that he would go off of his anti-psychotic meds that he was on for almost 20 years.

Apparently his psychiatrist took him off his medication too fast. Then he retired and moved to Florida without a replacement.

I feel really sad about everything that happened over this past week, not just for my brother but for my mother too.

I really want to spend Mother’s Day with my mom tomorrow but it seems like she is too busy mothering.

Is it selfish of me to want my mother to myself? To want her to fully participate in my kids events?? Should I want that when my brother needs her so much more??

When I was on speaker phone with my mom a few days ago, I could hear Matt throwing up in the background. I could hear the pain in my mom’s voice.

To be honest, I just want to run away from the whole situation..

I want to be able to spend the day with my mom tomorrow, but at this point I am not sure what is going to happen..

Sometimes I even feel guilty for wanting my mom’s time.

Mother’s Day is the least of her concerns right now, but that doesn’t mean that I don’t want it to be special for her…and not in the special needs kind of way..

Autism’s sibling, journal 3 part 1

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Now I am ready to tell you about myself, my family, and you will understand everything..

Everyday Matt would be violent. He would bite me and claw up my arms. I have the scars to prove it, although they faded a little because he’s a little better. But it was awful. Everyday he would be uncontrollable. It was always me he hit.

Once he had this thing about men with beards. He would scream and be awful. Once Matt, mom, and I went grocery shopping and Matt saw a guy with a beard. He got really mad. When mom was checking out, she had to hold him down on the floor because he could hurt someone. 

Or how about the time when we had to move the knives because he took one out and threatened to stab my eyes out.

Or when my mom got a bloody lip because he threw his head back on her. She started crying and it really upset me when I heard her say, “What kid would do this to his mother?”.

The stress was unbearable.

I couldn’t have any friends over because they might have on a fragrance and he might react. So you could say that I never really had many friends over because he would hurt them or me. I couldn’t wear any hair spray or anything with a fragrance.

Other times he would hurt small kids.

We had to do different things. We had to get unfragranced soap, shampoo, deodorant, and laundry soap. We had to close the windows when there was an east wind because the auto exhaust would bother him.

He couldn’t leave the house. He had to eat special foods. We never had anyone over because Matt might hurt them.

He can’t read and when he was younger, he couldn’t talk. He would do weird things like grind his teeth and hit his head. He broke about 5 stereos, one of mine, one of mom’s, and the rest were his.

He couldn’t go swimming because of the chlorine. He would be wild for two or three days in a row. He threatened to run away.

Alissa, 1990

Over time, I have forgotten the magnitude of the stories written by a younger me.

To be honest, something has been scratching at my mind since I stirred up my demons.

My last post was on locker rooms of all things..Talking about locker rooms seemed to bother me more than it should have..Memories swirl through my mind. My mom taking a too old Matt into the girls locker room? There weren’t options back then like there are now. A too old screaming autistic boy in the ladies locker room would have been memorable back then, but I don’t remember more than a flicker.

There are whispers quietly echoing through my mind, but I can’t make out the words.

I am nervous as I type.

Do I really want to remember?

Winds of change..

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IMG_1988It has been very windy around here the past couple of days. It hasn’t been the kind and gentle whistling wind that reminds me of my grandparents…the wind that whistled through the back window of my grandpa’s pick up truck.

No, it has been the harsh destructive kind of wind. It’s the kind that bends us without breaking us.

As many of you know, this past month hasn’t been the easiest one for us. A month has come and gone since the passing of my MIL from cancer. Over this month, several others have gently slipped away…parents of acquaintances…someone I knew my whole life but wasn’t close to…gone….swept away by the winds of time…loved ones mourned..

The wind blew away the dead leaves..yet left behind the empty nests..

Sickness swept through the house…even the pets had fleas…sometimes I want to burn the house down and start over…cleansing fires…(If the dryer starts my house on fire, I never mentioned this)…

Junk, plastic bags, dirt covered receipts, a mysterious sock, and things unwanted blew away when the whirls of wind billowed by.

My mom called a few days ago. My dad has gout (probably from his birthday dinner) and can’t get around. He missed a doctor’s appointment..

Bows and party streamers wrap around the empty branches. When did we have fun last?

My autistic brother Matt has been removed from all of his medications..after long term use, his liver is showing signs of strain…his numbers are reaching toxic levels…The first few days were rough. He slept only 4 hours the first three days…All of the symptoms the medications were controlling came back…his anxiety…his insomnia…his Tourette’s…the tics….the gagging…throwing up..

Sometimes the wind is so cold that it seems to blow right into my very soul. I have to bundle up to stay warm. I don’t let people see the layers beneath..

All of his symptoms are taking me back to the late 90’s…he was very ill then…he also has GERD, like me…Tourette’s caused gagging…extreme weight loss…vomiting meals, at the table or all over the bathroom floor…or somewhere on the way…usually only in the morning…until his valve closed between his stomach and intestines…then he kept no food down…plus having Celiac…not absorbing nutrients…his body starving…emaciated…yet he had no understanding of what was happening to him..but we did..

Sometimes the winters can be so lonely, dark, and cold. Why can’t it be a breeze? How did we ever make it through?

Yet, while this was happening to his body physically, his mind was attacking his body as well….he heard voices…he became agitated and randomly attacked people…he was violently autistic…the main people he attacked were family members….my mom…myself…as he was kept out of public as much as possible…for awhile, he wasn’t allowed in the public school because of his violence..

Why is it that the season before spring is so desolate and devoid of the hope of the warmth to come??

My wedding day in 1997…I told my mother I didn’t want my brother there…It was hard…Mother, I would be crushed if Matt attacked a wedding guest…It would ruin MY special day…I felt horrible about it…We took time away on our wedding day to have photos taken with Matt in a hotel room…Matt was so sick, my mom thought he would die…I said he couldn’t go to my wedding…Matt didn’t go to my brother Luke’s wedding either in 2002…he stayed in a hotel room…I asked a friend to be his caregiver so my parents could attend the wedding…when my brother Mark got married a little over a year ago, Matt attended and was fine…Now will this medicated stability go away??

I saw a decaying leaf fly away in the wind. Are all leaves different like snowflakes, I wonder…

Last weekend my mom told me that I need to write the story of Matt. I almost told her about this and all of the kind folks here, but didn’t. I couldn’t be honest anymore. I would have to protect her. Maybe I will drag out another diary soon…It’s been awhile..

Sometimes the wind is cleansing. It dries up our collective tears that puddle on the ground from the winter thaw. It removes the death and decay from the cold barren soil preparing it for new life.

Even though I can’t see it right now, I have hope that life will be better for us.

The winds are blowing the last few harsh remnants of winter away. Soon it will be spring..

 

 

Another nightmare…

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Last night I had another nightmare…

I dreamed that I was pregnant.

As a woman in my 40’s (AND the mother of 3 teenagers!!!!!!!), that is my worst nightmare.

My 13 year old daughter is currently going through a rebellious stage. She currently hates me. Yesterday she mentioned that she likes her brother more than me. Trust me, that is bad! Seriously, what did I do?? That’s right! I breathe. I’m annoying. I wouldn’t understand.

She told me this past weekend that she is a psychopath because of something she read on the internet. Of course, from a very reliable source.  Oh, and a few of her friends are psychopaths too. WTH??

Her worry over it tells me that there is zero possibility. That and my psychology degree. That, my psychology degree, and that she couldn’t hurt a flea. Trust me, I know THIS..

I only know one psychopath, my best friend Cindy’s ex-husband. He started another family while he was married to her. His oldest son was born a few months before their first son was born. He did crazy things like drive into a tree so he had an excuse not to visit his girlfriend after his wife gave birth.

Thankfully, I only had the pleasure of meeting her ex once!

Maybe she should start a blog.

Cindy is happy now. She married a wonderful man named Ted. They had teenagers in the house when she got pregnant in her 40’s. My nightmare is her dream come true.

I have to remember that this will pass..

Maybe someday I will even laugh about it.

Yes, I’m certain that I will….when my kids call me someday with teenager issues…while I am out traveling the world..

 

Not a special Olympics type of story

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For many the holiday season triggers memories of joy and happiness. For me, this time of year triggers some sort of post traumatic stress response. I realize that now. Wow, and it only took me 19 years to figure it out after I earned a degree in psychology.

I feel like I am back to normal now, whatever that is..

For the first time in my life, I was able to write down exactly how I felt while I was going through it. It wasn’t easy to relate. I think I have some sort of post traumatic stress response to certain triggers. It sounds absolutely crazy, I know. Most of the time triggers elicit a response of depression for a day or two at most.

I think this happens more often than I realize, but not quite as severe.

After I left my childhood home, I fell into a deep depression that lasted for several years. I also picked up anger and anxiety to put in my baggage along the way.

I don’t blame anyone for what happened.

I remember starting to feel angry last week at Thanksgiving when my mom was giving me a hard time about taking Prilosec for my acid reflux. She really wants me to get allergy testing and offered to pay for it. I have been reluctant. It’s not that I disagree, it triggered memories of growing up.

Matt was supposedly allergic to everything. We couldn’t even have cars parked in the garage because of exhaust fumes. We couldn’t have curtains because of the formaldehyde. For awhile we weren’t allowed to use toothpaste.

Personally, I think that my mother’s response was too extreme. She would have extreme anxiety if Matt was exposed to any allergens. She would scream at my dad if he came in the house smelling like exhaust fumes. She called the nearby farmers and screamed at them if they sprayed their fields without calling her first. She even called the county and yelled at them when they came by spraying the ditches.

My mom seemed to think that controlling Matt’s environment would stop him from being violently autistic. But nothing seemed to stop his violence towards himself and others, namely me.

I think that my mother has and always had good intentions. She is worried that I will die from kidney failure, a supposed side effect from the Prilosec. I will have to tell her that my daughter Angel has already offered me her kidney when mine fails.

My mom was always there for me when I was a kid. She was the one who helped me pick up the pieces of my broken mind after Matt was violent. She also helped my brother Mark out when he experienced a similar response to mine. The task she was given was not easy to do.

I don’t blame my dad, despite his cruelty. He was as much of a victim as the rest of us.

I don’t even blame Matt. If you met Matt today, you wouldn’t believe a word I have told you. He is now docile. By some miracle, he grew out of his violence.

The last time that he hurt someone was 14 years ago. He attacked Angel on her 4th birthday. After he attacked Angel, it was a time of great emotional turmoil for me. I cut Matt out of my life completely for a few years. He wasn’t allowed around my children.

His psychiatrist threatened to have him committed to a place for the violently mentally ill. It was one thing when a child was hurting other children, but it was entirely different when a grown man was attacking children. In response to this, Matt was home bound once again and kept out of public where he could hurt someone and get committed.

I was already feeling edgy about my mom pushing the allergy testing on Thursday. Then my visit with my dying mother-in-law on Saturday made me very anxious. Then the sadness over Angel going back to college and the trigger of the Christmas tree was enough to set me off into this deep dark spiral downward.

I feel horrible about talking to you about this. I wish I had a great special Olympics type special needs sibling story to tell you. I feel tremendous guilt that I don’t.

I haven’t met anyone else who has had a similar experience to mine. If you are out there somewhere, I want to tell you that there is hope. This was the only thing that kept me alive as a teenager and young adult. I prayed fervently and had hope that someday there would be a better life for me where I could experience joy.

I firmly believe that you cannot fully experience joy without experiencing sorrow. I have found that joy in abundance. I experience life at a much deeper level than I think I would have if my life was easy breezy. No small talk here, just the blatant honest truth. There is value in being able to honestly share the sorrow that I experienced this week. I need to accept what I have been through and the emotions that accompany it.

There is hope! If opening myself up and allowing myself to be vulnerable helps just one person hold on for another day, it would be worth it. You are not alone! There is hope…

Trust that tomorrow will be a better day.

 

7. What is your dream job?

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7. What is your dream job, and why?

When I was younger, quite a bit younger, I wanted to be a counselor. I earned a Bachelor’s degree with a counseling emphasis. I had every expectation to get my Master’s degree and become a licensed counselor, but didn’t.

To tell you the truth, I wanted to fix broken people. I wanted to change them. I wanted to take their weaknesses and make them strengths. I wanted to make flowers grow in a patch of weeds.

I never told you this before, when I was younger my mom would pair me up with younger girls that also had difficult sibling situations. Sometimes I would visit for a few hours or a weekend. I think that the purpose was to counsel and console them like I did with my mom. There was no doubt I would be a counselor.

Then my last year of college happened. We had a professor that was a counselor. She made me doubt my career ambitions. She took away my unrealistic expectations and told us what it really was like being a counselor.  She told us how her holidays were interrupted because she had a take calls from suicidal clients. She told us of the times she lost clients to suicide and spoke of how difficult it was to handle. I questioned my ability to change people. I mean, I couldn’t even change myself or my loved ones who were struggling.

Really, who did I think I was? God?? To think that I could save people?

I thought about going back to school to be a counselor off and on over the last couple of decades, but no longer have the interest to do so. I don’t think I could listen to people talk about their problems and not do anything to fix them. I really lack compassion for those who are unwilling to change and just want someone to complain to. I think it would be incredibly hard to watch someone spiral down into mental illness and not be able to pull them back out. I would take every suicide personally as a failure on my part.

I also dreamed of being a librarian..surrounded by books in quiet serenity…organizing books..

I dreamed of being a lead singer in a band…exciting weekends being a star.

I even dreamed of working alone in a lab analyzing samples…checking for little details that might be off…water samples…pap smears…biopsies…DNA testing…being away from people using my analytical skills.

But right now, more than anything, my dream job is to be a writer.. I have been considering leaving my job of nine years and going back to get my Master’s degree in writing…The first thing that I would do is write my story…growing up with an autistic sibling… I would make it my life work… I would tell my mom…receive her blessing…get all of her journals that she used to write in to compile with mine… then write…offer hope to (without trying to fix)  people who are struggling…it has been something I have always felt compelled to do… then I would be free from it and spend the rest of my life being a freelance travel writer…travel the world off the beaten path…take many pictures and write…

That would be my dream job..